Pkd Foundation
- Assets
- $20.9m
- Revenue
- $16.1m
- Investments
- $0.0
- Employees
- 48
- Location
- Kansas City, MO
- Founding
- 11/1982
- Data as of
- 06/2020
- EIN
- 43-1266906
Organization Overview
Pkd Foundation is located in Kansas City, MO. The organization was established in 1982. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. As of 06/2021, Pkd Foundation employed 48 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Pkd Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2020, Pkd Foundation generated $16.1m in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 18.3% each year . All expenses for the organization totaled $7.2m during the year ending 06/2020. While expenses have increased by 1.5% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Pkd Foundation has awarded 170 individual grants totaling $15,437,026. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2020
Describe the Organization's Mission:
Part 3 - Line 1
PROMOTE PROGRAMS OF RESEARCH AND EDUCATION TO DISCOVER TREATMENTS AND A CURE FOR PKD.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH - SEE SCHEDULE O
AWARENESS AND ADVOCACY - SEE SCHEDULE O
EDUCATION AND SUPPORT - SEE SCHEDULE O
RESEARCH - SEE SCHEDULE O
AWARENESS AND ADVOCACY - SEE SCHEDULE O
EDUCATION AND SUPPORT - SEE SCHEDULE O
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Andrew Betts President And CEO | Officer | 40 | $254,500 |
Chris Rusconi Chief Research Officer | Officer | 40 | $202,722 |
Amanda Hanova Chief Operations Officer | Officer | 40 | $194,723 |
Susan Deremer Director Of Leadership Gifts | 40 | $113,579 | |
Chad Iseman Chief Advancment Officer | Officer | 40 | $99,226 |
Michal Mrug Director | Trustee | 1 | $76,445 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Manifest Llc Pkdlife Magazine Production And Delivery | 6/29/20 | $324,892 |
Iqvia Technology Services Patient Registry And Consulting Fees | 6/29/20 | $114,089 |
Newport One Digital And Direct Mail Strategy And Sol | 6/29/20 | $178,952 |
Manifest Llc Pkdlife Magazine Production And Delivery | 6/29/20 | $324,892 |
Newport One Digital And Direct Mail Strategy And Sol | 6/29/20 | $178,952 |
Iqvia Technology Services Patient Registry And Consulting Fees | 6/29/20 | $114,089 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $15,841,230 |
| Investment income | $335,777 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$54,153 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $1,595 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $16,124,449 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic individuals. | $50,000 |
| Grants and other assistance to Foreign Orgs/Individuals | $160,000 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $691,328 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $1,718,913 |
| Pension plan accruals and contributions | $134,947 |
| Other employee benefits | $358,806 |
| Payroll taxes | $190,022 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $54,613 |
| Fees for services: Accounting | $30,210 |
| Fees for services: Lobbying | $60,000 |
| Fees for services: Fundraising | $324,724 |
| Fees for services: Investment Management | $40,657 |
| Fees for services: Other | $622,878 |
| Advertising and promotion | $96,005 |
| Office expenses | $141,819 |
| Information technology | $51,042 |
| Royalties | $0 |
| Occupancy | $243,211 |
| Travel | $23,681 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $636,435 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $186,076 |
| Insurance | $19,439 |
| All other expenses | $0 |
| Total functional expenses | $7,241,943 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $837,660 |
| Savings and temporary cash investments | $2,329,780 |
| Pledges and grants receivable | $1,975,570 |
| Accounts receivable, net | $53,985 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $246,080 |
| Investments—publicly traded securities | $14,768,885 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $15,533 |
| Total assets | $20,909,832 |
| Accounts payable and accrued expenses | $870,271 |
| Grants payable | $400,000 |
| Deferred revenue | $1,441,378 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $397,800 |
| Other liabilities | $0 |
| Total liabilities | $3,109,449 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Total liabilities and net assets/fund balances | $17,800,383 |
Grants Awarded
Over the last fiscal year, Pkd Foundation has awarded $2,240,000 in support to 20 organizations.
| Grant Recipient | Amount |
|---|---|
UNIVERSITY OF KANSAS MEDICAL SCHOOL PURPOSE: ADPKD RESEARCH TOPOLOGY, SPECIFIC PROPERTIES, AND | $240,000 |
UNIVERSITY OF KANSAS MEDICAL SCHOOL PURPOSE: ADPKD RESEARCH TOPOLOGY, SPECIFIC PROPERTIES, AND | $240,000 |
Denver, CO PURPOSE: INVESTIGATING A NEW REGULATOR OF CYST DEVELOPMENT IN PKD | $160,000 |
Denver, CO PURPOSE: INVESTIGATING A NEW REGULATOR OF CYST DEVELOPMENT IN PKD | $160,000 |
Rochester, MN PURPOSE: BIOMARKERS IN ADPKD INACTIVATION OF XBP1 AS A NOVEL STRATEGY TO TREAT | $160,000 |
Rochester, MN PURPOSE: BIOMARKERS IN ADPKD INACTIVATION OF XBP1 AS A NOVEL STRATEGY TO TREAT | $160,000 |
Grants Recieved
Over the last fiscal year, we have identified 84 grants that Pkd Foundation has recieved totaling $1,069,858.
| Awarding Organization | Amount |
|---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $247,085 |
Tufts Health Plan Foundation Inc Canton, MA PURPOSE: Matching Gifts | $200,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $143,237 |
Nonnas Garden A Private Foundation Whitestone, NY PURPOSE: GENERAL CONTRIBUTION | $100,000 |
Associated Jewish Charities Of Baltimore Baltimore, MD PURPOSE: GENERAL SUPPORT | $50,000 |
The Bessemer Giving Fund Woodbridge, NJ PURPOSE: GENERAL SUPPORT | $40,000 |
Endowment Analysis
| Beg. Balance | $14,598,334 |
| Earnings | $3,894,361 |
| Admin Expense | $90,031 |
| Net Contributions | $569,425 |
| Ending Balance | $18,972,089 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Lungevity Foundation Chicago, IL | $12,082,053 | $14,543,433 |
Pkd Foundation Kansas City, MO | $20,909,832 | $16,124,449 |
Citizens United For Research In Epilepsy Chicago, IL | $10,496,452 | $6,043,691 |
Omega Medical Grants Association Rosemont, IL | $5,080,670 | $4,530,118 |
American Medical Association Foundation Chicago, IL | $26,650,564 | $8,763,967 |
Nashville Wine Auction Nashville, TN | $1,455,016 | $3,050,154 |
Leukemia Research Foundation Inc Northfield, IL | $5,035,074 | $2,910,174 |
Head For The Cure Kansas City, MO | $719,180 | $1,965,362 |
Levelup Kids Inc Kansas City, MO | $1,600,938 | $1,601,663 |
Partnership For Cures Chicago, IL | $2,901,397 | $2,128,264 |
T J Martell Foundation Nashville, TN | $1,696,815 | $381,037 |
Orthopaedic Foot & Ankle Foundation Rosemont, IL | $10,882,425 | $1,439,579 |