Solve Me Cfs Initiative Inc
- Assets
- $4.0m
- Revenue
- $5.5m
- Investments
- $35.9k
- Employees
- 20
- Location
- Glendale, CA
- Founding
- 07/1991
- Data as of
- 06/2022
- EIN
- 56-1683450
Organization Overview
Solve Me Cfs Initiative Inc is located in Glendale, CA. The organization was established in 1991. According to its NTEE Classification (A33) the organization is classified as: Printing & Publishing, under the broad grouping of Arts, Culture & Humanities and related organizations. As of 06/2022, Solve ME Cfs Initiative Inc employed 20 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Solve ME Cfs Initiative Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Solve ME Cfs Initiative Inc generated $5.5m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 21.9% each year . All expenses for the organization totaled $3.5m during the year ending 06/2022. While expenses have increased by 11.2% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2019, Solve ME Cfs Initiative Inc has awarded 22 individual grants totaling $562,636. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
THE SOLVE ME/CFS INITIATIVE SMCIIS THE LEADING ORGANIZATION FOCUSED ON MYALGIC ENCEPHALOMYELITIS ME/CHRONIC FATIGUE SYNDROME CFS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
REASEARCH PROGRAMS - IN DECEMBER 2020 THE ORGANIZATION LAUNCHED THE YOU ME REGISTRY AND BIOBANK, AN OPEN-SOURCED RESEARCH TOOL IT DEVELOPED THAT IS DESIGNED TO HELP ADVANCE THE RESEARCH AND DEVELOPMENT OF DIAGNOSTICS AND TREATMENTS FOR ME/CFS. THE ORGANIZATION PROVIDED CURATED RESEARCH UPDATES BY EMAIL TO APPROXIMATELY 28,000 CONSTITUENTS AND CONTINUED TO EXPAND THE YOU ME REGISTRY CREATING THE WORLDS LARGEST LONGITUDINAL ME/CFS AND LONG COVID DATABASE, WITH NEARLY 5,000 PARTICIPANTS ENROLLED. THE PARTICIPANTS CONTRIBUTED 2.4 MILLION DATAPOINTS, PROVIDING A ROBUST RESOURCE FOR RESEARCHERS SEARCHING FOR DIAGNOSTICS AND TREATMENTS. THE ORGANIZATION ALSO PROVIDES SCIENTIFIC RESEARCH GRANTS FOR SCIENTISTS AND DOCTORS TO FIND CAUSES AND WAYS TO TREAT AND CURE POST INFECTION DISEASES LIKE ME/CFS AND LONG COVID. DURING 2022, THE ORGANIZATION AWARDED RAMSAY RESEARCH GRANTS TO 7 SCIENTISTS AT ORGANIZATIONS IN THE US, AUSTRALIA, THE UK AND CANADA, SELECTED THROUGH A BLINDED PEER REVIEW PROCESS.
ADVOCACY AND COMMUNICATION. THE ORGANIZATION WORKS WITH THE US CONGRESS TO INCREASE FUNDING FOR ME/CFS RESEARCH BY THE NATIONAL INSTITUTE OF HEALTH NIH, CENTER FOR DISEASE CONTROL CDC AND THE DEPARTMENT OF DEFENSE. DURING THE YEAR ENDED JUNE 30, 2022, 325 ADVOCATES PARTICIPATED IN 250 VIRTUAL MEETINGS WITH MEMBERS OF CONGRESS AND THEIR STAFF AND 2,969 MESSAGES WERE SENT IN SUPPORT OF OUR REQUESTS. IN ADDITION, THE ORGANIZATION CO-AUTHORED AND PUBLISHED THE CRITICAL WHITEPAPER LONG COVID IMPACT ON ADULT AMERICANS EARLY INDICATORS ESTIMATING PREVALENCE AND COST, PUBLISHED BY THE MILKEN INSTITUTE REVIEW. THIS REPORT WAS THE ONLY PAPER AT THE TIME WITH STATE-BASED DATA, ENABLING ADVOCATES TO EDUCATE MEMBERS OF CONGRESS ABOUT THE IMPACT OF LONG COVID AND HOW MUCH ECONOMIC COST THEIR STATE WAS FACING. THE ORGANIZATION ALSO PARTNERED WITH GLOBAL INTERDEPENDENCE CENTER ON A YEAR LONG WEBINAR AND CONFERENCE SERIES EXPLORING THE PANDEMICS LONG TERM HEALTHCARE, POLICY, AND ECONOMIC IMPACT, EDUCATING HUNDREDS OF PARTICIPANTS FROM VARIOUS SECTORS OF THE HEALTH-CARE AND FINANCIAL FIELDS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Oved Amitay President CEO | OfficerTrustee | 40 | $202,800 |
Maryellen Gleason Director Of Development | Officer | 40 | $135,061 |
Emily Taylor Director Of Advocacy And Community Relations | 40 | $112,044 | |
Sadie Whittaker Chief Scientific Officer | 40 | $100,481 | |
John Nicols Chair | OfficerTrustee | 5 | $0 |
Rick Sprout Secretary | OfficerTrustee | 4 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $5,519,863 |
| Noncash contributions included in lines 1a–1f | $9,960 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $5,519,863 |
| Total Program Service Revenue | $0 |
| Investment income | $620 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $5,520,483 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $63,419 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $94,137 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $283,193 |
| Compensation of current officers, directors, key employees. | $67,682 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $806,806 |
| Pension plan accruals and contributions | $34,038 |
| Other employee benefits | $35,962 |
| Payroll taxes | $81,049 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $11,990 |
| Fees for services: Lobbying | $142,020 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $770,057 |
| Advertising and promotion | $19,358 |
| Office expenses | $120,520 |
| Information technology | $189,447 |
| Royalties | $0 |
| Occupancy | $52,923 |
| Travel | $60,443 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $216 |
| Insurance | $67,176 |
| All other expenses | $0 |
| Total functional expenses | $3,466,562 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $3,663,852 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $194,013 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $56,377 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $35,897 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $3,950,139 |
| Accounts payable and accrued expenses | $430,039 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $430,039 |
| Net assets without donor restrictions | $3,426,070 |
| Net assets with donor restrictions | $94,030 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,950,139 |
Grants Awarded
Over the last fiscal year, Solve Me Cfs Initiative Inc has awarded $63,419 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
GLOBAL INTERDEPENDENCE CENTER PURPOSE: RESEARCH PROGRAM SERIES LONG COVID - RESEARCH, POLICY, AND ECONOMIC IMPACT | $25,000 |
YALE UNIVERSTIY PURPOSE: DISCOVERY OF PATHOLOGICAL AUTOANTIBODIES IN ME/CFS AND POST-ACUTE SEQUELAE OF SARS-COV-2 INFECTION | $22,500 |
JOHN HOPKINS UNIVERSITY PURPOSE: ANAYSIS OF REDOX HOMEOSTASIS REGULATED BY THE GASOTRANSMITTER HYDROGEN SULFIDE IN MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME THE PROJECT | $15,919 |