National Rosacea Society
- Assets
- $87.3k
- Revenue
- $307.3k
- Investments
- $0.0
- Employees
- 0
- Location
- Chicago, IL
- Founding
- 03/1997
- Data as of
- 12/2021
- EIN
- 36-4120334
Organization Overview
National Rosacea Society is located in Chicago, IL. The organization was established in 1997. According to its NTEE Classification (G80) the organization is classified as: Specifically Named Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Rosacea Society is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, National Rosacea Society generated $307.3k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 4 years, the organization has seen revenues fall by an average of (9.8%) each year. All expenses for the organization totaled $312.7k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (15.1%) per year over the past 4 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
IMPROVING THE LIVES OF THOSE WHO SUFFER FROM ROSACEA
Describe the Organization's Program Activity:
Part 3 - Line 4a
PUBLIC EDUCATION - THE SOCIETY PRODUCES AND SUPPLIES INFORMATION AND EDUCATIONAL MATERIALS IN RESPONSE TO REQUESTS FROM PATIENTS, HEALTH PROFESSIONALS, AND THE GENERAL PUBLIC. THESE INCLUDE "ROSACEA REVIEW", A NEWSLETTER WITH NEWS AND GENERALINFORMATION ON ROSACEA; BOOKLETS AND TEAR-SHEETS ON ROSACEA AND LIFESTYLE MANAGEMENTTO HELP INDIVIDUALS COPE WITH THE ILLNESS; A PATIENT DIARY TO HELP SUFFERERS IDENTIFY AND AVOID LIFESTYLE AND ENVIROMENTAL FACTORS THAT MAY AGGRAVATE THEIR INDIVIDUAL CONDITIONS; MEDICAL AND CONSUMER ARTICLES AND BIBLIOGRAPHIES. THE SOCIETY ALSO CONDUCTS AND PUBLISHES PATIENT SURVEYS ON TRIGGER FACTORS, SYMPTOMS, QUALITY OF LIFE AND OTHER SIGNIFICANT ASPECTS OF ROSACEA.
MEDICAL SCIENTIFIC EDUCATION - BECAUSE OF ROSACEAS'S WIDE RANGE OF POTENTIAL MANIFESTATIONS,THE SOCIETY CONDUCTS CONSENSUS CONFERENCES OF LEADING EXPERTS TO DEVELOP WORLDWIDE STANDARDIZED CRITERIA FOR THE DISEASE, INCLUDING ITS PRIMARY AND SECONDARY DIAGNOSTIC FEATURES, PHENOTYPES, GRADES AND MANAGEMENT OPTIONS. THESE STANDARDS ARE REVIEWED BY MEDICAL AUTHORITIES THROUGHOUT THE UNITED STATES AND WORLDWIDE, AND PUBLISHED IN MEDICAL JOURNALS TO SERVE AS STANDARD INSTRUMENTS FOR UNIFYING RESEARCH, IMPROVING CLINICAL DIAGNOSIS AND CARE, AND PROVIDING COMMON TERMINOLOGY FOR COMMUNICATIONS. THE SOCIETY ALSO PARTICIPATES AT MAJOR MEDICAL MEETINGS, CONDUCTS MEDICAL CONFERENCES, PRODUCES MEDICAL EDUCATION MATERIALS AND DISTRIBUTES INFORMATION ON ITS RESEARCH GRANTS PROGRAM TO RESEARCH CENTERS.
PUBLIC AWARENESS - THE SOCIETY DESIGNATES APRIL AS ROSACEA AWARENESS MONTH EACH YEAR, PRODUCES NATIONAL PUBLIC SERVICE ANNOUNCEMENTS AND CONDUCTS NATIONAL PUBLIC RELATIONS ACTIVITIES TO REACH THE MILLIONS WHO MAY UNKNOWINGLY SUFFER FROM THIS CHRONIC AND POTENTIALLY LIFE DISRUPTIVE DISORDER. THE SOCIETY ALSO MAINTAINS A TOLL-FREE TELEPHONE NUMBER AND WEBSITE WHERE INDIVIDUALS AND HEALTH PROFESSIONALS CAN OBTAIN INFORMATION OR ASSISTANCE ON ROSACEA. THE WEBSITE,ROSACEA.ORG, RECEIVED A GOLD TRIANGLE AWARD FROM THE AMERICAN ACADEMY OF DERMATOLOGY FOR EXCELLENCE IN PUBLIC HEALTH INFORMATION, AND SERVED 881,299 WEBSITE VISITORS IN 2022.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Andrew F Huff President | OfficerTrustee | 1 | $0 |
Mary F Erhard Secretary | OfficerTrustee | 1 | $0 |
Antonio Martinez Jr Treasurer | OfficerTrustee | 1 | $0 |
Norman Doucet Trustee | Trustee | 1 | $0 |
Zoe Draelos MD Trustee | Trustee | 1 | $0 |
Keith Flanders Trustee | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $5,676 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $256,588 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $262,264 |
| Total Program Service Revenue | $45,000 |
| Investment income | $54 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $307,318 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $20,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $717 |
| Fees for services: Accounting | $22,142 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,725 |
| Advertising and promotion | $30,662 |
| Office expenses | $18,475 |
| Information technology | $5,434 |
| Royalties | $0 |
| Occupancy | $623 |
| Travel | $2,964 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $5,728 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $16,806 |
| Insurance | $3,035 |
| All other expenses | $895 |
| Total functional expenses | $312,727 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $51,254 |
| Savings and temporary cash investments | $36,081 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $87,335 |
| Accounts payable and accrued expenses | $1,439 |
| Grants payable | $17,500 |
| Deferred revenue | $6,346 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $25,285 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $62,050 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $87,335 |
Grants Awarded
Over the last fiscal year, National Rosacea Society has awarded $30,000 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF CALIFORNIA - SAN DIEGO PURPOSE: RESEARCH | $15,000 |
CALIFORNIA ACADEMY OF SCIENCES - GOLDEN GATE PARK PURPOSE: RESEARCH | $15,000 |