Kabuki Syndrome Foundation
- Assets
- $356.3k
- Revenue
- $412.2k
- Investments
- $0.0
- Employees
- 0
- Location
- Northbrook, IL
- Founding
- 02/2019
- Data as of
- 12/2021
- EIN
- 82-5401904
Organization Overview
Kabuki Syndrome Foundation is located in Northbrook, IL. The organization was established in 2019. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Kabuki Syndrome Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Kabuki Syndrome Foundation generated $412.2k in total revenue. All expenses for the organization totaled $68.0k during the year ending 12/2021. While expenses have increased by 73.0% per year over the past 4 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
DRIVE RESEARCH EFFORTS THAT SHOW PROMISE TO TREAT OR CURE KABUKI SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE FOUNDATION HOSTS A MEDICAL CONFERENCE THAT BRINGS TOGETHER SEVERAL OF THE LEADING KABUKI SYNDROME RESEARCHERS IN THE WORLD, AS WELL AS MANY INDIVIDUALS WITH KABUKI SYNDROME AND THEIR FAMILIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Thomas Cingari Jr Vice President | Trustee | 1 | $0 |
Annie Dean Co-President | Trustee | 1 | $0 |
Leila Zegna Di Monte Rubello Vice President | Trustee | 1 | $0 |
Jill Orum Dunbar Co-President | Trustee | 1 | $0 |
Patrick Dunbar Vice President | Trustee | 1 | $0 |
Edoardo Zegna Di Monte Rubello Vice President | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $401,230 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $401,230 |
| Total Program Service Revenue | $10,955 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $412,185 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $500 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $20,000 |
| Fees for services: Legal | $17,400 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $15,000 |
| Advertising and promotion | $0 |
| Office expenses | $761 |
| Information technology | $1,749 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $10,800 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $68,046 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $356,347 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $356,347 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $356,347 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $356,347 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Kabuki Syndrome Foundation has recieved totaling $125,372.
| Awarding Organization | Amount |
|---|---|
Cingari Family Foundation Norwalk, CT PURPOSE: GENERAL | $110,000 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $12,872 |
Dream Weaver Foundation Inc Cumming, GA PURPOSE: GENERAL WELFARE | $2,500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Childrens Autism Centerincorporated Fort Wayne, IN | $8,774,831 | $9,960,141 |
Central East Alcoholism & Drug Council Charleston, IL | $3,025,211 | $6,812,078 |
Meredith-Dunn Learning Center Inc Louisville, KY | $4,614,484 | $3,584,903 |
Burns And Mcdonnell Foundation Kansas City, MO | $20,833,020 | $825,239 |
Digestive Health Foundation Chicago, IL | $9,007,298 | $1,193,686 |
The Latino Alzheimers And Memory Disorders Alliance Cicero, IL | $52,784 | $1,079,931 |
Dup 15q Alliance Park Ridge, IL | $595,041 | $739,794 |
American Contact Dermatitis Society Milwaukee, WI | $2,011,445 | $820,776 |
Ehe Foundation Hobart, WI | $1,985,458 | $1,636,401 |
International Eczema Council Chicago, IL | $2,853,883 | $803,591 |
Lupus Society Of Illinois Chicago, IL | $397,218 | $577,886 |
Kentucky Diabetes Camp For Children Inc Louisville, KY | $645,456 | $463,260 |