Force-Facing Our Risk Of Cancer Empowered

TO IMPROVE THE LIVES OF INDIVIDUALS AND FAMILIES FACING HEREDITARY CANCER.

PROJECT EXTRA: PROJECT EXTRA (EXPANDING XRAY THROUGH ALLIANCES) IS A PROJECT SUPPORTED BY A COOPERATIVE AGREEMENT THROUGH THE CENTERS FOR DISEASE CONTROL AND PREVENTION. THE GOAL IS TO IMPROVE BREAST CANCER SURVIVORS' ACCESS TO INFORMATION, RESOURCES AND SUPPORTIVE SERVICES AND ADDRESS HEALTH DISPARITIES. ACTIVITIES INCLUDE DEVELOPING CULTURALLY-TAILORED XRAY ARTICLES, PROVIDING XRAY ARTICLES AND RESOURCES INTO SPANISH, DEVELOPING STRATEGIES TO IMPROVE PATIENT-DOCTOR COMMUNICATION, TRAINING HEALTHCARE PROFESSIONALS AND COMMUNITY HEALTH WORKERS TO RECOGNIZE AND ADDRESS BARRIERS TO HEALTH LITERACY. THIS GRANT CONTINUES UNTIL SEPTEMBER 30, 2024.

GENERAL PROGRAM- $149,081PUBLIC POLICY- $178,107EDUCATION- $378,999RESEARCH- $150,153GENERAL PROGRAMS INCLUDES EXPENSES THAT SPAN ALL PROGRAMS INCLUDING SOFTWARE AND OTHER ITEMS THAT RUN OUR OVERALL PROGRAM DEPARTMENTS.PUBLIC POLICY: FORCE IS THE ONLY NATIONAL NONPROFIT ADVOCATING FOR THE UNIQUE NEEDS OF PEOPLE WITH OR AT INCREASED RISK OF HEREDITARY CANCERS. WE WORK WITH MEDICAL SOCIETIES AND GUIDELINE COMMITTEES TO ASSURE THAT SCREENING AND PREVENTION GUIDELINES ARE CREATED OR UPDATED TO REFLECT THE NEEDS OF THOSE AFFECTED BY HEREDITARY CANCER. FORCE HAS UNPARALLELED KNOWLEDGE OF INSURANCE COVERAGE AND ACCESS TO CARE AND STRIVED TO IMPROVE COVERAGE FOR THE HEREDITARY CANCER COMMUNITY. EDUCATION: FORCE'S EDUCATION PROGRAM INCLUDES THE XRAY REVIEW OF CANCER RESEARCH THAT PROVIDES RELIABLE INFORMATION ON CANCER RESEARCH AND RELATED TOPICS. WE LOOK BEHIND THE HEADLINES AND TRANSLATE THE SCIENCE INTO PLAIN LANGUAGE TO HELP PEOPLE MAKE INFORMED DECISIONS. WE ALSO HAVE AN EXPERT-REVIEWED DATABASE OF OVER 200 PAGES OF INFORMATION ON HEREDITARY CANCER. FORCE DISTRIBUTES THOUSANDS OF EDUCATIONAL BROCHURES TO HEALTHCARE PROVIDERS, HOSPITALS AND INDIVIDUALS EACH YEAR IN ENGLISH AND SPANISH. RESEARCH: OUR RESEARCH SEARCH AND ENROLL TOOL MATCHES PEOPLE WITH THE RESEARCH STUDIES FOR WHICE THEY QUALIFY. OUR TARGETED RESEARCH RECRUITMENT EFFORTS LINK PARTICIPANTS WHO ARE THE BACKBONE OF CLINICAL RESEARCH TO STUDIES ENROLLING PATIENTS. THESE EFFORTS ACCELERATE CRITICAL HEREDITARY CANCER RESEARCH TO IMPROVE OPTIONS AND HEALTH OUTCOMES FOR OUR COMMUNITY. THE FORCE RESEARCH ADVOCATE TRAINING PROGRAM IS AN ONLINE COURSE THAT PREPARES CONSUMERS TO ASSIST RESEARCHERS IN DESIGNING RELEVANT AND PATIENT-CENTERED RESEARCH STUDIES ON BEHALF OF THE HEREDITARY CANCER COMMUNITY. THE PROGRAM CONSISTS OF AN EXPERT-LED WEBINAR SERIES, SUPPLEMENTAL LEARNING, RESOURCES AND MORE.

AWARENESS: FORCE'S AWARENESS EFFORTS TOUCH THE LIVES OF INDIVIDUALS AND FAMILIES FACING HEREDITARY BREAST, COLORECTAL, ENDOMETRIAL, OVARIAN, PANCREATIC AND PROSTATE CANCER. IN 2022, THROUGH VARIOUS EFFORTS SUCH AS SOCIAL MEDIA (BOTH ORGANIC AND PAID), PUBLIC RELATIONS, PARTNER PROGRAMS, WORKING WITH HEALTHCARE PROFESSIONALS AND HEALTH INSTITUTIONS, AS WELL AS WORKING WITH INDIVIDUAL CONSTITUENTS TO SHARE THEIR PERSONAL STORIES, WE DROVE MORE THAN 470,768 VISITORS TO OUR WEBSITE. THESE PEOPLE VIEWED MORE THAN 1,135,505 WEBSITE PAGES TO LEARN ABOUT SPECIFIC GENE MUTATIONS THAT INCREASE CANCER RISK AND TO UNDERSTAND EXPERT GUIDELINES ON SCREENING, PREVENTION AND TREATMENT.(SEE CONTINUATION ON SCHEDULE O)WE HAD MORE THAN 2,000 ATTENDEES AT OUR VIRTUAL 2022 JOINING FORCES CONFERENCE AND RECORDINGS OF OUR CONFERENCE SESSIONS WERE VIEWED MORE THAN 1,500 TIMES, EXTENDING THE REACH OF THIS IMPORTANT CONTENT.

SUPPORT: VOLUNTEERS UNDERGO IN DEPTH TRAINING TO LEARN ABOUT HEREDITARY CANCER AND HOW TO EFFECTIVELY PROVIDE SUPPORT WITHOUT JUDGEMENT OR ADVICE. IN 2022, THE FOLLOWING SUPPORT PROGRAMS WERE AVAILABLE VIRTUALLY WITH THE ASSISTANCE OF 358 TRAINED VOLUNTEERS TO MEET THE UNIQUE NEEDS OF OUR COMMUNITY AND TO ENSURE CONSTITUENTS DO NOT FACE HEREDITARY CANCER ALONE DURING THE COVID PANDEMIC: 566 CONSTITUENTS WERE MATCHED TO A TRAINED VOLUNTEER WHO SHARES A SIMILAR EXPERIENCE FOR CONFIDENTIAL 1:1 PERSONALIZED SUPPORT AND A FREE EXPERT-REVIEWED RESOURCE GUIDE VIA OUR PEER NAVIGATION PROGRAM. (SEE CONTINUATION ON SCHEDULE O)172 VIRTUAL SUPPORT MEETINGS WERE HELD NATIONALLY ON ZOOM THROUGHOUT THE YEAR FOR OUR ENTIRE COMMUNITY AS WELL AS SPECIFIC MEETINGS FOR THE FOLLOWING COMMUNITIES (FORCE COMMUNITY, ASL, CAREGIVERS/PARENTS, SPANISH, LGBTQIA+, LYNCH SYNDROME, MEN, PEOPLE OF COLOR, PREVIVORS, SURVIVORS, YOUNG PREVIVORS, YOUNG SURVIVORS) WITH OVER 1,300 ATTENDEES.OVER 12,400 POSTS WERE SHARED ON OUR PRIVATE FORCE HEREDITARY CANCER COMMUNITY FACEBOOK GROUP AND OUR ONLINE MESSAGE BOARDS WITH PEERS. 172 HELPLINE CALLS CONNECTED INDIVIDUALS TO RESOURCES AND HEALTHCARE PROFESSIONALS.