Hemophilia Alliance Group Purchasing Organization Inc, operating under the name The Hemophilia Alliance, is located in Lansdale, PA. The organization was established in 2007. According to its NTEE Classification (G19) the organization is classified as: Support N.E.C., under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Hemophilia Alliance employed 9 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Hemophilia Alliance is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Hemophilia Alliance generated $7.5m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 9.8% each year. All expenses for the organization totaled $5.6m during the year ending 12/2021. While expenses have increased by 8.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Hemophilia Alliance has awarded 96 individual grants totaling $15,324,437. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE HEMOPHILIA ALLIANCE WORKS TO ENSURE MEMBER HEMOPHILIA TREATMENT CENTERS HAVE THE EXPERTISE, RESOURCES AND PUBLIC SUPPORT TO SUSTAIN THEIR INTEGRATED CLINICAL AND PHARMACY SERVICES FOR INDIVIDUALS WITH BLEEDING AND CLOTTING DISORDERS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO ACT AS A BROKER AND/OR PURCHASING AGENT FOR MEMBERS TO OBTAIN PURCHASING TERMS FOR BLOOD CLOTTING FACTOR AND OTHER MATERIALS USED TO TREAT INDIVIDUALS WITH HEMOPHILIA OR RELATED BLEEDING DISORDERS. COUNSELING CENTERS ON COMPLYING WITH STATE & FEDERAL LAW AND GRANT REQUIREMENTS, AIDING IN THE PRODUCTION OF EDUCATIONAL PIECES, PROMOTING THE VALUE OF THE COMPREHENSIVE CARE MODEL TO POLICY MAKERS, PATIENTS AND THIRD PARTY PAYERS.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Joseph N Pugliese President | Officer | 38 | $660,048 |
Sean Singh Vice President | Officer | 37 | $254,584 |
Jeffrey Blake Vice President | Officer | 37 | $253,665 |
Heidi Lane Chairman | OfficerTrustee | 2 | $0 |
Eric Gray CPA Vice Chair | OfficerTrustee | 2 | $0 |
Ralph Woods Secretary | OfficerTrustee | 2 | $0 |
Vendor Name (Service) | Service Year | Compensation |
---|---|---|
Karan Legal Group Professional Services | 12/30/21 | $210,687 |
Artemis Policy Group Professional Services | 12/30/21 | $168,653 |
Staq Pharma Drug Production | 12/30/21 | $229,440 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $518,982 |
Fundraising events | $0 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $0 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $518,982 |
Total Program Service Revenue | $6,971,556 |
Investment income | $1,833 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $7,535,975 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $2,442,000 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $1,865,543 |
Pension plan accruals and contributions | $157,030 |
Other employee benefits | $82,925 |
Payroll taxes | $112,318 |
Fees for services: Management | $0 |
Fees for services: Legal | $227,506 |
Fees for services: Accounting | $325 |
Fees for services: Lobbying | $84,000 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $436,259 |
Advertising and promotion | $0 |
Office expenses | $7,122 |
Information technology | $36,033 |
Royalties | $0 |
Occupancy | $0 |
Travel | $23,991 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $69,953 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $12,271 |
All other expenses | $11,061 |
Total functional expenses | $5,641,544 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $258,451 |
Savings and temporary cash investments | $7,569,484 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $0 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $7,827,935 |
Accounts payable and accrued expenses | $0 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $1,240,237 |
Total liabilities | $1,240,237 |
Net assets without donor restrictions | $6,587,698 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $7,827,935 |
Over the last fiscal year, Hemophilia Alliance Group Purchasing Organization Inc has awarded $2,441,000 in support to 8 organizations.
Grant Recipient | Amount |
---|---|
Lansdale, PA PURPOSE: SUPPORT FOR GRANTS AND OR GIFTS TO ORGANIZATIONS THAT ASSIST INDIVIDUALS IN MANAGING THEIR CARE OF BLEEDING AND CLOTTING DISORDERS. | $800,000 |
Rochester, NY PURPOSE: ENHANCED DATA MANAGEMENT WITHIN HEMOPHILIA TREATMENT CENTERS. | $700,000 |
New York, NY PURPOSE: PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. | $697,000 |
Albany, NY PURPOSE: PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. | $170,000 |
Washington, DC PURPOSE: PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. | $50,000 |
Baton Rouge, LA PURPOSE: PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS. | $10,000 |
Over the last fiscal year, we have identified 1 grants that Hemophilia Alliance Group Purchasing Organization Inc has recieved totaling $6,000.
Awarding Organization | Amount |
---|---|
Nationwide Childrens Hospital Columbus, OH PURPOSE: Hemophilia Education Symposium Sponsor | $6,000 |
Organization Name | Assets | Revenue |
---|---|---|
Upper Room Aids Ministry Inc Adult Day Health Care Center New York, NY | $12,030,689 | $18,432,738 |
American Board Of Surgery Philadelphia, PA | $21,861,493 | $12,534,091 |
Hemophilia Alliance Group Purchasing Organization Inc Lansdale, PA | $7,827,935 | $7,535,975 |
Unite For Her West Chester, PA | $2,837,331 | $3,562,552 |
Primary Care Services Meadville, PA | $221,457 | $2,059,942 |
Gi Quality Improvement Consortium Ltd Bethesda, MD | $4,563,310 | $2,690,271 |
Dragonfly Foundation Cincinnati, OH | $2,725,648 | $2,264,730 |
Stewarts Caring Place Fairlawn, OH | $5,098,464 | $1,361,993 |
Relapsing Polychondritis Awareness And Support Foundation New York, NY | $1,026,239 | $1,006,610 |
Corporate Angel Network Inc White Plains, NY | $5,017,571 | $1,458,856 |
Cancer Bridges Pittsburgh, PA | $5,131,335 | $886,281 |
Cancer Support Community Central Ohio Columbus, OH | $1,687,086 | $1,400,583 |