Chelseas Hope Lafora Children Research Fund
- Assets
- $272.2k
- Revenue
- $260.0k
- Investments
- $0.0
- Employees
- 0
- Location
- Sacramento, CA
- Founding
- 01/2010
- Data as of
- 12/2021
- EIN
- 27-1008382
Organization Overview
Chelseas Hope Lafora Children Research Fund is located in Sacramento, CA. The organization was established in 2010. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Chelseas Hope Lafora Children Research Fund is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Chelseas Hope Lafora Children Research Fund generated $260.0k in total revenue. This organization has experienced exceptional growth, as over the past 4 years, it has increased revenue by an average of 37.2% each year . All expenses for the organization totaled $35.9k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO RAISE FUNDS FOR RESEARCH, TREATMENT, AND ULTIMATELY, A CURE - FOR THOSE AFFECTED BY LAFORA.
Describe the Organization's Program Activity:
Part 3 - Line 4a
FUNDING RESEARCH TO ASSIST WITH THE CURE OF LAFORA
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PDF Copies of 990 Filings
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Frank Harris President | Officer | 0 | $0 |
Jenifer Merriam Vice President | Officer | 0 | $0 |
Lena Ismail Secretary | Officer | 0 | $0 |
Sheila Barter Treasurer | Officer | 0 | $0 |
Niki Markou Director | Trustee | 0 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $260,006 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $260,006 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $260,006 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $14,300 |
| Grants and other assistance to domestic individuals. | $9,848 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $1,365 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $10,215 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $35,916 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $272,210 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $272,210 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $272,210 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $272,210 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Chelseas Hope Lafora Children Research Fund has recieved totaling $626,259.
| Awarding Organization | Amount |
|---|---|
Silicon Valley Community Foundation Mountain View, CA PURPOSE: Health | $600,000 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $16,852 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $9,407 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Wings For Life Usa - Spinal Cord Research Foundation Inc Santa Monica, CA | $6,609,538 | $4,978,629 |
Foundation For Research Carson City, NV | $164,068,419 | $4,402,154 |
Runx1 Foundation Santa Barbara, CA | $3,085,064 | $5,336,089 |
Psfc Santa Cruz, CA | $8,888,871 | $6,472,995 |
Kure It Inc Irvine, CA | $825,809 | $1,330,675 |
Harold Pump Foundation Sherman Oaks, CA | $580,879 | $1,396,694 |
The Weil Foundation Tucson, AZ | $2,417,436 | $1,895,509 |
Cancer Awareness Through Research And Education Association Carefree, AZ | $148,453 | $969,135 |
Shoot For A Cure North Hollywood, CA | $399,457 | $878,758 |
Arrowhead Regional Medical Center Foundation Colton, CA | $2,669,831 | $937,166 |
Castleman Disease Collaborative Network Paso Robles, CA | $2,064,859 | $788,631 |
A Foundation Building Strength Inc Palo Alto, CA | $1,820,254 | $1,126,904 |