Chordoma Foundation
- Assets
- $11.0m
- Revenue
- $7.4m
- Investments
- $0.0
- Employees
- 12
- Location
- Durham, NC
- Founding
- 10/2007
- Data as of
- 12/2023
- EIN
- 20-8423943
Organization Overview
Chordoma Foundation is located in Durham, NC. The organization was established in 2007. According to its NTEE Classification (H30) the organization is classified as: Cancer Research, under the broad grouping of Medical Research and related organizations. As of 12/2023, Chordoma Foundation employed 12 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Chordoma Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Chordoma Foundation generated $7.4m in total revenue. This organization has experienced exceptional growth, as over the past 9 years, it has increased revenue by an average of 16.3% each year . All expenses for the organization totaled $4.6m during the year ending 12/2023. While expenses have increased by 13.7% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Chordoma Foundation has awarded 74 individual grants totaling $9,623,394. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
(RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, WE CONDUCTED, SUPPORTED AND ENABLED HIGH-IMPACT RESEARCH SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE. THIS INCLUDED CARRYING OUT PRECLINICAL STUDIES IN OUR LABORATORY, AWARDING RESEARCH GRANTS TO ACADEMIC INVESTIGATORS, OPERATING REPOSITORIES TO SUPPLY THE RESEARCH COMMUNITY WITH KEY RESEARCH-ENABLING RESOURCES, CONVENING SCIENTIFIC MEETINGS, AND FACILITATING THE DESIGN AND INITIATION OF WELL-JUSTIFIED CLINICAL TRIALS.
(PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, WE HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES AND PROVIDING FINANCIAL ASSISTANCE TO INDIVIDUALS TRAVELING TO PARTICIPATE IN CLINICAL TRIALS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Daniel Freed Head Of Targ | Officer | 40 | $183,188 |
Kenny Brighton Head Of Phil | Officer | 40 | $164,800 |
Josh Sommer Exec. Dir. & | OfficerTrustee | 50 | $148,892 |
Sara Nick Head Of Enga | 40 | $123,299 | |
Tammy Silverthorne Director Of | 40 | $106,717 | |
Shannon Lozinsky Director Of | 40 | $102,804 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $7,189,579 |
| Noncash contributions included in lines 1a–1f | $4,175,241 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $7,189,579 |
| Total Program Service Revenue | $0 |
| Investment income | $218,994 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $11,567 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $7,442,618 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,559,497 |
| Grants and other assistance to domestic individuals. | $97,730 |
| Grants and other assistance to Foreign Orgs/Individuals | $349,875 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $531,307 |
| Compensation of current officers, directors, key employees. | $22,338 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $812,035 |
| Pension plan accruals and contributions | $15,162 |
| Other employee benefits | $85,082 |
| Payroll taxes | $93,337 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $103,969 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $10,096 |
| Fees for services: Other | $60,732 |
| Advertising and promotion | $24,488 |
| Office expenses | $39,721 |
| Information technology | $178,530 |
| Royalties | $0 |
| Occupancy | $15,818 |
| Travel | $96,846 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $52,167 |
| Insurance | $25,475 |
| All other expenses | $0 |
| Total functional expenses | $4,597,074 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $3,639,340 |
| Savings and temporary cash investments | $6,083,749 |
| Pledges and grants receivable | $1,064,570 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $15,041 |
| Net Land, buildings, and equipment | $145,151 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $90,061 |
| Total assets | $11,037,912 |
| Accounts payable and accrued expenses | $510,650 |
| Grants payable | $1,319,374 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $1,830,024 |
| Net assets without donor restrictions | $4,158,191 |
| Net assets with donor restrictions | $5,049,697 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $11,037,912 |
Grants Awarded
Over the last fiscal year, Chordoma Foundation has awarded $1,436,008 in support to 8 organizations.
| Grant Recipient | Amount |
|---|---|
CANCER RESEARCH INSTITUTE PURPOSE: RESEARCH GRANT | $100,000 |
CHILDREN'S HOSPITAL OF PHILADELPHIACHOP PURPOSE: RESEARCH GRANT | $50,691 |
MASSACHUSETTS GEN HOSPITAL PURPOSE: RESEARCH GRANT | $25,000 |
START PURPOSE: RESEARCH GRANT | $264,276 |
UNIVERSITY OF NC AT CHAPEL HILL PURPOSE: RESEARCH GRANT | $28,385 |
UNIVERSITY OF TEXAS MD ANDERSON CAN PURPOSE: RESEARCH GRANT | $365,847 |