Amyotrophic Lateral Sclerosis Association
- Assets
- $1.8m
- Revenue
- $2.5m
- Investments
- $0.0
- Employees
- 14
- Location
- Chicago, IL
- Founding
- 07/1990
- Data as of
- 01/2024
- EIN
- 54-2126575
Organization Overview
Amyotrophic Lateral Sclerosis Association is located in Chicago, IL. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2024, Amyotrophic Lateral Sclerosis Association employed 14 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Amyotrophic Lateral Sclerosis Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 01/2024, Amyotrophic Lateral Sclerosis Association generated $2.5m in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 3.9% each year. All expenses for the organization totaled $2.3m during the year ending 01/2024. While expenses have increased by 3.7% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2024
Describe the Organization's Mission:
Part 3 - Line 1
TO FIND A CURE FOR ALS, PROVIDE PERSONS LIVING WITH ALS AND FAMILIES SUPPORT AND ADVOCATE ON BEHALF OF THE ALS COMMUNITY
Describe the Organization's Program Activity:
Part 3 - Line 4a
LEADS THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE LIVING WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Christine Churchill-Burke Director | Trustee | 5 | $0 |
Jim Fitzgibbons Director | Trustee | 5 | $0 |
Katherine Jemsek Treasurer | Trustee | 5 | $0 |
Tobin Kucharski Vice Chair | OfficerTrustee | 5 | $0 |
Scott Nichols Director | Trustee | 5 | $0 |
Patti Stockwell Secretary | OfficerTrustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $736,553 |
| Noncash contributions included in lines 1a–1f | $71,025 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $736,553 |
| Total Program Service Revenue | $1,532,850 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,477,653 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $115,169 |
| Compensation of current officers, directors, key employees. | $14,396 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $735,038 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $55,646 |
| Payroll taxes | $62,362 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $79,125 |
| Fees for services: Accounting | $16,023 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $3,000 |
| Advertising and promotion | $0 |
| Office expenses | $105,461 |
| Information technology | $86,645 |
| Royalties | $0 |
| Occupancy | $15,444 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $41,920 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $92,169 |
| Insurance | $13,030 |
| All other expenses | $179,559 |
| Total functional expenses | $2,291,725 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,543,477 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $24,001 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $188,121 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,755,599 |
| Accounts payable and accrued expenses | $35,713 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $35,713 |
| Net assets without donor restrictions | $1,719,886 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,755,599 |