Epilepsy Florida Inc
- Assets
- $1.7m
- Revenue
- $4.6m
- Investments
- $0.0
- Employees
- 56
- Location
- Miami, FL
- Founding
- 03/1972
- Data as of
- 06/2022
- EIN
- 59-2164525
Organization Overview
Epilepsy Florida Inc, operating under the name Epilepsy Alliance Florida, is located in Miami, FL. The organization was established in 1972. According to its NTEE Classification (H54) the organization is classified as: Epilepsy Research, under the broad grouping of Medical Research and related organizations. As of 06/2022, Epilepsy Alliance Florida employed 56 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Epilepsy Alliance Florida is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Epilepsy Alliance Florida generated $4.6m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 0.7% each year. All expenses for the organization totaled $4.4m during the year ending 06/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
EPILEPSY FLORIDA IS DEDICATED TO SUPPORTING THOSE IMPACTED BY EPILEPSY BY CONFRONTING THE SPECTRUM OF CHALLENGES CREATED BY SEIZURES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
DIRECT PATIENT SERVICES WERE PROVIDED IN 35 FLORIDA COUNTIES. SERVICES PROVIDED WERE CASE MANAGEMENT, SUPPORT GROUPS AND MEDICAL SERVICES WHICH INCLUDE INITIAL NEUROLOGICAL EVALUATIONS, FOLLOW-UP EXAMINATIONS, MEDICAL TREATMENT, BLOOD TEST, ELECTROENCEPHALOGRAMS AND OTHER DIAGNOSTIC TESTS AS REQUIRED ARE PROVIDED TO PERSONS WITH EPILEPSY (CHILDREN AND ADULTS) AND THEIR FAMILIES. THE ORGANIZATION HAS A VIRTUAL INTAKE AND CASE MANAGEMENT SYSTEM WHEREBY CLIENTS HAVE MORE IMMEDIATE ACCESS TO SERVICES AND CASE MANAGERS HAD REDUCED ADMINISTRATIVE TIME ALLOWING FOR MORE QUALITY CASE MANAGEMENT SERVICES.EFFECTIVE 89% OF EXPENDITURES GO DIRECTLY TO PROGRAM COSTS. EPILEPSY FLORIDA, INC. IMPACTED 8,635 INDIVIDUALS WITH ITS CASE MANAGEMENT, SUPPORT GROUP AND TRANSPORTATION SERVICES. 1,455 DIAGNOSTIC TESTS WERE UNDERWRITTEN BY THE ORGANIZATION. 536 PSYCHOLOGICAL SESSIONS WERE PROVIDED TO CLIENTS. MORE THAN 800 THOUSAND PEOPLE WERE EDUCATED THROUGH PRESENTATIONS, SPECIAL EVENTS, AWARENESS ACTIVITIES AND ONLINE AND SOCIAL MEDIA PLATFORMS. 2,739 SERVICE CALLS WERE RECEIVED FROM PATIENTS. 24 CAMP SCHOLARSHIPS WERE PROVIDED TO CHILDREN AND FAMILIES WITH EPILEPSY. EPILEPSY FLORIDA, INC. CONTINUES TO BE DEDICATED TO PROVIDING EDUCATION AT HEALTH FAIRS AND OTHER AWARENESS EVENTS INCLUDING PRESENTATIONS, EDUCATIONAL MEETINGS, SUPPORT GROUPS, PRESENCE AT COMMUNITY HEALTH FAIRS AND SIMILAR ACTIVITIES. AS AN AGENCY FEDERALLY FUNDED TO PROVIDE NAVIGATION ASSISTANCE FOR THE AFFORDABLE CARE ACT, EPILEPSY FLORIDA, INC. ASSISTED AND EDUCATED OVER 70,000 CONSUMERS AND REACHED OVER 43 MILLION VIA MEDIA COVERAGE OVER THE LIFE OF THE PROGRAM. 1,478 CONSUMERS WERE ASSISTED TO ENROLL IN A QUALIFIED HEALTH PLAN OR MEDICAID THROUGH THIS PROGRAM.
PREVENTION & EDUCATION SERVICES - COMPREHENSIVE PREVENTION AND EDUCATION SERVICES AND INFORMATION AND REFERRALS ARE PROVIDED IN ENGLISH, SPANISH AND CREOLE. THEY INCLUDE REGULAR PRESENTATIONS TO CORPORATIONS, PUBLIC SCHOOLS (BOTH TO PERSONNEL AND STUDENTS); PHYSICIANS, ATTORNEYS AND OTHER COMMUNITY PROFESSIONALS; POLICE, EMERGENCY MEDICAL SERVICES PERSONNEL, HEALTH CARE PROFESSIONALS, HEALTH AND SOCIAL SERVICE AGENCIES AND OTHER COMMUNITY BASED ORGANIZATIONS AND CHILD CARE PROVIDERS SUCH AS DAY CARE CENTERS. FEDERALLY FUNDED NAVIGATION SERVICES AND EDUCATION WERE PROVIDED TO CONSUMERS THROUGHOUT SOUTH FLORIDA.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Karen Basha Egozi President & CEO | Officer | 40 | $193,694 |
Monica Rodriguez CFO & COO | 40 | $122,318 | |
Patricia Dean Immediate Past Chair | OfficerTrustee | 3 | $10,000 |
Nicholas X Duran Chair | OfficerTrustee | 6 | $0 |
Beth Alcalde Vice Chair | OfficerTrustee | 3 | $0 |
Adam Adache Secretary | OfficerTrustee | 3 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $365,342 |
| Related organizations | $0 |
| Government grants | $3,116,510 |
| All other contributions, gifts, grants, and similar amounts not included above | $785,978 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $4,267,830 |
| Total Program Service Revenue | $11,022 |
| Investment income | $996 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $4,644,061 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $205,948 |
| Compensation of current officers, directors, key employees. | $25,744 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,969,897 |
| Pension plan accruals and contributions | $44,553 |
| Other employee benefits | $144,940 |
| Payroll taxes | $181,697 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $921,341 |
| Advertising and promotion | $70,191 |
| Office expenses | $89,275 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $140,577 |
| Travel | $37,813 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $22,310 |
| Insurance | $32,483 |
| All other expenses | $81,653 |
| Total functional expenses | $4,367,096 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $645,144 |
| Savings and temporary cash investments | $500,478 |
| Pledges and grants receivable | $525,603 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $6,418 |
| Net Land, buildings, and equipment | $15,318 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $13,044 |
| Total assets | $1,706,005 |
| Accounts payable and accrued expenses | $182,678 |
| Grants payable | $0 |
| Deferred revenue | $112,067 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $294,745 |
| Net assets without donor restrictions | $1,377,946 |
| Net assets with donor restrictions | $33,314 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,706,005 |
Grants Recieved
Over the last fiscal year, we have identified 9 grants that Epilepsy Florida Inc has recieved totaling $107,019.
| Awarding Organization | Amount |
|---|---|
United Way Miami Inc Miami, FL PURPOSE: GENERAL FUNDS | $70,819 |
United Way Of Palm Beach County Inc West Palm Beach, FL PURPOSE: Allocations to Agencies and Community Impact | $20,000 |
United Way Of West Florida Inc Pensacola, FL PURPOSE: DESIGNATION/ALLOC | $6,250 |
Levitetz Family Foundation Inc Boca Raton, FL PURPOSE: GENERAL PURPOSE | $5,000 |
Garner Foundation Inc Miami, FL PURPOSE: GENERAL SUPPORT | $2,500 |
Pledge Good Foundation Inc Austin, TX PURPOSE: GENERAL OPERATING PURPOSE | $1,000 |
Endowment Analysis
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Rheumatology Research Foundation Atlanta, GA | $70,647,398 | $7,906,919 |
Research Triangle Foundation Of North Carolina Research Triangle Park, NC | $210,917,305 | $40,089,804 |
Diabetes Research Institute Foundation Inc Hollywood, FL | $35,361,806 | $13,874,959 |
Memphis Bioworks Foundation Memphis, TN | $6,047,652 | $238,794 |
Foundation For Atlanta Veterans Education And Research Inc Decatur, GA | $10,222,891 | $13,848,947 |
Johnston-Lee-Harnett Community Action Incorporated Smithfield, NC | $2,342,060 | $13,580,773 |
Empowerment Resource Center Inc Atlanta, GA | $7,163,867 | $11,556,811 |
American College Of Endocrinology Inc Jacksonville, FL | $6,652,790 | $7,508,958 |
Cure Childhood Cancer Inc Atlanta, GA | $4,112,651 | $8,053,096 |
International Society On Thrombosis And Haemostasis Inc Carrboro, NC | $25,182,348 | $9,872,487 |
Roskamp Institute Inc Sarasota, FL | $9,416,640 | $7,403,056 |
Dolphins Cycling Challenge Inc Miami Gardens, FL | $2,087,830 | $8,010,731 |