Les Turner Amyotrophic Lateral Sclerosis Foundation
- Assets
- $3.3m
- Revenue
- $3.1m
- Investments
- $0.0
- Employees
- 21
- Location
- Skokie, IL
- Founding
- 05/1977
- Data as of
- 12/2021
- EIN
- 36-2916466
Organization Overview
Les Turner Amyotrophic Lateral Sclerosis Foundation is located in Skokie, IL. The organization was established in 1977. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Les Turner Amyotrophic Lateral Sclerosis Foundation employed 21 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Les Turner Amyotrophic Lateral Sclerosis Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Les Turner Amyotrophic Lateral Sclerosis Foundation generated $3.1m in total revenue. The organization has seen a slow decline revenue. Over the past 7 years, revenues have fallen by an average of (1.5%) each year. All expenses for the organization totaled $3.1m during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (5.6%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Les Turner Amyotrophic Lateral Sclerosis Foundation has awarded 28 individual grants totaling $11,445,678. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO FIND A CURE FOR ALS, PROVIDE PATIENT AND FAMILY SUPPORT AND INCREASE PUBLIC AWARENESS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE FOUNDATION CURRENTLY MAKES GRANTS TO THE LES TURNER ALS CENTER AT NORTHWESTERN MEDICINE FOR ALS RESEARCH, THE LOIS INSOLIA ALS CLINIC AND OTHER ALS EDUCATIONAL AND SCIENTIFIC ACTIVITIES. IN ADDITION, THE FOUNDATION PROVIDES PERSONALIZED SUPORT VISITS, SUPORT GROUPS, ACCESS TO EQUIPMENT AND OTHER PROGRAM SERVICES TO PEOPLE WITH ALS AND THEIR FAMILIES. THE FOUNDATION OFFERS EXTENSIVE EDCATIONAL RESOURCES TO PEOPLE WITH ALS AND THEIR FAMILIES ACROSS THE COUNTRY AND INCREASES PUBLIC AWARENESS OF THE DISEASE THROUGH EDUCATIONAL PROGRAMS AND INITIATIVES.
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Andrea Pauls Backman Chief Executive Officer | Officer | 40 | $194,780 |
Steve Schapiro Director Of Development | 40 | $106,500 | |
Lauren Webb Dir. Of Support Services | 40 | $101,841 | |
Thomas F Boleky Vice Chair | OfficerTrustee | 2 | $0 |
Joel A Schechter Vice Chair | OfficerTrustee | 2 | $0 |
Harvey Gaffen Chair Emeritus | OfficerTrustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $1,315,318 |
| Related organizations | $0 |
| Government grants | $625,252 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,740,301 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $3,680,871 |
| Total Program Service Revenue | $0 |
| Investment income | $7,644 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $145 |
| Net Income from Fundraising Events | -$599,837 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $3,120,220 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,481,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $200,831 |
| Compensation of current officers, directors, key employees. | $54,061 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $799,929 |
| Pension plan accruals and contributions | $12,168 |
| Other employee benefits | $67,723 |
| Payroll taxes | $69,035 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $53,105 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $3,009 |
| Office expenses | $77,326 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $63,271 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $14,790 |
| Interest | $6,188 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $19,500 |
| Insurance | $15,990 |
| All other expenses | $9,549 |
| Total functional expenses | $3,082,990 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $2,601,966 |
| Pledges and grants receivable | $269,407 |
| Accounts receivable, net | $267,789 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $69,443 |
| Net Land, buildings, and equipment | $29,532 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $90,407 |
| Other assets | $7,254 |
| Total assets | $3,335,798 |
| Accounts payable and accrued expenses | $52,457 |
| Grants payable | $986,983 |
| Deferred revenue | $5,000 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $1,044,440 |
| Net assets without donor restrictions | $1,922,927 |
| Net assets with donor restrictions | $368,431 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,335,798 |
Grants Awarded
Over the last fiscal year, Les Turner Amyotrophic Lateral Sclerosis Foundation has awarded $1,481,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINE PURPOSE: ENDOWMENT FOR ALS RESEARCH AND PATIENT CENTER | $600,000 |
NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINE PURPOSE: RESEARCH TO FIND A CURE | $581,000 |
LOIS INSOLIA ALS CLINIC PURPOSE: CLINIC FOR THE THERAPY OF ALS PATIENTS | $300,000 |
Grants Recieved
Over the last fiscal year, we have identified 15 grants that Les Turner Amyotrophic Lateral Sclerosis Foundation has recieved totaling $241,186.
| Awarding Organization | Amount |
|---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $73,185 |
Circle Of Service Foundation Chicago, IL PURPOSE: MEDICAL RESEARCH | $60,000 |
Simon Family Foundation Glencoe, IL PURPOSE: EXEMPT PURPOSE OF ORGANIZATION | $25,000 |
Goldman Sachs Philanthropy Fund New York, NY PURPOSE: MEDICAL / PUBLIC SERVICES | $24,500 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $22,749 |
Ayco Charitable Foundation Cohoes, NY PURPOSE: MEDICAL / PUBLIC SERVICES | $12,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Broadscope Disability Services Inc Greenfield, WI | $1,648,437 | $3,909,521 |
Les Turner Amyotrophic Lateral Sclerosis Foundation Skokie, IL | $3,335,798 | $3,120,220 |
Amyotrophic Lateral Sclerosis Association Saint Louis, MO | $5,164,940 | $2,624,591 |
Amyotrophic Lateral Sclerosis Association Chicago, IL | $1,432,497 | $1,950,829 |
Arthroscopy Association Of North America Education Foundation Rosemont, IL | $16,543,377 | $879,762 |
American Academy For Cerebral Palsy And Development Medicine Milwaukee, WI | $3,159,683 | $1,129,067 |
Amyotrophic Lateral Sclerosis Indianapolis, IN | $1,575,757 | $819,713 |
International Skeletal Society Inc East Dundee, IL | $2,558,382 | $607,034 |
United States Bone And Joint Initiative Nfp Lombard, IL | $878,567 | $405,146 |
American Orthopedic Foundation Des Plaines, IL | $595,127 | $183,503 |
Ibew-855 Muncie Electrical Joint Muncie, IN | $625,951 | $656,874 |
Western Trauma Association Batavia, IL | $496,493 | $321,471 |