Cure Duchenne
- Assets
- $33.2m
- Revenue
- $5.4m
- Investments
- $0.0
- Employees
- 30
- Location
- Mission Viejo, CA
- Founding
- 03/2004
- Data as of
- 12/2021
- EIN
- 20-0299958
Organization Overview
Cure Duchenne is located in Mission Viejo, CA. The organization was established in 2004. According to its NTEE Classification (H50) the organization is classified as: Nerve, Muscle & Bone Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, Cure Duchenne employed 30 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Duchenne is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Cure Duchenne generated $5.4m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 16.2% each year . All expenses for the organization totaled $7.6m during the year ending 12/2021. While expenses have increased by 17.1% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Cure Duchenne has awarded 16 individual grants totaling $1,820,414. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. ALSO, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CURE DUCHENNE WAS ORGANIZED IN 2003 WITH THE MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Lianna Orlando Senior Director Of Research | Officer | 40 | $180,875 |
Joann Kemp Director Of Clinical Programs | Officer | 40 | $175,875 |
Christian Nelson Senior Director Of Philanthropy | Officer | 40 | $165,000 |
Kathlene Balisy Finance Director | Officer | 40 | $153,958 |
Debra Miller President & CEO | OfficerTrustee | 40 | $151,304 |
Paul Miller Secretary | OfficerTrustee | 10 | $0 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Anonymous Fundraising | 12/30/16 | $116,000 |
Rlm Finsbury Llc Marketing | 12/30/16 | $93,523 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $201,223 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,495,956 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,697,179 |
| Total Program Service Revenue | $0 |
| Investment income | $216,037 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $196,761 |
| Net Income from Fundraising Events | $1,934,118 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $5,442,219 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $394,830 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $950,137 |
| Compensation of current officers, directors, key employees. | $7,698 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,586,069 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $174,400 |
| Payroll taxes | $228,651 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $195,330 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $26,619 |
| Advertising and promotion | $446,840 |
| Office expenses | $158,386 |
| Information technology | $389,063 |
| Royalties | $0 |
| Occupancy | $175,298 |
| Travel | $97,527 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $51,252 |
| All other expenses | $87,842 |
| Total functional expenses | $7,605,386 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $13,432,108 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $19,555,425 |
| Intangible assets | $0 |
| Other assets | $167,379 |
| Total assets | $33,154,912 |
| Accounts payable and accrued expenses | $59,950 |
| Grants payable | $0 |
| Deferred revenue | $15,177 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $234,531 |
| Total liabilities | $309,658 |
| Net assets without donor restrictions | $32,845,254 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $33,154,912 |
Grants Awarded
Over the last fiscal year, Cure Duchenne has awarded $394,830 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
Somerville, MA PURPOSE: EDUCATION/ OUTREACH/ RESEARCH | $229,830 |
North Bethesda, MD PURPOSE: EDUCATION/ OUTREACH/ RESEARCH | $100,000 |
UNIVERSITY OF MISSOURI PURPOSE: EDUCATION/ OUTREACH/ RESEARCH | $50,000 |
Shrewsbury, MA PURPOSE: EDUCATION/ OUTREACH/ RESEARCH | $15,000 |
Grants Recieved
Over the last fiscal year, we have identified 24 grants that Cure Duchenne has recieved totaling $321,664.
| Awarding Organization | Amount |
|---|---|
Stanley E Hanson Foundation Laguna Hills, CA PURPOSE: GENERAL & UNRESTRICTED | $50,000 |
American Endowment Foundation Hudson, OH PURPOSE: MEDICAL RESEARCH | $50,000 |
Bilek Charitable Foundation Henderson, NV PURPOSE: TO HELP ACTIVITIES OF VAR PUBLIC CHAR INST WHICH ARE EXEMPT UNDER 501 (C)(3) | $32,000 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $24,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $21,749 |
Satellite Healthcare Inc San Jose, CA PURPOSE: GENERAL SUPPORT | $20,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Cure Duchenne Mission Viejo, CA | $33,154,912 | $5,442,219 |
Setting Scoliosis Straight Foundation El Cajon, CA | $6,149,373 | $2,209,853 |
Orthopaedic Education And Research Orange, CA | $340,397 | $1,887,033 |
Race To Erase Ms Los Angeles, CA | $3,284,707 | $1,461,355 |
Kerlan-Jobe Orthopaedic Foundation Encino, CA | $3,007,500 | $691,700 |
Cure Cmd Lakewood, CA | $883,165 | $587,488 |
International Neuromodulation Society San Francisco, CA | $2,410,063 | $628,946 |
Northern California Institute For Bone Health Inc Orinda, CA | $368,891 | $545,320 |
Als Cure Project Inc Pleasanton, CA | $178,157 | $158,344 |
Mann Medical Research Organization Sylmar, CA | $51,776,775 | $3,358,890 |
Kennedys Disease Association Coarsegold, CA | $581,584 | $293,954 |
Center For Neurosciences Foundation Tucson, AZ | $25,437 | $0 |