Glioblastoma Foundation Inc is located in Durham, NC. The organization was established in 2016. According to its NTEE Classification (H30) the organization is classified as: Cancer Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, Glioblastoma Foundation Inc employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Glioblastoma Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Glioblastoma Foundation Inc generated $1.3m in total revenue. All expenses for the organization totaled $703.4k during the year ending 12/2021. While expenses have increased by 99.9% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2019, Glioblastoma Foundation Inc has awarded 11 individual grants totaling $187,000. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO TRANSFORM THE STANDARD OF CARE FOR GLIOBASTOMA BY SUPPORTING THE DEVELOPMENT OF TARGETED THERAPIES THAT WORK FOR ALL GLIOBLASTOMA PATIENTS. TO ALSO SUPPORT AWARENESS AND EDUCATION EFFORTS FOR GLIOBLASTOMA AS WELL AS PROVIDING PATIENT RESOURCES FOR INDIVIDUALS DIAGNOSED WITH GLIOBLASTOMA.
Describe the Organization's Program Activity:
Part 3 - Line 4a
OVER THE PAST FIVE YEARS SINCE ITS INCEPTION, THE GLIOBLASTOMA FOUNDATION HAS PROVIDED FUNDING FOR SEVERAL NEW DRUGS AND OTHER INNOVATIVE THERAPIES TO EXTEND SURVIVAL AN IMPROVE PATIENT QUALITY OF LIFE FOR THOSE IMPACTED BY GLIOBLASTOMA. THE GLIOBLASTOMA FOUNDATION IS THE ONE AND ONLY NATIONAL NON PROFIT COMMITTED TO FUNDING NEW, MORE EFFECTIVE THERAPIES FOR GLIOBLASTOMA THAT WILL WORK FOR ALL PATIENTS. OVER ITS HISTORY, THE GLIOBLASTOMA FOUNDATION HAS FUNDED TRIALS FOR THE FOLLOWING DRUGS FOR GLIOBLASTOMA INCLUDING MEBENDAZOLE AT JOHNS HOPKINS UNIVERSITY AND HSP-90 INHIBITOR DRUGS AT OHIO STATE UNIVERSITY.ONE OF THE GLIOBLASTOMA FOUNDATION'S KEYNOTE INITIATIVES IS THE OSIMERTINIB TRIAL. THE DRUG OSIMERTINIB HAS BEEN SHOWN TO BE EFFECTIVE AT EXTENDING LIFE FOR A SUBSTANTIAL SUBSET OF GLIOBLASTOMA PATIENTS. THE GLIOBLASTOMA FOUNDATION HAS WORKED TO MAKE THIS DRUG AVAILABLE FOR ALL GLIOBLASTOMA PATIENTS AND IS CURRENTLY FUNDING A MULTI-CENTER, NATIONAL CLINICAL TRIAL TO GET THIS DRUG APPROVED FOR GLIOBLASTOMA PATIENTS. STUDY SITES FUNDED BY THE GLIOBLASTOMA FOUNDATION INCLUDE UNIVERSITY OF PENNSYLVANIA, WAKE FOREST UNIVERSITY, JOHNS HOPKINS UNIVERSITY, AND OTHERS.THE GLIOBLASTOMA FOUNDATION IS THE NATIONAL LEADER IN FUNDING NEW THERAPIES THAT WILL TRANSFORM GLIOBLASTOMA FROM TERMINAL TO TREATABLE.IN ADDITION TO PROVIDING FUNDING FOR THE OSIMERTINIB TRIAL, THE GLIOBLASTOMA FOUNDATION IS ALSO FUNDING THE ADVANCEMENT OF NEUROSURGICAL TECHNIQUES TO IMPROVE PATIENT SURVIVAL FOR INOPERABLE GLIOBLASTOMAS. OUR STUDY TO IMPROVE SURGICAL TECHNIQUES FOR BRAINSTEM GLIOBLASTOMA WILL RESULT IN PROLONGED SURVIVAL FOR PATIENTS WITH THIS DEADLY TYPE OF GLIOBLASTOMA. SINCE ITS INCEPTION IN 2016, THE GLIOBLASTOMA FOUNDATION HAS PLACED A STRONG FOCUS ON IMPROVING NEUROSURGICAL TECHNIQUES FOR GLIOBLASTOMA. AS PART OF OUR MULTI-PROLONGED, ONE-OF-A KIND NEUROSURGERY RESEARCH AWARD NAMED AFTER THE LATE RUSH DRUMMER NEIL PEART, WE ARE FUNDING NEUROSURGERY RESEARCH AT SEVERAL LEADING RESEARCH CENTERS AROUND THE COUNTRY INCLUDING THE UNIVERSITY OF PITTSBURGH.BY LEVERAGING ITS SCIENTIFIC EXPERTISE AND LEADERSHIP, THE GLIOBLASTOMA FOUNDATION IS UNIQUELY POSITIONED TO IDENTIFY THE BEST NEW THERAPIES WITH THE GREATEST LIKELIHOOD OF SUCCESS FOR IMPROVING PATIENT SURVIVAL AND ULTIMATELY LEADING TO A CURE FOR THIS DEADLY DISEASE.THE GLIOBLASTOMA FOUNDATION IS A TRUSTED SOURCE OF INFORMATION FOR PATIENTS AND FAMILIES IMPACTED BY GLIOBLASTOMA. THROUGH ITS NATIONALLY RECOGNIZED PATIENT SUPPORT PROGRAMS THE GLIOBLASTOMA FOUNDATION PROVIDES IMPORTANT RESOURCES FOR PATIENTS DIAGNOSED WITH GLIOBLASTOMA, INCLUDING CLINICAL TRIALS MATCHING LED BY A CLINICAL STAFF OF PHYSICIANS, RESEARCHERS, AND PHARMACISTS. THE GLIOBLASTOMA FOUNDATION ALSO LEVERAGES ITS SCIENTIFIC AND CLINICAL RESOURCES TO CONNECT PATIENTS WITH SECOND OPINIONS AT LEADING MEDICAL CENTERS ACROSS THE NATION. THE GLIOBLASTOMA FOUNDATION PUBLISHES AND PERIODICALLY UPDATES CLINICAL RESOURCES FOR PATIENTS AND CAREGIVERS THAT HAVE COME TO BE A TRUSTED SOURCE OF INFORMATION FOR THOSE BATTLING GLIOBLASTOMA.GLIOBLASTOMA IS A RARE, DEADLY GRADE 4 BRAIN TUMOR THAT IS TERMINAL 95% OF THE TIME. THE GLIOBLASTOMA FOUNDATION HAS WORKED TO ENSURE THAT EVERYONE KNOWS WHAT A SERIOUS CONDITION GLIOBLASTOMA IS. THROUGH ITS LONG-STANDING NATIONAL PARTNERSHIP WITH THE LOS ANGELES MARATHON, THE GLIOBLASTOMA FOUNDATION HAS HELPED RAISE AWARENESS OF GLIOBLASTOMA. THE GLIOBLASTOMA FOUNDATION ALSO RAISES AWARENESS THROUGH ANNUAL KEYNOTE EVENTS LIKE OUR "GLIOBLASTOMA AWARENESS GALA" HELD EACH YEAR IN WASHINGTON, DC AND OUR "GET UP FOR GLIOBLASTOMA" HALF MARATHON HELD EACH MAY.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Gita Kwatra Pharmd MBA CEO | OfficerTrustee | 40 | $180,000 |
Madan Kwatra PHD Secretary/treasurer | OfficerTrustee | 4 | $0 |
Neelam Kwatra MA President | OfficerTrustee | 4 | $0 |
Paula Trzepacz MD Advisory Board Member | Trustee | 2 | $0 |
Erin O'reilly PHD Advisory Board Member | Trustee | 2 | $0 |
Sallie E Krewer Advisory Board Member | Trustee | 2 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $0 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $1,302,093 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $1,302,093 |
Total Program Service Revenue | $0 |
Investment income | $9,185 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | -$57,704 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $1,253,574 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $127,000 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $180,000 |
Compensation of current officers, directors, key employees. | $9,000 |
Compensation to disqualified persons | $25,777 |
Other salaries and wages | $0 |
Pension plan accruals and contributions | $10,800 |
Other employee benefits | $7,538 |
Payroll taxes | $13,436 |
Fees for services: Management | $0 |
Fees for services: Legal | $108,549 |
Fees for services: Accounting | $3,180 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $10,359 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $0 |
Advertising and promotion | $119,080 |
Office expenses | $32,304 |
Information technology | $18,852 |
Royalties | $0 |
Occupancy | $13,817 |
Travel | $18,837 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $5,686 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $336 |
Insurance | $0 |
All other expenses | $7,800 |
Total functional expenses | $703,351 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $0 |
Savings and temporary cash investments | $698,213 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $0 |
Net Land, buildings, and equipment | $4,954 |
Investments—publicly traded securities | $0 |
Investments—other securities | $820,769 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $1,523,936 |
Accounts payable and accrued expenses | $0 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $0 |
Net assets without donor restrictions | $1,523,936 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $1,523,936 |
Over the last fiscal year, Glioblastoma Foundation Inc has awarded $112,000 in support to 4 organizations.
Grant Recipient | Amount |
---|---|
New York, NY PURPOSE: GLIOBLASTOMA RESEARCH | $50,000 |
Baltimore, MD PURPOSE: GLIOBLASTOMA RESEARCH | $30,000 |
Durham, NC PURPOSE: GLIOBLASTMA RESEREACH | $25,000 |
THE UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER PURPOSE: GLIOBLASTOMA RESEARCH | $7,000 |
Over the last fiscal year, we have identified 1 grants that Glioblastoma Foundation Inc has recieved totaling $250.
Awarding Organization | Amount |
---|---|
Wolf & Company Charitable Foundation Inc Boston, MA PURPOSE: EXEMPT PURPOSE | $250 |
Organization Name | Assets | Revenue |
---|---|---|
American Institute For Cancer Research Arlington, VA | $18,214,497 | $14,242,691 |
Prevent Cancer Foundation Alexandria, VA | $19,123,889 | $9,204,793 |
Chordoma Foundation Durham, NC | $6,529,695 | $3,085,754 |
Reelin For Research Inc Greensboro, NC | $638,760 | $704,128 |
Scott Hamilton Cares Foundation Inc Franklin, TN | $1,663,491 | $1,390,768 |
Glioblastoma Foundation Inc Durham, NC | $1,523,936 | $1,253,574 |
Chance For Life Alexandria, VA | $1,211,933 | $982,944 |
Society For Translational Oncology Inc Durham, NC | $1,367,988 | $1,176,418 |
Friends For An Earlier Breast Cancer Test Inc Greensboro, NC | $239,976 | $461,731 |
The Brassica Foundation For Chemopr Otection Research Inc Mclean, VA | $239,523 | $198,133 |
She Rocks Inc Wilmington, NC | $54,964 | $219,948 |
Rare Cancer Research Foundation Durham, NC | $1,051,579 | $1,072,853 |