Bev Hartig Huntington Disease Foundation Inc
- Assets
- $456.2k
- Revenue
- $298.0k
- Investments
- $0.0
- Employees
- 0
- Location
- Fishers, IN
- Founding
- 04/2014
- Data as of
- 06/2022
- EIN
- 46-0990518
Organization Overview
Bev Hartig Huntington Disease Foundation Inc is located in Fishers, IN. The organization was established in 2014. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Bev Hartig Huntington Disease Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, Bev Hartig Huntington Disease Foundation Inc generated $298.0k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 5.4% each year. All expenses for the organization totaled $326.4k during the year ending 06/2022. While expenses have increased by 12.4% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2018, Bev Hartig Huntington Disease Foundation Inc has awarded 28 individual grants totaling $1,741,400. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO FIND A CURE FOR HUNTINGTON'S DISEASE
Describe the Organization's Program Activity:
Part 3 - Line 4a
WENZHEN DUAN - $100K - PROFESSOR OF PSYCHIATRY AT JOHNS HOPKINS UNIVERSITY. WORKING ON NEURON CONVERSION FOR TREATING HUNTINGTON'S DISEASE.
MYRIAM HEIMAN, PH.D, AT MIT $100K - PROJECT WORKS ON FINDING A GENE THEORY FOR HUNTINGTON'S DISEASE.
MICHAEL HAYDEN $52K - CANADA RESEARCH CHAIR IN HUMAN GENETICS AND MOLECULAR MEDICINE, UNIVERSITY KILLAM PROFESSOR IN THE DEPARTMENT OF MEDICAL GENETICS, UNIVERSITY OF BRITISH COLUMBIA SENIOR SCIENTIST IN THE CENTRE FOR MOLECULAR MEDICINE AND THERAPEUTICS. WORKING TO LOWER MUTANT HUNTINGTON IN TREATMENT FOR HUNTINGTON'S DISEASE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Nanette Johnson Treasurer | OfficerTrustee | 1 | $0 |
Cindi Berry President | OfficerTrustee | 3 | $0 |
Lisa Rump Secretary | OfficerTrustee | 1 | $0 |
Wava Raymond Director | Trustee | 1 | $0 |
Kathy Murphy Director | Trustee | 1 | $0 |
Shelley Boles Lewis Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $215,151 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $215,151 |
| Total Program Service Revenue | $0 |
| Investment income | $4 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $82,829 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $297,984 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $311,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $1,399 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $711 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $275 |
| All other expenses | $186 |
| Total functional expenses | $326,364 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $426,635 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $28,418 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $1,184 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $456,237 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $436,237 |
| Net assets with donor restrictions | $20,000 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $456,237 |
Grants Awarded
Over the last fiscal year, Bev Hartig Huntington Disease Foundation Inc has awarded $311,000 in support to 4 organizations.
| Grant Recipient | Amount |
|---|---|
JOHN HOPKINS UNIVERSITYDUAN | | | $139,000 |
MASS INSTITUTE OF TECHNOLOGY | | | $100,000 |
UNIVERSITY OF BRITISH COLUMBI | | | $52,000 |
INDIANA UNIVERISTY SOCIAL WOR | | | $20,000 |
Grants Recieved
Over the last fiscal year, we have identified 6 grants that Bev Hartig Huntington Disease Foundation Inc has recieved totaling $64,855.
| Awarding Organization | Amount |
|---|---|
American Endowment Foundation Hudson, OH PURPOSE: MEDICAL RESEARCH | $55,000 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $8,100 |
Janus Foundation Denver, CO PURPOSE: MATCHING GIFTS | $1,200 |
Maurer Family Foundation Inc Carmel, IN PURPOSE: GENERAL FUND | $300 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $155 |
Janus Foundation Denver, CO PURPOSE: JH CHARITY CHALLANGE | $100 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Lungevity Foundation Chicago, IL | $12,082,053 | $14,543,433 |
Pkd Foundation Kansas City, MO | $20,909,832 | $16,124,449 |
Citizens United For Research In Epilepsy Chicago, IL | $10,496,452 | $6,043,691 |
Omega Medical Grants Association Rosemont, IL | $5,080,670 | $4,530,118 |
American Medical Association Foundation Chicago, IL | $26,650,564 | $8,763,967 |
Leukemia Research Foundation Inc Northfield, IL | $5,035,074 | $2,910,174 |
Head For The Cure Kansas City, MO | $719,180 | $1,965,362 |
Levelup Kids Inc Kansas City, MO | $1,600,938 | $1,601,663 |
Partnership For Cures Chicago, IL | $2,901,397 | $2,128,264 |
Orthopaedic Foot & Ankle Foundation Rosemont, IL | $10,882,425 | $1,439,579 |
Bryon Riesch Paralysis Foundation Inc Waukesha, WI | $477,065 | $417,057 |
St Louis Life Sciences Project St Louis, MO | $288,211 | $470,000 |