International Pemphigus Pemphigoid Foundation
- Assets
- $476.5k
- Revenue
- $639.8k
- Investments
- $0.0
- Employees
- 9
- Location
- Roseville, CA
- Founding
- 10/1994
- Data as of
- 12/2021
- EIN
- 94-3207871
Organization Overview
International Pemphigus Pemphigoid Foundation is located in Roseville, CA. The organization was established in 1994. According to its NTEE Classification (E60) the organization is classified as: Health Support, under the broad grouping of Health Care and related organizations. As of 12/2021, International Pemphigus Pemphigoid Foundation employed 9 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. International Pemphigus Pemphigoid Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, International Pemphigus Pemphigoid Foundation generated $639.8k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 6.7% each year. All expenses for the organization totaled $523.5k during the year ending 12/2021. While expenses have increased by 1.1% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
MEDICAL INFORMATION, AWARENESS, RESEARCH, AND PATIENT SUPPORT FOR AN ORPHAN DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PATIENT SUPPORT AND EDUCATION - THE IPPF OFFERS A VARIETY OF FREE PATIENT SERVICES TO HELP PATIENTS LIVE AN ACTIVE, PRODUCTIVE LIFE. THESE INCLUDE OUR PEER COACH PROGRAM, PATIENT EDUCATION WEBINARS, LOCAL AND REGIONAL SUPPORT GROUPS, FIND A DOCTOR MAP, ANNUAL PATIENT EDUCATION CONFERENCES, AND EDUCATIONAL RESOURCES. THESE ARE JUST SOME OF THE WAYS TO CONNECT WITH THE PEMPHIGUS AND PEMPHIGOID (P/P) COMMUNITY.
PUBLIC AWARENESS AND ADVOCACY - THE IPPF BIOPSIES SAVE LIVES PROGRAM SEEKS TO ACCELERATE DIAGNOSIS TIME OF PEMPHIGUS AND PEMPHIGOID (P/P) PATIENTS. OUTREACH IS DIRECTED TO DENTAL PROFESSIONALS THROUGH STUDENT AND CONTINUING EDUCATION, WHO HAVE THE UNIQUE OPPORTUNITY TO SHORTEN DIAGNOSIS TIMES.ADVOCACY IS DEFINED AS PUBLIC SUPPORT OR RECOMMENDATION FOR A PARTICULAR CAUSE. ADVOCACY IS DIFFERENT FROM LOBBYING, WHICH LOOKS TO INFLUENCE A PARTICULAR ELECTED OFFICIAL OR LEGISLATION. ADVOCACY CAN TAKE PLACE ON LOCAL, STATE, OR FEDERAL LEVELS OF GOVERNMENT. THE IPPF MAINLY ADVOCATES FOR PATIENTS AT THE FEDERAL LEVEL, BUT WE ENCOURAGE OUR COMMUNITY TO SUPPORT GRASSROOTS EFFORTS THROUGH VARIOUS UMBRELLA ORGANIZATIONS.
RESEARCH - BEFORE NEW TREATMENT THERAPIES CAN BE DEVELOPED, INVESTIGATORS NEED TO BETTER ESTIMATE THE PREVALENCE OF P/P, STUDY THEIR PATHOPHYSIOLOGY, UNDERSTAND TREATMENT PATTERNS, AND ASSESS THE BURDEN OF THESE DISEASES ON PATIENTS. THE IPPF ENCOURAGES RESEARCH BY CONDUCTING OUR NATURAL HISTORY STUDY, HOSTING SCIENTIFIC SYMPOSIA, PERIODICALLY OFFERING RESEARCH GRANTS, AND MAINTAINING A LIBRARY OF CLINICAL TRIAL INFORMATION FOR RESEARCHERS AND HEALTHCARE PROFESSIONALS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Staci White Secretary | OfficerTrustee | 2 | $0 |
Sonia Tramel Treasurer | OfficerTrustee | 2 | $0 |
Carolyn Fota President | OfficerTrustee | 5 | $0 |
Badri Rengarajan Director | Trustee | 1 | $0 |
Laurence Gallu Director | Trustee | 1 | $0 |
Ramesh Swamy Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $6,188 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $49,722 |
| All other contributions, gifts, grants, and similar amounts not included above | $583,812 |
| Noncash contributions included in lines 1a–1f | $907 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $639,722 |
| Total Program Service Revenue | $0 |
| Investment income | $33 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $639,755 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $322,096 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $42,233 |
| Payroll taxes | $26,869 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $2,748 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $500 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,860 |
| Advertising and promotion | $0 |
| Office expenses | $1,151 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $3,090 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $8,182 |
| All other expenses | $28,596 |
| Total functional expenses | $523,496 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $475,461 |
| Savings and temporary cash investments | $1,000 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $476,461 |
| Accounts payable and accrued expenses | $1,629 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $1,629 |
| Net assets without donor restrictions | $444,832 |
| Net assets with donor restrictions | $30,000 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $476,461 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that International Pemphigus Pemphigoid Foundation has recieved totaling $125,104.
| Awarding Organization | Amount |
|---|---|
Sy Syms Foundation A New Jersey Non Profit Corp Fort Lee, NJ PURPOSE: CHARITABLE MEDICAL | $75,000 |
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $50,000 |
Pfizer Foundation Inc New York, NY PURPOSE: MATCHING GIFTS | $104 |
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Supporting Initiatives To Redistribute Unused Medicine-Sirum Palo Alto, CA | $28,261,669 | $36,792,276 |
M A C T Health Board Incorporated Angels Camp, CA | $53,645,952 | $30,568,229 |
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Community Health Alliance Of Pasadena Pasadena, CA | $18,827,487 | $24,947,791 |
Bestcare Treatment Services Inc Redmond, OR | $14,991,372 | $25,871,853 |
Another Joy Foundation 1 Las Vegas, NV | $385,078 | $10,750 |
Health Current Phoenix, AZ | $23,747,319 | $33,338,747 |
Futuro Health Sacramento, CA | $110,017,184 | $860,894 |
Weave Inc Sacramento, CA | $13,914,949 | $13,834,479 |
California Housing Foundation Redlands, CA | $127,602,722 | $11,460,522 |
Medic Alert Foundation United States Inc Turlock, CA | $13,450,917 | $8,673,816 |