Amyotrophic Lateral Sclerosis, operating under the name The Als Association Indiana Chapter, is located in Indianapolis, IN. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2022, Als Association Indiana Chapter employed 7 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Als Association Indiana Chapter is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 01/2022, Als Association Indiana Chapter generated $819.7k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 1.7% each year. All expenses for the organization totaled $647.4k during the year ending 01/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
INDIANA CHAPTER OF THE ALS ASSOCIATION (ALSA), A NATIONAL NOT-FOR-PROFIT ORGANIZATION, PROVIDING SERVICES TO PATIENTS WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND THEIR FAMILIES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
ALS CLINICS AND CERTIFIED CENTER SUPPORT: TO SUPPORT THE HIGHEST QUALITY HEALTHCARE FOR PEOPLE WITH ALS, THE ORGANIZATION PARTNERS WITH AND FINANCIALLY SUPPORTS COMMUNITY HEALTHCARE PROVIDERS IN OFFERING ALS MULTIDISCIPLINARY CLINICS. THESE CLINICS ARE EVIDENCE-BASED MODELS THAT PROMOTE COORDINATED CARE FOR PEOPLE WITH ALS. THESE CLINICS ARE HELD AT ONE OF THE ALS ASSOCIATION CERTIFIED CENTERS OF EXCELLENCE AT IU NEUROSCIENCE CENTER, RECOGNIZED ALS CENTER AT RICHARD L. ROUDEBUSH VA MEDICAL CENTER, AS WELL AS THE NEWLY ESTABLISHED ALS CLINIC AT PARKVIEW NEUROSCIENCE CENTER. THE CHAPTER HAS ASSISTED WITH LICENSED SOCIAL WORK STAFFING, TELEHEALTH, NUTRITION CHART, SUPPLIES AND FINICAL COMMITMENT. DURING THE YEAR ENDED JANUARY 31, 2022, THE CHAPTER SUPPORTED OVER 1000 CLINIC APPOINTMENTS FOR FAMILIES WITH ALS AND OVER 200 TELEHEALTH APPOINTMENTS.
EDUCATION & SUPPORT PROGRAMS: STRATEGICALLY BASED IN AND NEAR PATIENT'S HOME COMMUNITIES, CARE SERVICE COORDINATORS WORK DIRECTLY WITH PEOPLE WITH ALS AND THEIR FAMILIES TO HELP THEM NAVIGATE MANAGEMENT OF ALS AS WELL AS ACCESS COMMUNITY RESOURCES. IN FISCAL YEAR END JANUARY 31, 2022 CARE SERVICE COORDINATORS SERVED OVER 500 PATIENTS PROVIDING 3,000 HOURS OF SOCIAL WORK. COORDINATORS ARE OFTEN THE CRUCIAL SUPPORT PEOPLE NEED WITH GUIDANCE ON FINANCE, EMPLOYMENT ISSUES, INSURANCE QUESTIONS, SOCIAL SECURITY DISABILITY, MEDICARE, MEDICAID AND LONG TERM CARE PLANNING. COORDINATORS TRANSITIONED TO VIRTUAL MONTHLY SUPPORT GROUPS ACROSS THE REGION WITH 250 ATTENDEES. CARE SERVICES STAFF ALSO PROVIDED PROFESSIONAL EDUCATION FOR COMMUNITY PARTNERS SUCH AS HOSPICE, HOME HEALTH AND HOME CARE AGENCIES TO INCREASE THEIR KNOWLEDGE OF ALS. THE CHAPTER HAS A VERY EXTENSIVE LENDING PROGRAM. WE RECOGNIZE THE IMPORTANCE OF PROPER EQUIPMENT AND ASSISTIVE DEVICES IN MAINTAINING SAFETY, INDEPENDENCE AND IN MAXIMIZING PATIENT'S FUNCTIONALITY AND MINIMIZING FINANCIAL COST ASSOCIATED WITH ALS. THE EQUIPMENT LOAN CLOSET PROGRAM PROVIDES ACCESS TO THE NEEDED MEDICAL EQUIPMENT EITHER AS A BRIDGE WHILE AWAITING INSURANCE APPROVAL OR TO THOSE PATIENTS WITH NO INSURANCE COVERAGE FOR THE EQUIPMENT BEING REQUESTED. THE SUCCESS OF THIS PROGRAM IS DUE TO THE GENEROSITY OF OUR SUPPORTERS AND VENDORS WHO DONATE EQUIPMENT AND TO THE FUNDS RAISED THROUGH OUR WALK TO DEFEAT ALS PROGRAMS WHICH ALLOW US TO PURCHASE NEW ITEMS, REPAIR/REPLACE EXISTING ITEMS, AND ENSURES PROPER MAINTENANCE TO THE VARIOUS DME ITEMS IN THE LOAN CLOSET. DURING THE YEAR ENDED JANUARY 31, 2022, THE CHAPTER LOANED 170 PIECES OF EQUIPMENT TO 120 PATIENTS. PATIENT FINANCIAL GRANT PROGRAMS SUPPORTED PATIENTS FOR BATHROOM ITEMS, AND MEDICAL COPAYS. THE CHAPTER ALSO FUNDED MEDICAL COPAYMENTS FOR POWER WHEELCHAIRS.
AWARENESS EVENTS: EVENTS SPONSORED BY THE CHAPTER INCLUDE THE WALK TO DEFEAT ALS, BOB KRAVITZ GOLF OUTING, CRUISIN' FOR A CURE CAR SHOW, ALS RESEARCH UPDATE, MAY ALS AWARENESS MONTH, AND MISSION CONNECTED SOCIAL MEDIA. NOVEMBER NATIONAL CAREGIVERS' MONTH ACTIVITIES SERVED AS OPPORTUNITIES TO BRING HOPE AND COMMUNITY TO PEOPLE WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER AT AWARENESS EVENTS, PEOPLE WITH ALS AND THEIR FAMILIES, AS WELL AS THOSE WHO HAVE LOST A LOVED ONE TO ALS, FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. MORE THAN 5,000 PEOPLE PARTICIPATE IN THESE EFFORTS TO RAISE THE PROFILE OF THE CHAPTER AND ENGAGE COMMUNITY AWARENESS OF THE SERVICES AND RESOURCES AVAILABLE FROM THE INDIANA CHAPTER.
OUTREACH & ADVOCACY: AS ONE OF 39 CHAPTERS AFFILIATED WITH THE NATIONAL ALS ASSOCIATION, THE INDIANA CHAPTER PROVIDES ONGOING FINANCIAL SUPPORT FOR THE NATIONAL ALS ASSOCIATION TO SUPPORT FEDERAL PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF FAMILIES LIVING WITH ALS, OUTREACH EFFORTS TO RAISE PUBLIC AWARENESS ABOUT ALS, AS WELL AS GLOBAL RESEARCH WORKING TOWARDS TREATMENTS AND A CURE FOR ALS. PUBLICPOLICY ACCOMPLISHMENTS DURING THE YEAR ENDED JANUARY 31, 2022 INCLUDED VIRTUAL DELEGATION OF PEOPLE WITH ALS TO WASHINGTON D.C. TO ADVOCATE FOR SOCIAL SECURITY AND DISABILITY WAIVER, THE NATIONAL ALS REGISTRY, THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE, AND PROMOTING FEDERAL SUPPORT FOR ALS RESEARCH.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Tina Kaetzel Executive Director | Officer | 40 | $92,100 |
Trent Mcbride President | OfficerTrustee | 10 | $0 |
Mona Euler Vice Chair | OfficerTrustee | 2 | $0 |
Manuel Ortiz Smith Treasurer | OfficerTrustee | 10 | $0 |
Molly Cain Secretary | OfficerTrustee | 2 | $0 |
Derek French Director | Trustee | 2 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $69,516 |
Related organizations | $0 |
Government grants | $54,827 |
All other contributions, gifts, grants, and similar amounts not included above | $425,465 |
Noncash contributions included in lines 1a–1f | $2,500 |
Total Revenue from Contributions, Gifts, Grants & Similar | $549,808 |
Total Program Service Revenue | $0 |
Investment income | $33,611 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $52,470 |
Net Income from Fundraising Events | $183,251 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $819,713 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $35,424 |
Grants and other assistance to domestic individuals. | $38,697 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $91,361 |
Compensation of current officers, directors, key employees. | $7,674 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $196,871 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $3,835 |
Payroll taxes | $23,128 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $9,424 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $1,733 |
Fees for services: Other | $9,334 |
Advertising and promotion | $558 |
Office expenses | $36,813 |
Information technology | $20,860 |
Royalties | $0 |
Occupancy | $37,391 |
Travel | $5,244 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $0 |
Payments to affiliates | $110,583 |
Depreciation, depletion, and amortization | $22,250 |
Insurance | $1,595 |
All other expenses | $0 |
Total functional expenses | $647,442 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $199,610 |
Savings and temporary cash investments | $140,486 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $2,000 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $1,671 |
Prepaid expenses and deferred charges | $1,702 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $1,200,515 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $29,773 |
Total assets | $1,575,757 |
Accounts payable and accrued expenses | $35,282 |
Grants payable | $0 |
Deferred revenue | $2,202 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $37,484 |
Net assets without donor restrictions | $1,463,273 |
Net assets with donor restrictions | $75,000 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $1,575,757 |
Over the last fiscal year, Amyotrophic Lateral Sclerosis has awarded $35,250 in support to 2 organizations.
Grant Recipient | Amount |
---|---|
IU NEUROSCIENCE CENTERALS MULTIDISCIPLINARY CLINIC PURPOSE: CLINIC SUPPORT | $25,000 |
Arlington, VA PURPOSE: RESEARCH | $10,250 |
Over the last fiscal year, we have identified 7 grants that Amyotrophic Lateral Sclerosis has recieved totaling $59,649.
Awarding Organization | Amount |
---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $19,600 |
Central Indiana Community Foundation Inc Indianapolis, IN PURPOSE: To Be Used at the Organization's Discretion | $15,000 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $11,319 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $6,750 |
United Way Of Central Indiana Inc Indianapolis, IN PURPOSE: Donor Choice | $5,575 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $1,000 |
Organization Name | Assets | Revenue |
---|---|---|
Muscular Dystrophy Association Chicago, IL | $71,915,435 | $63,707,273 |
Broadscope Disability Services Inc Greenfield, WI | $1,648,437 | $3,909,521 |
Les Turner Amyotrophic Lateral Sclerosis Foundation Skokie, IL | $3,335,798 | $3,120,220 |
Amyotrophic Lateral Sclerosis Association Saint Louis, MO | $5,164,940 | $2,624,591 |
Amyotrophic Lateral Sclerosis Association Chicago, IL | $1,432,497 | $1,950,829 |
Arthroscopy Association Of North America Education Foundation Rosemont, IL | $16,543,377 | $879,762 |
American Academy For Cerebral Palsy And Development Medicine Milwaukee, WI | $3,159,683 | $1,129,067 |
Amyotrophic Lateral Sclerosis Indianapolis, IN | $1,575,757 | $819,713 |
International Skeletal Society Inc East Dundee, IL | $2,558,382 | $607,034 |
United States Bone And Joint Initiative Nfp Lombard, IL | $878,567 | $405,146 |
American Orthopedic Foundation Des Plaines, IL | $595,127 | $183,503 |
Ibew-855 Muncie Electrical Joint Muncie, IN | $625,951 | $656,874 |