Hemophilia Federation Of America Inc

Organization Overview

Hemophilia Federation Of America Inc is located in Washington, DC. The organization was established in 2000. According to its NTEE Classification (E70) the organization is classified as: Public Health, under the broad grouping of Health Care and related organizations. As of 12/2021, Hemophilia Federation Of America Inc employed 39 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hemophilia Federation Of America Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Hemophilia Federation Of America Inc generated $5.5m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 8.2% each year. All expenses for the organization totaled $4.5m during the year ending 12/2021. While expenses have increased by 8.0% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

HEMOPHILIA FEDERATION OF AMERICA IS A NATIONAL NONPROFIT ORGANIZATION THAT ASSISTS, EDUCATES, AND ADVOCATES FOR THE BLEEDING DISORDERS COMMUNITY.

Describe the Organization's Program Activity:

Part 3 - Line 4a

OUTREACH - HELPS INDIVIDUALS WITH BLEEDING DISORDERS AND THEIR CAQREGIVERS LEARN HOW TO BECOME ADVOCATES ON THEOR OWN BEHALF THROPUGH IN-PERSON AND ONLINE TRAINING, TOOL KITS, AND WEV RESOURCES. EDUCATION AND TOOLS ARE PROBIDED TO PARTICIPATE IN MONITORING, LEARNING TO SELF-ADVOCATE, AND EDUCATING ABOUT FEDERALA ND STATE PUBLIC POLICIES THAT O,PACT THE LIVES OF PEOPLE LIVING WITH BLEEDIDNG DISORDERS. SOCIAL AND PRINT MEDIA ARE ACCTIVELY UTILIZED TO ELXTEND OUTREACH EFFORTS AND BRING COMMUNITY TOGETHERE. FOUR PROGRAMS ARE INCLUDED IN OUTREACH:BLOOD BROTHERHOOD, BLOOD SISTERHOOD, HFA FAMILIES,AND OUTREACH EDUCATION


HFA RESEARCH - A COMMUNITY CENTERED, COMMUNITY FOCUSED, AND COMMUNITY DRIVEN PROGRAM AIMED AT IMPROVING THE LIVES OF BLEEDING DISORDERS COMMUNITY MENBERS. RESEARCH TOPICS ARE IDENTIFIED BY THE COMMUNITY POPULATION AND FOCUSED ON PATIENT/COMMUNITY DATA. DATA ARE COLLECTED NATIONALLY ONLINE AS WELL AS LOCALLY THROUGH AFA'S 40-PLUS MEMBER ORGANIZATIONS ACROSS THE COUNTRY.


HELPING HANDS - DESIGNED TO ESTAABLISH A RAPID, NONINVASIVE SOURCE OF RELIEF FOR EMERGENCY SITUATIONS FOR INDIVIDUALS AND FAMILIES IN THE BLEEDING DISORDERS COMMUNITY. EACH APPLICATION IS GIVEN CAREFUL CONSIDERATION AS TO THE PERSONAL CIRCUMSTANCES, WHILE ENSURING A MINIMUM INVASION OF PRIVACY FOR COMMUNITY MEMBERS. THE PROGRAM ALSO ASSISTS INDIVIDUALS WITH THE COSTS OF MEDICALLY NECESSARY ITEMS AND DURABLE MEDICAL EQUIPMENT.


OUTREACH - HELPS INDIVIDUALS WITH BLEEDING DISORDERS AND THEIR CAQREGIVERS LEARN HOW TO BECOME ADVOCATES ON THEOR OWN BEHALF THROPUGH IN-PERSON AND ONLINE TRAINING, TOOL KITS, AND WEV RESOURCES. EDUCATION AND TOOLS ARE PROBIDED TO PARTICIPATE IN MONITORING, LEARNING TO SELF-ADVOCATE, AND EDUCATING ABOUT FEDERALA ND STATE PUBLIC POLICIES THAT O,PACT THE LIVES OF PEOPLE LIVING WITH BLEEDIDNG DISORDERS. SOCIAL AND PRINT MEDIA ARE ACCTIVELY UTILIZED TO ELXTEND OUTREACH EFFORTS AND BRING COMMUNITY TOGETHERE. FOUR PROGRAMS ARE INCLUDED IN OUTREACH:BLOOD BROTHERHOOD, BLOOD SISTERHOOD, HFA FAMILIES,AND OUTREACH EDUCATION


HFA RESEARCH - A COMMUNITY CENTERED, COMMUNITY FOCUSED, AND COMMUNITY DRIVEN PROGRAM AIMED AT IMPROVING THE LIVES OF BLEEDING DISORDERS COMMUNITY MENBERS. RESEARCH TOPICS ARE IDENTIFIED BY THE COMMUNITY POPULATION AND FOCUSED ON PATIENT/COMMUNITY DATA. DATA ARE COLLECTED NATIONALLY ONLINE AS WELL AS LOCALLY THROUGH AFA'S 40-PLUS MEMBER ORGANIZATIONS ACROSS THE COUNTRY.


HELPING HANDS - DESIGNED TO ESTAABLISH A RAPID, NONINVASIVE SOURCE OF RELIEF FOR EMERGENCY SITUATIONS FOR INDIVIDUALS AND FAMILIES IN THE BLEEDING DISORDERS COMMUNITY. EACH APPLICATION IS GIVEN CAREFUL CONSIDERATION AS TO THE PERSONAL CIRCUMSTANCES, WHILE ENSURING A MINIMUM INVASION OF PRIVACY FOR COMMUNITY MEMBERS. THE PROGRAM ALSO ASSISTS INDIVIDUALS WITH THE COSTS OF MEDICALLY NECESSARY ITEMS AND DURABLE MEDICAL EQUIPMENT.


Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.

Board, Officers & Key Employees

Name (title)Compensation
Sharon Meyers
Executive Director
$200,000
Mable Crescioni
Project Director
$122,125
Michelle Burg
Executive Dir.
$92,418
Lucas Runion
Treasurer
$0
Allison Ritcey
Chair
$0
Gillian Schultz
Secretary
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$43,784
Fundraising events$0
Related organizations$0
Government grants $0
All other contributions, gifts, grants, and similar amounts not included above$3,923,370
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$3,967,154
Total Program Service Revenue$848,545
Investment income $178,439
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $37,757
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $5,475,706

Grants Recieved

Over the last fiscal year, we have identified 4 grants that Hemophilia Federation Of America Inc has recieved totaling $159,248.

Awarding OrganizationAmount
Colburn-Keenan Foundation Inc

Enfield, CT

PURPOSE: SUPPORT ACTIVITIES THAT BENEFIT THE BLEEDING DISORDERS AND CHRONIC ILLNESS COMMUNITIE

$58,500
Hemophilia Alliance Foundation

Lansdale, PA

PURPOSE: PROMOTE HEMOPHILIA

$50,000
Hemophilia Alliance Group Purchasing Organization Inc

Lansdale, PA

PURPOSE: PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.

$50,000
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$748
View Grant Recipient Profile

Create an account to unlock the data you need.

or