Cholangiocarcinoma Foundation
- Assets
- $4.6m
- Revenue
- $5.1m
- Investments
- $0.0
- Employees
- 26
- Location
- Salt Lake City, UT
- Founding
- 11/2007
- Data as of
- 06/2023
- EIN
- 20-5776861
Organization Overview
Cholangiocarcinoma Foundation is located in Salt Lake City, UT. The organization was established in 2007. According to its NTEE Classification (H99) the organization is classified as: Medical Research N.E.C., under the broad grouping of Medical Research and related organizations. As of 06/2023, Cholangiocarcinoma Foundation employed 26 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cholangiocarcinoma Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2023, Cholangiocarcinoma Foundation generated $5.1m in total revenue. This organization has experienced exceptional growth, as over the past 8 years, it has increased revenue by an average of 25.2% each year . All expenses for the organization totaled $5.3m during the year ending 06/2023. While expenses have increased by 27.0% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Cholangiocarcinoma Foundation has awarded 53 individual grants totaling $3,479,249. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE ORGANIZATION'S MISSION IS TO FIND A CURE AND IMPROVE THE QUALITY OF LIFE FOR CHOLANGIOCARCINOMA PATIENTS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH THE ORGANIZATION FOUNDED AND PARTICIPATES IN THE INTERNATIONAL CHOLANGIOCARCINOMA RESEARCH NETWORK, A GLOBAL COLLABORATION OF RESEARCH GROUPS FROM RENOWNED INSTITUTIONS WORKING IN CONCERT TO IMPROVE KNOWLEDGE ABOUT CHOLANGIOCARCINOMA ETIOLOGY, PREVENTION, DETECTION, TREATMENT, AND PROGNOSIS. THE NETWORK INCLUDES TRAINED EXPERTS FROM VARIOUS DISCIPLINES, PERSPECTIVES, AND RESEARCH METHODS WHO SHARE A PASSION FOR MAKING SIGNIFICANT SCIENTIFIC ADVANCES TO IMPROVE OUTCOMES FOR PATIENTS WITH CHOLANGIOCARCINOMA. THE ORGANIZATION PIONEERED AND MAINTAINS A ROBUST PROGRAM TO SUPPORT INNOVATIVE SCIENTIFIC DISCOVERY THROUGH A RESEARCH FELLOWSHIP PROGRAM WITH NEW AWARDS PROVIDED TO QUALIFIED RESEARCHERS.
PATIENT SUPPORT THE ORGANIZATION OPERATES GLOBALLY WITH THE MISSION OF FINDING A CURE FOR CHOLANGIOCARCINOMA (BILE DUCT CANCER) AND IMPROVING THE QUALITY OF LIFE FOR PATIENTS. IT PURSUES INNOVATIVE METHODOLOGIES, TECHNOLOGIES, AND PARTNERSHIPS TO DRIVE EDUCATION, SUPPORT PROGRAMS, RESEARCH, AND FUNDING STRATEGIES. THE FOUNDATION SUPPORTS PATIENTS AND THEIR CAREGIVERS BY CONNECTING THEM TO RESOURCES, MENTORS, SUPPORT GROUPS, AND INFORMATIONAL WEBINARS. THE ORGANIZATION PROVIDES INFORMATION TO EQUIP PATIENTS AND THEIR CAREGIVERS TO NAVIGATE THEIR TREATMENT JOURNEY ALONGSIDE THEIR HEALTHCARE PROVIDERS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Alli Ward COO | Officer | 40 | $148,814 |
Stacie Lindsey Ceo/founder | OfficerTrustee | 40 | $135,414 |
Teresa Delcorso-Ellmann Chair | OfficerTrustee | 5 | $0 |
Dean Meyer Vice Chair | OfficerTrustee | 5 | $0 |
Robert Russell Secretary | OfficerTrustee | 2.5 | $0 |
Daniel Blum Treasurer | OfficerTrustee | 2.5 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Encore Event Managemen | 6/29/23 | $146,269 |
Volume Services Dba Centerplate Catering | 6/29/23 | $208,459 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $4,884,253 |
| Noncash contributions included in lines 1a–1f | $66,554 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $4,884,253 |
| Total Program Service Revenue | $58,825 |
| Investment income | $86,464 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $1,763 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $51,345 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $5,082,650 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $948,026 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $50,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $340,331 |
| Compensation of current officers, directors, key employees. | $89,524 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,487,019 |
| Pension plan accruals and contributions | $31,855 |
| Other employee benefits | $85,918 |
| Payroll taxes | $152,435 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $76,944 |
| Fees for services: Accounting | $18,764 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $653,562 |
| Advertising and promotion | $83,516 |
| Office expenses | $124,751 |
| Information technology | $253,507 |
| Royalties | $0 |
| Occupancy | $31,558 |
| Travel | $429,148 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $38,594 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $14,351 |
| Insurance | $10,357 |
| All other expenses | $18,806 |
| Total functional expenses | $5,266,027 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $815,622 |
| Savings and temporary cash investments | $2,520,472 |
| Pledges and grants receivable | $185,575 |
| Accounts receivable, net | $5,458 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $136,131 |
| Prepaid expenses and deferred charges | $157,333 |
| Net Land, buildings, and equipment | $32,437 |
| Investments—publicly traded securities | $771,137 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $4,624,165 |
| Accounts payable and accrued expenses | $993,414 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $993,414 |
| Net assets without donor restrictions | $3,275,177 |
| Net assets with donor restrictions | $355,574 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $4,624,165 |
Grants Awarded
Over the last fiscal year, Cholangiocarcinoma Foundation has awarded $946,026 in support to 8 organizations.
| Grant Recipient | Amount |
|---|---|
MASS GENERAL HOSPITAL PURPOSE: CANCER RESEARCH | $50,000 |
MAYO CLINIC PURPOSE: CANCER RESEARCH | $194,026 |
MD ANDERSON CANCER CENTER PURPOSE: CANCER RESEARCH | $100,000 |
THE BROAD INSTITUTE PURPOSE: CANCER RESEARCH | $402,000 |
UNIVERSITY OF HAWAII PURPOSE: CANCER RESEARCH | $50,000 |
EMORY UNIVERSITY PURPOSE: CANCER RESEARCH | $50,000 |