Citizens United For Research In Epilepsy
- Assets
- $10.2m
- Revenue
- $6.2m
- Investments
- $0.0
- Employees
- 19
- Location
- Chicago, IL
- Founding
- 03/1999
- Data as of
- 12/2022
- EIN
- 36-4253176
Organization Overview
Citizens United For Research In Epilepsy, operating under the name CURE Epilepsy, is located in Chicago, IL. The organization was established in 1999. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. As of 12/2022, CURE Epilepsy employed 19 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. CURE Epilepsy is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, CURE Epilepsy generated $6.2m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 1.3% each year. All expenses for the organization totaled $5.8m during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, CURE Epilepsy has awarded 122 individual grants totaling $23,252,214. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH.
Describe the Organization's Program Activity:
Part 3 - Line 4a
SINCE ITS INCEPTION IN 1998, CURE EPILEPSY HAS RAISED MORE THAN 90 MILLION TO FUND EPILEPSY RESEARCH AND OTHER INITIATIVES THAT WILL LEAD THE WAY TO CURES FOR THE EPILEPSIES. CURE EPILEPSY AWARDS GRANTS FOR NOVEL RESEARCH PROJECTS TO PREVENT EPILEPSY RELATED TO PEDIATRIC EPILEPSY, POST-TRAUMATIC EPILEPSY, TREATMENT RESISTANT EPILEPSIES, SUDDEN UNEXPLAINED DEATH IN EPILEPSY SUDEP, AND SLEEP AND EPILEPSY ADVANCING THE SEARCH FOR A CURE, ELIMINATING TREATMENT SIDE EFFECTS, AND REVERSING DEFICITS CAUSED BY FREQUENT SEIZURES, CURE EPILEPSY FUNDS GRANTS FOR YOUNG AND ESTABLISHED INVESTIGATORS AND TODATE HAS AWARDED MORE THAN 280 GRANTS IN 17 COUNTRIES AROUND THE WORLD.
CURE EPILEPSY BELIEVES THAT AWARENESS IS A CRITICAL VEHICLE TO INCREASE THE AMOUNT OF FUNDING FOR EPILEPSY RESEARCH AND TO SHARE KEY LEARNINGS AND OPPORTUNITIES FOR THOSE IMPACTED BY EPILEPSY. CURE EPILEPSY CREATES, SPONSORS AND LEVERS OUR WEBSITE, WEBINARS, SEMINARS, PODCASTS, EDUCATIONAL EVENTS AND OTHER DIGITAL COMMUNICATION TO DRIVE THIS CRITICAL AWARENESS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Beth Dean CEO | Officer | 37.5 | $299,086 |
Laura Lubbers Chief Scientific Officer | Officer | 37.5 | $295,325 |
Debby Hecht Sr. Director, Market Coms | 37.5 | $162,707 | |
Alysha Biehl Sr. Director Development | 37.5 | $149,182 | |
Priya Balasubramanian Assoc Director Of Research | 37.5 | $115,032 | |
John Anderluh CFO | Officer | 37.5 | $110,734 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Patina Solutions Group Inc Outsourced Executive | 12/30/19 | $150,935 |
Facebook Advertising | 12/30/19 | $140,496 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $2,638,271 |
| Related organizations | $0 |
| Government grants | $538,439 |
| All other contributions, gifts, grants, and similar amounts not included above | $2,760,436 |
| Noncash contributions included in lines 1a–1f | $772,767 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $5,937,146 |
| Total Program Service Revenue | $0 |
| Investment income | $140,351 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $706,426 |
| Net Income from Fundraising Events | -$552,547 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $6,231,376 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $2,155,773 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $648,712 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $1,276,512 |
| Compensation of current officers, directors, key employees. | $148,076 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $555,921 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $221,020 |
| Payroll taxes | $120,754 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $26,592 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $15,951 |
| Fees for services: Other | $43,726 |
| Advertising and promotion | $0 |
| Office expenses | $61,189 |
| Information technology | $126,590 |
| Royalties | $0 |
| Occupancy | $81,386 |
| Travel | $39,882 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $58,870 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $20,997 |
| Insurance | $10,935 |
| All other expenses | $0 |
| Total functional expenses | $5,793,113 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $814,141 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $635,571 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $41,357 |
| Net Land, buildings, and equipment | $59,923 |
| Investments—publicly traded securities | $8,153,627 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $450,124 |
| Total assets | $10,154,743 |
| Accounts payable and accrued expenses | $143,881 |
| Grants payable | $3,045,280 |
| Deferred revenue | $316,546 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $498,350 |
| Total liabilities | $4,004,057 |
| Net assets without donor restrictions | $5,094,243 |
| Net assets with donor restrictions | $1,056,443 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $10,154,743 |
Grants Awarded
Over the last fiscal year, Citizens United For Research In Epilepsy has awarded $2,148,769 in support to 17 organizations.
| Grant Recipient | Amount |
|---|---|
ALLIANCE FOR EPILEPSY RESEARCH PURPOSE: Research Conference Grant | $5,671 |
AMERICAN EPILEPSY SOCIETY PURPOSE: Research Conference Grant | $17,500 |
AXONIS THERAPEUTICS INC PURPOSE: Catalyst | $249,150 |
BRANDEIS UNIVERSITY PURPOSE: Catalyst | $250,000 |
EMORY UNIVERSITY PURPOSE: CURE Epilepsy | $250,000 |
GORDON RESEARCH CONFERENCES PURPOSE: Research Conference Grant | $8,861 |