Scleroderma Research Foundation
- Assets
- $9.8m
- Revenue
- $3.8m
- Investments
- $0.0
- Employees
- 5
- Location
- San Francisco, CA
- Founding
- 03/1987
- Data as of
- 12/2021
- EIN
- 68-0087234
Organization Overview
Scleroderma Research Foundation is located in San Francisco, CA. The organization was established in 1987. As of 12/2021, Scleroderma Research Foundation employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Scleroderma Research Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Scleroderma Research Foundation generated $3.8m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 6.0% each year. All expenses for the organization totaled $3.7m during the year ending 12/2021. While expenses have increased by 5.6% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Scleroderma Research Foundation has awarded 81 individual grants totaling $10,754,567. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE SRF IS LASER-FOCUSED ON FINDING A CURE FOR SCLERODERMA BY RAISING CRITICAL FUNDS FOR RESEARCH INVESTMENTS, FOSTERING COLLABORATION AMONG THE WORLDS TOP SCIENTISTS AND INSTITUTIONS TO DRIVE INNOVATION, AND RAISING AWARENESS ABOUT THIS RARE DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE MISSION OF THE SCLERODERMA RESEARCH FOUNDATION IS TO FIND, FUND, AND FACILITATE THE MOST PROMISING RESEARCH TO CURE SCLERODERMA. WE RECRUIT THE BEST AND THE BRIGHTEST RESEARCHERS TO UNDERSTAND THE CAUSES, DISCOVER TREATMENTS, AND ULTIMATELY ERADICATE THIS DISEASE . AT THE SRF, RESEARCH IS AT THE CENTER OF ALL WE DO. THE SCLERODERMA RESEARCH FOUNDATION'S RESEARCH PROGRAM IS GOVERNED BY THE BOARD OF DIRECTORS AND FACILITATED BY A VOLUNTEER SCIENTIFIC ADVISORY BOARD COMPRISED OF HIGHLY REGARDED SCIENTISTS WHO ARE LEADERS IN THEIR FIELD OF EXPERTISE. THE BOARD OF DIRECTORS AND SCIENTIFIC ADVISORS MEET ANNUALLY WITH RESEARCHERS AND CLINICIANS FROM LABORATORIES ACROSS THE NATION TO SELECT AND FUND THE MOST PROMISING SCLERODERMA STUDIES AIMED AT DEVELOPING USEFUL THERAPIES TO HELP PATIENTS LIVE LONGER, FULLER LIVES - AND, ULTIMATELY, A CURE FOR SCLERODERMA.LED BY A SCIENTIFIC ADVISORY BOARD COMPRISED OF SOME OF THE MOST HIGHLY REGARDED SCIENTISTS IN THE NATION, THE SRFS RESEARCH PROGRAM ACTIVELY SEEKS OUT AND RECRUITS EXPERTS FROM THE FIELDS OF RHEUMATOLOGY, IMMUNOLOGY, GENETICS, AND FIBROSIS, AS WELL AS, EXPERTS IN CUTTING-EDGE TECHNOLOGIES TO JOIN THE SCLERODERMA RESEARCH COMMUNITY. WITH AN INTENSE FOCUS ON IDENTIFYING PROJECTS AND INVESTIGATORS LIKELY TO MOVE SCLERODERMA RESEARCH FORWARD, THE SRF FUNDS A DIVERSE PORTFOLIO OF PROJECTS LED BY TOP-TIER INVESTIGATORS.
MANY PATIENTS HEAR THE WORD SCLERODERMA FOR THE FIRST TIME WHEN THEY ARE DIAGNOSED.WE STRIVE TO RAISE AWARENESS AND PROVIDE EDUCATIONAL RESOURCES BECAUSE LACK OF AWARENESS ABOUT SCLERODERMA OFTEN CAUSES DELAYS IN TREATMENT OR MISDIAGNOSIS. AS AN INNOVATOR IN SCLERODERMA RESEARCH, THE SRF IS UNIQUELY QUALIFIED TO PROVIDE THOSE LIVING WITH THIS DISEASE, THE MEDICAL COMMUNITY, AND THE GENERAL PUBLIC WITH THE MOST UP-TO-DATE AND RELEVANT NEWS AND INFORMATION ABOUT COMPLICATIONS, TREATMENTS, AND RELATED RESEARCH.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Joanne Gold Executive Dir. | OfficerTrustee | 40 | $193,236 |
Cori Traub Dir. Philanthropy | 40 | $108,558 | |
Luke Evnin PHD Chairman | OfficerTrustee | 5 | $0 |
Bob Smith Treasurer | OfficerTrustee | 2 | $0 |
Deann Wright Secretary | OfficerTrustee | 2 | $0 |
Bob Saget Board Member | Trustee | 2 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Ravix Financial Inc Finance & Hr | 12/30/21 | $118,985 |
Browne Inc Dba Brownemusser Marketing & Outreach | 12/30/21 | $227,506 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $650,478 |
| Related organizations | $0 |
| Government grants | $64,759 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,834,407 |
| Noncash contributions included in lines 1a–1f | $156,312 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $3,549,644 |
| Total Program Service Revenue | $15,000 |
| Investment income | $411,284 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$206,959 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,768,969 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $2,178,391 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $75,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $224,407 |
| Compensation of current officers, directors, key employees. | $56,102 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $369,918 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $33,626 |
| Payroll taxes | $40,386 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $104,020 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $31,874 |
| Fees for services: Other | $159,797 |
| Advertising and promotion | $236,035 |
| Office expenses | $73,385 |
| Information technology | $59,650 |
| Royalties | $0 |
| Occupancy | $85,711 |
| Travel | $1,401 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $249 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $11,333 |
| Insurance | $2,120 |
| All other expenses | $0 |
| Total functional expenses | $3,687,303 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $538,650 |
| Savings and temporary cash investments | $174 |
| Pledges and grants receivable | $1,491,312 |
| Accounts receivable, net | $9,653 |
| Loans from Officers, Directors, or Controlling Persons | $11,000 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $28,972 |
| Net Land, buildings, and equipment | $62,976 |
| Investments—publicly traded securities | $7,676,732 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $9,819,469 |
| Accounts payable and accrued expenses | $167,129 |
| Grants payable | $179,696 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $346,825 |
| Net assets without donor restrictions | $7,232,642 |
| Net assets with donor restrictions | $2,240,002 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $9,819,469 |
Grants Awarded
Over the last fiscal year, Scleroderma Research Foundation has awarded $2,177,289 in support to 18 organizations.
| Grant Recipient | Amount |
|---|---|
Redwood City, CA PURPOSE: Research | $658,628 |
Baltimore, MD PURPOSE: Research | $381,336 |
Salt Lake City, UT PURPOSE: Research | $275,224 |
New Haven, CT PURPOSE: Research | $140,000 |
New York, NY PURPOSE: Research | $136,120 |
UNIV OF TX HEALTH SCIENCE CTR PURPOSE: Research | $118,612 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Scleroderma Research Foundation has recieved totaling $1,500.
| Awarding Organization | Amount |
|---|---|
John R & Beverly J Larson Foundation Onalaska, WI PURPOSE: HEALTH | $1,500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Infectious Disease Research Institute Seattle, WA | $13,563,097 | $13,342,560 |
University Medical Group Inc Portland, OR | $0 | $19,037,411 |
Seattle Institute For Biomedical And Clinical Research Seattle, WA | $15,332,692 | $17,750,569 |
Research Corporation Tucson, AZ | $242,008,144 | $26,138,153 |
Southwest Autism Research And Resource Center Phoenix, AZ | $18,925,029 | $16,667,407 |
Veterans Medical Research Foundation Of Sd San Diego, CA | $7,321,086 | $16,367,755 |
Conard House Inc San Francisco, CA | $5,907,710 | $14,988,369 |
Movember Foundation Santa Monica, CA | $31,257,231 | $18,583,289 |
Translational Genomics Research Institute Foundation Phoenix, AZ | $24,235,369 | $3,772,453 |
Steadman Philippon Research Institute Vail, CO | $14,955,351 | $15,214,073 |
Washington Research Foundation Seattle, WA | $325,923,396 | $51,887,435 |
The Mind Research Network Albuquerque, NM | $3,071,604 | $13,923,047 |