Global Foundation For Peroxisomal Disorders
- Assets
- $1.2m
- Revenue
- $685.6k
- Investments
- $0.0
- Employees
- 3
- Location
- Tulsa, OK
- Founding
- 01/2011
- Data as of
- 12/2021
- EIN
- 27-3646193
Organization Overview
Global Foundation For Peroxisomal Disorders is located in Tulsa, OK. The organization was established in 2011. According to its NTEE Classification (G12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2021, Global Foundation For Peroxisomal Disorders employed 3 individuals. This organization is an itermediate organization (such as a geographic headquarters) for a national or regional group of organizations. Global Foundation For Peroxisomal Disorders is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Global Foundation For Peroxisomal Disorders generated $685.6k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 13.1% each year . All expenses for the organization totaled $463.8k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS IS DEDICATED TO IMPROVING THE LIVES OF INDIVIDUALS WITH PEROXISOMAL DISORDERS BY FUNDING RESEARCH, CHAMPIONING SCIENTIFIC COLLABORATION, AND EMPOWERING FAMILIES AND PROFESSIONALS THROUGH EDUCATIONAL PROGRAMS AND SUPPORT SERVICES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FAMILY SUPPORT PROGRAM: THE PRIMARY PROGRAMMATIC IMPACT AND PRIORITIES FOR THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS IS TO CONVENE FAMILIES OF DIAGNOSED PATIENTS (PREDOMINANTLY NEWBORNS, INFANTS AND YOUNG CHILDREN) FOR EDUCATIONAL, SUPPORT AND LINKAGE SERVICES. THIS WORK IS SUPPORTED THROUGH A DYNAMIC WEBSITE (REDESIGNED IN LATE 2021) WITH CONTENT REGULARLY VETTED AND UPDATED BY GFPD VOLUNTEERS AND STAFF TO GIVE PARENTS AND CAREGIVERS THE LATEST INFORMATION ABOUT DIAGNOSIS, IMMEDIATE CARE AND DISORDER MITIGATION, SCIENTIFIC AND MEDICAL RESEARCH GEARED TOWARD A CAREGIVER AUDIENCE, BEST AND EMERGING PRACTICES IN CARE, AND RESOURCES FOR FAMILIES AND CAREGIVERS TO INCREASE POTENTIAL IN PATIENTS. THE GFPD ALSO PROVIDES RESOURCES FOR SUPPORT THROUGH ONLINE FORUMS, WEBINARS, CONVENINGS FOR CAREGIVERS AND EDUCATIONAL PRESENTATIONS ON MEDICAL CARE, SERVICE PROVISION AND LINKAGE TO OTHER RESOURCES. BECAUSE OF THE PANDEMIC, ALMOST ALL OF THE PROGRAMMING WAS MOVED ONLINE AND VIRTUAL. THIS ACTUALLY CREATED GREATER ACCESS TO THE VIRTUAL MEET-UPS FOR FAMILIES AND CAREGIVERS AND GREATER USAGE OF SERVICES BY EXPONENTIALLY MORE FAMILIES. FINALLY, OUR PROGRAMS ARE DESIGNED TO LINK CAREGIVERS AND FAMILIES WITH ONE ANOTHER ALONG WITH OTHER MEDICAL, SCIENTIFIC AND PROFESSIONAL PERSONNEL TO BEST CARE FOR THEIR PATIENTS WITH PEROXISOMAL DISORDERS. IN 2021, THE GFPD POSTPONED A CONFERENCE IT HOSTS EACH TWO YEARS FOR FAMILIES AND PRACTITIONERS, OPTING TO RESERVE A SIGNIFICANT AMOUNT OF FUNDS TO PROVIDE DIRECT STIPENDS AND SUPPORT TO FAMILIES FOR A CONFERENCE SCHEDULED IN 2022.
RESEARCH:MEDICAL AND SCIENTIFIC PROGRAMS: THE GFPD CONTINUES TO FUND RESEARCH AND MEDICAL CARE BEST PRACTICES FOR PATIENTS WITH PEROXISOMAL DISORDERS. CURRENTLY, THE GFPD FUNDS RESEARCH THROUGH A NUMBER OF ACADEMIC AND PROFESSIONAL INSTITUTIONS INCLUDING THE UNIVERSITY OF SOUTHERN CALIFORNIA, BAYLOR COLLEGE OF MEDICINE, THE KENNEDY KRIEGER INSTITUTE, JACKSON LABORATORIES AND MCGILL UNIVERSITY IN MONTREAL. ADDITIONALLY, THE GFPD SUPPORTS A GROUP OF MEDICAL AND SCIENTIFIC ADVISORS FROM AROUND THE WORK DEDICATED TO RESEARCH AND DEVELOPMENT OF TREATMENTS AND BEST PRACTICES. THE MOST SIGNIFICANT STUDY THE GFPD HAS SUPPORTED AND PARTICIPATED IN IS A FULL-SCALE NATURAL HISTORY STUDY OF PEROXISOMAL DISORDER PATIENTS THROUGH MCGILL UNIVERSITY. THIS STUDY IS A CONTINUAL PROCESS TO UNDERSTAND THE SYMPTOMS AND SEVERITY OF THE DISORDERS IN VARIOUS PATIENTS FROM AROUND THE WORLD. THE GFPD HAS HELPED TO ENROLL MORE THAN 200 IN THE STUDY. FINALLY, THE GFPD REGULARLY GIVES RESEARCH GRANTS IN COMBINATION WITH LARGER GRANTS THROUGH A PARTNERSHIP FROM THE NATIONAL INSTITUTE OF HEALTH AND OTHER VARIOUS NATIONAL RESEARCH GRANT PROGRAMS. PATIENT ADVOCACY AND NEWBORN SCREENING: THE GFPD ADVOCATES AND EDUCATES FOR ADVANCEMENTS IN NEWBORN SCREENING FOR GENETIC DISORDERS INCLUDING PEROXISOMAL DISORDERS. AT THE TIME OF THE FILING OF THIS DOCUMENT, 20 STATES HAVE ENACTED POLICIES FOR NEWBORN SCREENING. THE ORGANIZATION WILL CONTINUE INVESTING TIME AND RESOURCES INTO ENSURING FAMILIES HAVE THE BEST OPTIONS AVAILABLE TO MITIGATE LONG DIAGNOSTIC JOURNEYS WHEN NEWBORN SCREENING IS NOT READILY AVAILABLE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Melissa Bryce Executive Director | Officer | 40 | $49,619 |
Kelly Dauer-Hubschmitt Chair | OfficerTrustee | 1 | $0 |
David Lapidus Vice Chair | OfficerTrustee | 1 | $0 |
Brian Tims CPA Treasurer | OfficerTrustee | 0.5 | $0 |
Meghan Meyers Secretary | OfficerTrustee | 0.5 | $0 |
Corin Chapman Director | Trustee | 0.5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $326,042 |
| Related organizations | $0 |
| Government grants | $14,678 |
| All other contributions, gifts, grants, and similar amounts not included above | $347,868 |
| Noncash contributions included in lines 1a–1f | $31,699 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $688,588 |
| Total Program Service Revenue | $0 |
| Investment income | $2,090 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$7,029 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $1,903 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $685,552 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $17,975 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $49,619 |
| Compensation of current officers, directors, key employees. | $4,962 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $36,045 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $6,628 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $8,697 |
| Fees for services: Accounting | $38,398 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $110,255 |
| Advertising and promotion | $88,678 |
| Office expenses | $0 |
| Information technology | $20,906 |
| Royalties | $0 |
| Occupancy | $18,347 |
| Travel | $28,458 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $8,732 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $1,587 |
| Insurance | $3,908 |
| All other expenses | $1,811 |
| Total functional expenses | $463,793 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $458,992 |
| Savings and temporary cash investments | $667,850 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $1,681 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $2,609 |
| Prepaid expenses and deferred charges | $42,786 |
| Net Land, buildings, and equipment | $2,798 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $1,176,716 |
| Accounts payable and accrued expenses | $32,922 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $32,922 |
| Net assets without donor restrictions | $784,325 |
| Net assets with donor restrictions | $359,469 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $1,176,716 |
Grants Recieved
Over the last fiscal year, we have identified 5 grants that Global Foundation For Peroxisomal Disorders has recieved totaling $145,599.
| Awarding Organization | Amount |
|---|---|
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $65,951 |
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $50,000 |
Biotechnology Innovation Organization Washington, DC PURPOSE: SUPPORT | $15,000 |
Charities Aid Foundation America Alexandria, VA PURPOSE: CHARITABLE DONATION | $13,234 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,414 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
The Against Malaria Foundation Kansas City, MO | $318 | $95,777,874 |
Augies Quest To Cure Als Inc Denver, CO | $2,734,697 | $5,503,715 |
Kelsey Research Foundation Houston, TX | $10,072,702 | $2,621,345 |
San Antonio Cancer Foundation San Antonio, TX | $28,212,911 | $2,248,713 |
Mission Clinical Services Hot Springs, AR | $679,407 | $1,180,610 |
Gabby Krause Foundation Centennial, CO | $1,721,212 | $1,491,373 |
Texas 4000 For Cancer Austin, TX | $778,162 | $1,006,921 |
Triumph Over Kid Cancer Foundation Corpus Christi, TX | $1,064,676 | $789,744 |
Disability Resource In Homeservices Inc Festus, MO | $80,012 | $820,552 |
Ollie Hinkle Heart Foundation Webster Groves, MO | $1,363,542 | $833,389 |
Careity Foundation Fort Worth, TX | $2,308,296 | $1,614,148 |
Birds For Sofia Inc Frisco, TX | $0 | $0 |