The Ryr-1 Foundation
- Assets
- $2.4m
- Revenue
- $600.5k
- Investments
- $0.0
- Employees
- 5
- Location
- Pittsburgh, PA
- Founding
- 01/2017
- Data as of
- 12/2023
- EIN
- 47-1094057
Organization Overview
The Ryr-1 Foundation is located in Pittsburgh, PA. The organization was established in 2017. According to its NTEE Classification (H99) the organization is classified as: Medical Research N.E.C., under the broad grouping of Medical Research and related organizations. As of 12/2023, Ryr-1 Foundation employed 5 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Ryr-1 Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Ryr-1 Foundation generated $600.5k in total revenue. This organization has experienced exceptional growth, as over the past 9 years, it has increased revenue by an average of 12.4% each year . All expenses for the organization totaled $354.0k during the year ending 12/2023. While expenses have increased by 19.0% per year over the past 9 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Ryr-1 Foundation has awarded 37 individual grants totaling $645,674. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF THE RYR-1 FOUNDATION IS TO SUPPORT RESEARCH LEADING TO AN EFFECTIVE TREATMENT OR A CURE FOR RYR-1-RELATED DISEASES THROUGH SUPPORTING RESEARCH, PHYSICIAN EDUCATION, AND PATIENT & FAMILY SUPPORT AND ADVOCACY.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH GRANTS - THE FOUNDATION MAKES GRANTS TO RESEARCHERS INTERESTED IN RYR-1-RELATED DISEASES (RYR-1-RD). AS THE ONLY ORGANIZATION SOLELY DEDICATED TO RYR-1-RD, WE PROMOTE RESEARCH IN THIS AREA.
SCIENTIFIC ADVISORY BOARD - THE SCIENTIFC ADVISORY BOARD IS A GROUP OF THE WORLD'S LEADING AUTHORITIES IN RYR-1 RELATED DISEASES. THE SAB DETERMINES THE RESEARCH PRIORITIES OF THE RYR-1 FOUNDATION.
RESEARCH WORKSHOP - THE PATIENT-LED INTERNATIONAL RESEARCH WORKSHOP IS DEVOTED EXCLUSIVELY TO RYR-1-RELATED DISEASES. THIS WORKSHOP PROVIDE A MUCH-NEEDED FORUM FOR THE LEADING INTERNATIONAL RYR-1-RD EXPERTS AND A GROUP OF AFFECTED INDIVIDUALS TO SHARE KNOWLEDGE, EXCHANGE IDEAS, FORM COLLABORATIONS, AND DEVELOP NEW STRATEGIES FOR FINDING THERAPIES. THE WORKSHOP ORGANIZING COMMITTEE INCLUDES A DIVERSE GROUP OF RESEARCHERS/CLINICIANS IN RYR-1-RD, MEMBERS OF THE RYR-1 FOUNDATION'S SAB, AND RYR-1-RD COMMUNITY REPRESENTATIVES.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Michael Goldberg Board President | OfficerTrustee | 5 | $0 |
Morton Goldberg Board Vice President | OfficerTrustee | 5 | $0 |
Andrew Huseth Secretary | OfficerTrustee | 3 | $0 |
Randolph Pepper Treasurer | OfficerTrustee | 5 | $0 |
Michael Legum Assistant Treasurer | OfficerTrustee | 3 | $0 |
Myrna Goldberg Director, Retired As Of August 2023 | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $522,621 |
| Noncash contributions included in lines 1a–1f | $5,000 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $522,621 |
| Total Program Service Revenue | $0 |
| Investment income | $71,970 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $600,451 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $18,863 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $152,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $102,202 |
| Pension plan accruals and contributions | $2,749 |
| Other employee benefits | $0 |
| Payroll taxes | $8,836 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $2,963 |
| Fees for services: Accounting | $12,010 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $382 |
| Advertising and promotion | $2,745 |
| Office expenses | $5,216 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $2,442 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $13,166 |
| All other expenses | $9,716 |
| Total functional expenses | $354,036 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $335,965 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $6,500 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $2,030,529 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,372,994 |
| Accounts payable and accrued expenses | $706 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $4,408 |
| Total liabilities | $5,114 |
| Net assets without donor restrictions | $1,845,636 |
| Net assets with donor restrictions | $522,244 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,372,994 |
Grants Awarded
Over the last fiscal year, The Ryr-1 Foundation has awarded $57,397 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
THE REGENTS OF THE UNIVERSITY OF MINNESOTA PURPOSE: RESEARCH | $24,997 |
UNIVERSITY OF ROCHESTER PURPOSE: RESEARCH | $10,000 |
INGENIOUS TARGETING LABORATORY PURPOSE: RESEARCH | $9,900 |
NATIONAL INSTITUTE OF NURSING RESEARCH PURPOSE: RESEARCH | $12,500 |