Organic Acidemia Association Corporation
- Assets
- $620.9k
- Revenue
- $96.8k
- Investments
- $0.0
- Employees
- 0
- Location
- Golden Valley, MN
- Founding
- 10/1991
- Data as of
- 12/2023
- EIN
- 48-1038050
Organization Overview
Organic Acidemia Association Corporation is located in Golden Valley, MN. The organization was established in 1991. According to its NTEE Classification (Z99) the organization is classified as: Unknown, under the broad grouping of Unknown and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Organic Acidemia Association Corporation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Organic Acidemia Association Corporation generated $96.8k in total revenue. This organization has experienced exceptional growth, as over the past 9 years, it has increased revenue by an average of 16.6% each year . All expenses for the organization totaled $164.3k during the year ending 12/2023. While expenses have increased by 21.1% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE INFORMATION AND SUPPORT TO PARENTS AND PROFESSIONALS DEALING WITH A SET OF INBORN ERRORS OF METABOLISM DISEASES KNOWN AS ORGANIC ACIDEMIA.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PUBLISHES A NEWSLETTER THREE TIMES A YEAR TO PROVIDE INFORMATION TO PARENTS AND HEALTH PROFESSIONALS ON UPDATES, EDITORIALS, AND LETTERS FROM AND FOR AFFECTED FAMILIES. MONITORS PRIVATE/PUBLIC FACEBOOK GROUP WITH OTHER SOCIAL MEDIA PRESENCE ON TWITTER, INSTAGRAM AND LINKEDIN.AWARDED $50,000 RESEARCH GRANT TO NATIONAL INSTITUTE OF HEALTHAWARDED $25,000 RESEARCH GRANT TO OXFORD UNIVERSITYSPEAKER ON RARE DISEASE DAY AT COA THERAPEUTICS IN SAN FRANCISCO, CA FEBRUARY 2023PARTICIPATED IN RARE DISEASE DAY AT THE UNIVERSITY OF MINNESOTA MARCH 2, 2023OAA IS HOSTING A WEBINAR ON ABLE ACCOUNTS MARCH 2023REPRESENTED OAA AT SIMD CONFERENCE IN SALT LAKE CITY MARCH 2023HOST ZOOM WEBINAR - OAA FAMILY CHAT - DONATE LIFE MONTH - APRIL 2023REPRESENTED OAA AT ABBOTT CONFERENCE IN SAN ANTONIO, TX MAY 2023HOSTED ZOOM WEBINAR - OAA DIETITIAN CHAT - JUNE 2023SOCIAL MEDIA CAMPAIGNS CREATED BY UNIVERSITY OF MINNESOTA STUDENTS IN COLLABORATION WITH OAA FALL 2023
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kathy Stagni Executive Dir. | OfficerTrustee | 32 | $45,000 |
Menta Pitre Director | Trustee | 2 | $0 |
Cay Welch Director | Trustee | 1 | $0 |
Jana Monaco Board Liason | Trustee | 5 | $0 |
Karen Dalton Finance Directo | OfficerTrustee | 5 | $0 |
Erin Maclean Director | Trustee | 10 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $90,784 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $90,784 |
| Total Program Service Revenue | $382 |
| Investment income | $16,927 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$10,415 |
| Net Income from Fundraising Events | -$875 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $96,803 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $75,000 |
| Grants and other assistance to domestic individuals. | $600 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $45,000 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $4,900 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $2,800 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $4,190 |
| Advertising and promotion | $0 |
| Office expenses | $1,445 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $3,567 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $4,287 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $855 |
| All other expenses | $2,295 |
| Total functional expenses | $164,297 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | -$2,156 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $623,092 |
| Total assets | $620,936 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $12 |
| Total liabilities | $12 |
| Net assets without donor restrictions | $615,808 |
| Net assets with donor restrictions | $5,116 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $620,936 |
Grants Awarded
Over the last fiscal year, Organic Acidemia Association Corporation has awarded $75,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
NATIONAL INSTITUTE OF HEALTH | | | $50,000 |
OXFORD UNIVERSITY | | | $25,000 |