Cystic Fibrosis Research Institute
- Assets
- $3.7m
- Revenue
- $2.2m
- Investments
- $0.0
- Employees
- 9
- Location
- Palo Alto, CA
- Founding
- 12/1975
- Data as of
- 12/2023
- EIN
- 51-0169988
Organization Overview
Cystic Fibrosis Research Institute is located in Palo Alto, CA. The organization was established in 1975. As of 12/2023, Cystic Fibrosis Research Institute employed 9 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cystic Fibrosis Research Institute is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Cystic Fibrosis Research Institute generated $2.2m in total revenue. This represents relatively stable growth, over the past 9 years the organization has increased revenue by an average of 5.6% each year. All expenses for the organization totaled $1.6m during the year ending 12/2023. While expenses have increased by 5.7% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Cystic Fibrosis Research Institute has awarded 63 individual grants totaling $4,253,629. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO FUND CYSTIC FIBROSIS RESEARCH, PROVIDE EDUCATION AND PERSONAL SUPPORT, AND TO SPREAD AWARENESS OF CYSTIC FIBROSIS, A LIFE THREATENING GENETIC DISEASE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO FUND CYSTIC FIBROSIS RESEARCH, PROVIDE EDUCATION AND PERSONAL SUPPORT, AND TO SPREAD AWARENESS OF CYSTIC FIBROSIS, A LIFE THREATENING GENETIC DISEASE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Francine Bion Board Member | Trustee | 1 | $0 |
Zoe Davies Board Secretary | OfficerTrustee | 1 | $0 |
Julie Desch Board Member | Trustee | 1 | $0 |
Colleen Dunn Board Member | Trustee | 1 | $0 |
Oscar A Flamenco Board Treasurer | OfficerTrustee | 1 | $0 |
Elyse Elconin Goldberg Board Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $101,387 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,957,523 |
| Noncash contributions included in lines 1a–1f | $27,359 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,058,910 |
| Total Program Service Revenue | $15,045 |
| Investment income | $81,091 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$4,644 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,150,402 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $611,672 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $111,488 |
| Compensation of current officers, directors, key employees. | $7,596 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $244,699 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $43,505 |
| Payroll taxes | $25,722 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $76,258 |
| Advertising and promotion | $0 |
| Office expenses | $61,658 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $71,032 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $253,271 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $945 |
| Insurance | $5,790 |
| All other expenses | $0 |
| Total functional expenses | $1,617,754 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $2,292,412 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $160,000 |
| Accounts receivable, net | $217 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $21,388 |
| Net Land, buildings, and equipment | $2,026 |
| Investments—publicly traded securities | $1,246,655 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $5,143 |
| Total assets | $3,727,841 |
| Accounts payable and accrued expenses | $19,808 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $19,808 |
| Net assets without donor restrictions | $2,373,804 |
| Net assets with donor restrictions | $1,334,229 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,727,841 |
Grants Awarded
Over the last fiscal year, Cystic Fibrosis Research Institute has awarded $610,000 in support to 9 organizations.
| Grant Recipient | Amount |
|---|---|
THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY PURPOSE: NEW HORIZONS RESEARCH PROJECT, TARGETING IRBIT | $70,000 |
UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL PURPOSE: NEW HORIZON RESEARCH PROJECT | $70,000 |
THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY PURPOSE: ELIZABETH NASH MEMORIAL POST-DOCTORAL FELLOWSHIP PROGRAM | $65,000 |
THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY PURPOSE: ELIZABETH NASH MEMORIAL POST-DOCTORAL FELLOWSHIP PROGRAM | $65,000 |
THE BOARD OF TRUSTEES OF THE LELAND STANFORD JR UNIVERSITY PURPOSE: NEW HORIZONS RESEARCH, IMPROVING CF AIRWAY MUCOCILIARY CLEARANCE | $70,000 |
YALE UNIVERSITY SCHOOL OF MEDICINE PURPOSE: NEW HORIZONS RESEARCH, ELUCIDATING THE ION TRANSPORT FUNCTIONS OF CFTR IGH EXPRESSER CELLS | $70,000 |