Fabry Support & Information Group
- Assets
- $805.0k
- Revenue
- $680.5k
- Investments
- $0.0
- Employees
- 7
- Location
- Concordia, MO
- Founding
- 10/2000
- Data as of
- 12/2022
- EIN
- 43-1890134
Organization Overview
Fabry Support & Information Group, operating under the name Fsig, is located in Concordia, MO. The organization was established in 2000. According to its NTEE Classification (G20) the organization is classified as: Birth Defects & Genetic Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, Fsig employed 7 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Fsig is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Fsig generated $680.5k in total revenue. This organization has experienced exceptional growth, as over the past 8 years, it has increased revenue by an average of 12.2% each year . All expenses for the organization totaled $504.8k during the year ending 12/2022. While expenses have increased by 7.6% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
OUR MISSION IS TO PROVIDE INFORMATION, ADVOCACY, EDUCATION, AND COMPASSIONATE SUPPORT TO IMPROVE THE QUALITY OF LIFE AND CARE FOR THOSE INDIVIDUALS SUFFERING WITH FABRY.
Describe the Organization's Program Activity:
Part 3 - Line 4a
PATIENT MEETINGS-SINCE FABRY PATIENTS HAVE A HARD TIME WITH TRAVEL, FSIG TAKES OUR MEETINGS TO THEM IN CITIES NEAR THEM. WE PROVIDE THEM WITH UP TO DATE INFORMATION FROM MEDICAL AND INDUSTRY PROFESSIONALS. THIS ALSO GIVES PATIENTS AN OPPORTUNITY TO TALK TO OTHER FABRY PATIENTS WHO ARE FACING THE SAME DAY-TO-DAY CHALLENGES AS THEY ARE. IN 2022, WE REACHED APPROXIMATELY 199 PATIENTS/FAMILY MEMBERS VIRTUALLY.
WEBSITE DEVELOPMENT - PROVIDE A FORUM FOR FABRY PATIENTS TO MAKE CONTACT AND HELP SUPPORT ONE ANOTHER.
FEFC REGISTRATION FEE - REGISTRATION FEE CHARGED TO ATTEND 2022 FSIG EXPERT FABRY CONFERENCE. APPX. 67 ATTENDEES IN LIVE VENUE AND 25 OVER VIRTUAL CONFERENCE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jack Johnson Executive Director | 40 | $72,400 | |
Amy Young President | OfficerTrustee | 0.5 | $0 |
Jason Frett Vice President | OfficerTrustee | 0.25 | $0 |
Debra Johnson Secretary/treasurer | OfficerTrustee | 15 | $0 |
Connie Kreps Board Member | Trustee | 0.1 | $0 |
Freddy Battah Board Member | Trustee | 0.1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $503,672 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $503,672 |
| Total Program Service Revenue | $107,623 |
| Investment income | $2,296 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $43,177 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $680,471 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $40,411 |
| Compensation of current officers, directors, key employees. | $72,400 |
| Compensation of current officers, directors, key employees. | $18,100 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $104,789 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $21,605 |
| Fees for services: Management | $32,238 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $3,705 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $3,865 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $10,961 |
| Travel | $58,747 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $112,924 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $5,537 |
| Insurance | $0 |
| All other expenses | $5,223 |
| Total functional expenses | $504,845 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $360,557 |
| Savings and temporary cash investments | $415,104 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $2,162 |
| Net Land, buildings, and equipment | $27,135 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $804,958 |
| Accounts payable and accrued expenses | $12,023 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $12,023 |
| Net assets without donor restrictions | $792,935 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $804,958 |