Cure Gm1 Incorporated
- Assets
- $3.2m
- Revenue
- $533.7k
- Investments
- $0.0
- Employees
- 1
- Location
- Albany, CA
- Founding
- 04/2015
- Data as of
- 12/2023
- EIN
- 47-3154419
Organization Overview
Cure Gm1 Incorporated is located in Albany, CA. The organization was established in 2015. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Gm1 Incorporated is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Cure Gm1 Incorporated generated $533.7k in total revenue. This organization has experienced exceptional growth, as over the past 9 years, it has increased revenue by an average of 15.6% each year . All expenses for the organization totaled $689.3k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
SEE SCHEDULE O. THE PURPOSE OF THE ORGANIZATION IS TO RAISE FUNDS FOR MEDICAL RESEARCH FOR A RARE DISEASE CALLED GM1 GANGLIOSIDOSISTHAT HAS NO CURE OR TREATMENT OTHER THAN COMFORT MEASURES AND SYMPTOM MANAGEMENT. PROMISING RESEARCH EXISTS, BUT LACKS FUNDING. THE ORGANIZATION HOPE TO UNITE FAMILIES OF THOSE WHO SUFFER FROM THIS DISEASE AND THEIR SUPPORTERS BY FUNDRAISING FOR A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
MANY GM1 CAREGIVERS PARTICIPATED IN THE STUDY, "HUMANISTIC BURDEN OF NEURODEGENERATIVE LYSOSOMAL DISORDERS IN THE US: INSIGHTS FROM CAREGIVERS OF PATIENTS LIVING WITH GM1 AND GM2 GANGLIOSIDOSES".
THE VOICE OF THE PATIENT REPORT FROM THE EXTERNALLY-LED PATIENT-FOCUSED DRUG DEVELOPMENT MEETING (EL-PFDD) WAS PUBLISHED ON THE FDA WEBSITE.
TEGA RECEIVED A SMALL BUSINESS INNOVATION RESEARCH (SBIR) GRANT BASED ON SEED FUNDING PROVIDED BY CURE GM1 TO CONTINUE THEIR ENZYME REPLACEMENT THERAPY STUDY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Vanessa Rangel Miller Director | Trustee | 5 | $0 |
Kylie Harrison Secretary | OfficerTrustee | 1 | $0 |
David Law Director | Trustee | 0 | $0 |
Bingyune Chen Director | Trustee | 0 | $0 |
Rafael Escandon Director | Trustee | 5 | $0 |
Christine M Waggoner CEO | Officer | 15 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $443,512 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $443,512 |
| Total Program Service Revenue | $0 |
| Investment income | $90,088 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $120 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $533,720 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $43,544 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $3,903 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $5,398 |
| Fees for services: Accounting | $4,650 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $4,563 |
| Advertising and promotion | $395 |
| Office expenses | $7,829 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $1,887 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $31,457 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $395 |
| All other expenses | $100 |
| Total functional expenses | $689,298 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $252,448 |
| Savings and temporary cash investments | $459,852 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $2,333 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $2,501,383 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $3,216,016 |
| Accounts payable and accrued expenses | $4,665 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $4,665 |
| Net assets without donor restrictions | $3,211,351 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,216,016 |