Cholangiocarcinoma Foundation
- Assets
- $4.0m
- Revenue
- $4.9m
- Investments
- $0.0
- Employees
- 21
- Location
- Salt Lake City, UT
- Founding
- 11/2007
- Data as of
- 06/2022
- EIN
- 20-5776861
Organization Overview
Cholangiocarcinoma Foundation is located in Salt Lake City, UT. The organization was established in 2007. According to its NTEE Classification (H99) the organization is classified as: Medical Research N.E.C., under the broad grouping of Medical Research and related organizations. As of 06/2022, Cholangiocarcinoma Foundation employed 21 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cholangiocarcinoma Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Cholangiocarcinoma Foundation generated $4.9m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 28.8% each year . All expenses for the organization totaled $3.6m during the year ending 06/2022. While expenses have increased by 24.6% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2014, Cholangiocarcinoma Foundation has awarded 54 individual grants totaling $3,077,223. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE ORGANIZATION'S MISSION IS TO FIND A CURE AND IMPROVE THE QUALITY OF LIFE FOR CHOLANGIOCARCINOMA PATIENTS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH THE CHOLANGIOCARCINOMA FOUNDATION CONTINUES TO FOCUS ON COLLABORATIVE RESEARCH EFFORTS WITH MEDICAL, SCIENTIFIC, ACADEMIC, REGULATORY, AND NOT- FOR-PROFIT PARTNERS. DURING THE YEAR ENDED JUNE 30, 2022, THE ORGANIZATION FUNDED ELEVEN FELLOWSHIPS FOR EARLY CAREER RESEARCHERS FOCUSING ON STUDIES IN CHOLANGIOCARCINOMA. THE ORGANIZATION FUNDED EFFORTS TO ENHANCE AND RESEARCH CHOLANGIOCARCINOMA GENETICS DATA. THE ORGANIZATION HAS ALSO CONTINUED THE SUPPORT OF A SPECIMEN REPOSITORY.
ADVOCACY THE CHOLANGIOCARCINOMA FOUNDATION IS COMMITTED TO PROVIDING SERVICES TO PATIENTS AND THEIR FAMILIES AFFECTED BY THIS DEVASTATING DISEASE. BOTH PATIENTS AND THE PROFESSIONAL COMMUNITY ARE EDUCATED THROUGH THE ORGANIZATION'S ANNUAL CONFERENCE, WEBINARS, WEBSITE, AND BOOK 100 QUESTIONS AND ANSWERS ABOUT CHOLANGIOCARCINOMA. THE ORGANIZATION ALSO PROVIDES DISEASE EDUCATION, EMOTIONAL SUPPORT, AND MANY RESOURCES THROUGH ONLINE PATIENT SUPPORT GROUPS, SOCIAL MEDIA SITES, AND RESPONSES TO DAILY CALLS AND EMAILS. THROUGH INITIATIVES SUCH AS MUTATIONS MATTER, INTERNATIONAL PATIENT REGISTRY, ACTION ALERTS, AND THE BILIARY INFORMATION CARD, PATIENTS AND THEIR CAREGIVERS CAN PARTICIPATE IN RESEARCH EFFORTS WHILE BEING EMPOWERED TO TAKE PART IN THEIR HEALTHCARE. THE ORGANIZATION ALSO PARTNERS WITH LIKE-MINDED ORGANIZATIONS TO SPREAD AWARENESS ABOUT THE CHALLENGES FACED BY THE RARE DISEASE COMMUNITY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Alli Ward COO | Officer | 40 | $133,770 |
Stacie Lindsey Ceo/founder | OfficerTrustee | 40 | $128,914 |
Robert Russell Secretary | OfficerTrustee | 1 | $0 |
Bruce Coppock Vice Chair | OfficerTrustee | 1 | $0 |
Teresa Delcorso-Ellmann Chair | OfficerTrustee | 1 | $0 |
Daniel Blum Treasurer | OfficerTrustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $207,950 |
| All other contributions, gifts, grants, and similar amounts not included above | $4,569,811 |
| Noncash contributions included in lines 1a–1f | $265,482 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $4,777,761 |
| Total Program Service Revenue | $143,048 |
| Investment income | $1,439 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $3,076 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $10,341 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $4,935,665 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $500,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $100,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $273,066 |
| Compensation of current officers, directors, key employees. | $60,973 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,139,296 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $48,394 |
| Payroll taxes | $119,057 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $1,085 |
| Fees for services: Accounting | $21,377 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $399,391 |
| Advertising and promotion | $111,379 |
| Office expenses | $101,287 |
| Information technology | $132,965 |
| Royalties | $0 |
| Occupancy | $32,171 |
| Travel | $228,710 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $31,709 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $8,925 |
| Insurance | $7,205 |
| All other expenses | $22,642 |
| Total functional expenses | $3,620,452 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $2,994,691 |
| Savings and temporary cash investments | $622,695 |
| Pledges and grants receivable | $191,600 |
| Accounts receivable, net | $4,352 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $108,569 |
| Prepaid expenses and deferred charges | $77,873 |
| Net Land, buildings, and equipment | $18,338 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $4,018,118 |
| Accounts payable and accrued expenses | $250,340 |
| Grants payable | $0 |
| Deferred revenue | $15,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $265,340 |
| Net assets without donor restrictions | $2,182,150 |
| Net assets with donor restrictions | $1,570,628 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $4,018,118 |
Grants Awarded
Over the last fiscal year, Cholangiocarcinoma Foundation has awarded $500,000 in support to 9 organizations.
| Grant Recipient | Amount |
|---|---|
Somerville, MA PURPOSE: CANCER RESEARCH | $100,000 |
Baltimore, MD PURPOSE: CANCER RESEARCH | $50,000 |
Rochester, MN PURPOSE: ICRN BIOREPOSITORY | $50,000 |
NATIONAL CANCER INSTITUTE PURPOSE: CANCER RESEARCH | $50,000 |
New York, NY PURPOSE: CANCER RESEARCH | $50,000 |
Pittsburgh, PA PURPOSE: CANCER RESEARCH | $50,000 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Cholangiocarcinoma Foundation has recieved totaling $2,500.
| Awarding Organization | Amount |
|---|---|
Carl Bach Trust Two Uw Los Angeles, CA PURPOSE: TO ASSIST ORGANIZATION IN ACCOMPLISHING ITS GOALS | $2,500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Research Corporation Tucson, AZ | $242,008,144 | $26,138,153 |
Southwest Autism Research And Resource Center Phoenix, AZ | $18,925,029 | $16,667,407 |
Biomedical Research Institute Of New Mexico Albuquerque, NM | $13,199,153 | $8,153,350 |
Glenn Foundation For Medical Research Inc Phoenix, AZ | $192,520,690 | $23,653,368 |
Cholangiocarcinoma Foundation Salt Lake City, UT | $4,018,118 | $4,935,665 |
Colorado Wheat Research Foundation Inc Fort Collins, CO | $552,396 | $3,293,864 |
National Community Health Partners Sahuarita, AZ | $263,343 | $3,493,424 |
Institute For Ethnomedicine Inc Provo, UT | $4,594,183 | $3,175,275 |
Realm Of Caring Foundation Inc Colorado Springs, CO | $636,138 | $1,085,312 |
Community Rebuilds Moab, UT | $3,526,595 | $1,041,551 |
Arizona Elks Major Projects Inc Tucson, AZ | $7,581,052 | $955,588 |
Interventional Orthopedics Foundation Denver, CO | $902,096 | $364,758 |