Sotos Syndrome Support Association
- Assets
- $248.0k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 0
- Location
- Wheaton, IL
- Founding
- 08/1991
- Data as of
- 12/2021
- EIN
- 43-1568496
Organization Overview
Sotos Syndrome Support Association is located in Wheaton, IL. The organization was established in 1991. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Sotos Syndrome Support Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Sotos Syndrome Support Association generated $36.3k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 6 years, the organization has seen revenues fall by an average of (7.9%) each year. All expenses for the organization totaled $5.3k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (33.1%) per year over the past 6 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2021
Describe the Organization's Program Activity:
Part 3
ONLINE REGISTRATION FOR CONFERENCE, WEBSITE, NEWSLETTERS, EDUCATIONAL INFORMATION TO ASSIST SOTOS SYNDROME FAMILIES, FRIENDS, DOCTORS, TEACHERS, AND PROFESSIONALS IN DEALING WITH THE SYNDROME WHICH ARE UTILIZED BY OVER 300 MEMBERS DURING THE YEAR.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Ms Michele Marshal Treasurer & | 4 | $0 | |
Ms Whitney George Director | 1 | $0 | |
Ms Roberta Morgan Director | 1 | $0 | |
Mr Brian Hays Director | 1 | $0 | |
Mr Dan Place Director | 1 | $0 | |
Ms Linnea Dugan President & | 3 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $27,250 |
| Total Program Service Revenue | $305 |
| Membership dues | $7,500 |
| Investment income | $475 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $775 |
| Total Revenue | $36,305 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $0 |
| Professional fees and other payments to independent contractors | $975 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $617 |
| Other expenses | $3,746 |
| Total expenses | $5,338 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $247,980 |
| Other assets | $0 |
| Total assets | $247,980 |
| Total liabilities | $0 |
| Net assets or fund balances | $247,980 |
Grants Recieved
Over the last fiscal year, we have identified 5 grants that Sotos Syndrome Support Association has recieved totaling $17,111.
| Awarding Organization | Amount |
|---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $8,000 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $7,967 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $844 |
Pfizer Foundation Inc New York, NY PURPOSE: MATCHING GIFTS | $200 |
Pfizer Foundation Inc New York, NY PURPOSE: MATCHING GIFTS | $100 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Childrens Autism Centerincorporated Fort Wayne, IN | $8,774,831 | $9,960,141 |
Central East Alcoholism & Drug Council Charleston, IL | $3,025,211 | $6,812,078 |
Meredith-Dunn Learning Center Inc Louisville, KY | $4,614,484 | $3,584,903 |
Burns And Mcdonnell Foundation Kansas City, MO | $20,833,020 | $825,239 |
Digestive Health Foundation Chicago, IL | $9,007,298 | $1,193,686 |
The Latino Alzheimers And Memory Disorders Alliance Cicero, IL | $52,784 | $1,079,931 |
Dup 15q Alliance Park Ridge, IL | $595,041 | $739,794 |
American Contact Dermatitis Society Milwaukee, WI | $2,011,445 | $820,776 |
Ehe Foundation Hobart, WI | $1,985,458 | $1,636,401 |
International Eczema Council Chicago, IL | $2,853,883 | $803,591 |
Lupus Society Of Illinois Chicago, IL | $397,218 | $577,886 |
Kentucky Diabetes Camp For Children Inc Louisville, KY | $645,456 | $463,260 |