Castleman Disease Collaborative Network
- Assets
- $2.5m
- Revenue
- $898.7k
- Investments
- $0.0
- Employees
- 0
- Location
- Paso Robles, CA
- Founding
- 08/2007
- Data as of
- 12/2022
- EIN
- 37-1510354
Organization Overview
Castleman Disease Collaborative Network is located in Paso Robles, CA. The organization was established in 2007. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Castleman Disease Collaborative Network is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Castleman Disease Collaborative Network generated $898.7k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 15.5% each year . All expenses for the organization totaled $442.5k during the year ending 12/2022. While expenses have increased by 9.9% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Castleman Disease Collaborative Network has awarded 20 individual grants totaling $1,329,950. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO DEVELOP AWARENESS OF CASTLEMAN'S DISEASE AND TO RAISE MONEY TO FUND EDUCATION AND LABORATORY RESEARCH TO DETERMINE CAUSE, TREATMENT AND ULTIMATE CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
IN 2022, COMMUNITY CONTRIBUTIONS, LARGE GRANTS, AND PROCEEDS FROM AN ANNUAL FUNDRAISER WERE RECEIVED AND USED TO SUPPORT AN EDUCATIONAL SUMMIT MEETING HELD IN SEPTEMBER 2022 FOR PATIENTS AND LOVED ONES DEALING WITH CASTLEMAN'S DISEASE. THE PURPOSE OF THIS MEETING WAS TO PROVIDE SUPPORTIVE RESOURCES, UP TO DATE INFORMATION ABOUT THE DISEASE, CURRENT RESEARCH AND TREATMENT OPTIONS AND WAYS TO SUPPORT THE EFFORTS IN THESE AREAS. FUNDS WERE EXPENDED FOR PROMOTION, PATIENT LITERATURE, LODGING, TRAVEL AND OTHER RELATED EXPENSES.TO SUPPORT THE ONGOING RESEARCH FOR CASTLEMAN'S DISEASE CAUSE AND TREATMENT:IN 2022, CASH CONTRIBUTIONS TOTALING $136,405 WERE MADE TO THE UNIVERSITY OF PENNSYLVANIA, ELSE CARE CARENITY IN PARIS, FRANCE AND THE UPLIFTING ATHLETES ORGANIZATION. THESE CASH CONTRIBUTIONS WERE MADE TO FUND FURTHER RESEARCH IN CASTLEMAN'S DISEASE. IN 2022 CASH EXPENDITURES OF $289,489 WERE MADE TO COVER CONSULTING FEES, PHYSICIAN EDUCATION, PATIENT EDUCATION AND MAINTAIN A DATABASE FOR RESEARCH TEAMS INVOLVED IN VARIOUS AREAS OF CASTLEMAN'S DISEASE RESEARCH. THESE RESEARCH STUDIES OFFER PROMISE TO UNDERSTAND THE CASTLEMAN'S DISEASE MECHANISMS AND PROVIDE INSIGHTS FOR DEVELOPMENT OF PERSONALIZED THERAPIES.IN 2023, FURTHER COMMUNITY CONTRIBUTION SOLICITATIONS AND FUNDRAISING EVENTS ARE PLANNED SO THAT MORE MONEY IS AVAILABLE TO FURTHER FUND THE EDUCATION, RESEARCH, CAUSE AND CURE OF CASTLEMAN'S DISEASE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Katherine Haeusel Director | Trustee | 0 | $0 |
Kevin Silk Director | Trustee | 0 | $0 |
Bette Jacobs Director | Trustee | 0 | $0 |
Peter Buckman Director | Trustee | 0 | $0 |
Tim Huval Director | Trustee | 0 | $0 |
Charlyn Pacheco Secretary | Officer | 0 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $144,966 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $788,743 |
| Noncash contributions included in lines 1a–1f | $26,426 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $933,709 |
| Total Program Service Revenue | $0 |
| Investment income | $10,311 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | -$45,348 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $898,672 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $89,605 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $46,800 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $1,737 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $2,172 |
| Office expenses | $0 |
| Information technology | $1,584 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $6,899 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $65,043 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,500 |
| All other expenses | $12,786 |
| Total functional expenses | $442,509 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $361,449 |
| Savings and temporary cash investments | $2,159,572 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,521,021 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $2,521,021 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,521,021 |
Grants Awarded
Over the last fiscal year, Castleman Disease Collaborative Network has awarded $137,200 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
ELSE CARE CARENITY PURPOSE: MEDICAL RESEARCH | $46,800 |
UNIVERSITY OF PENNSYLVANIA PURPOSE: MEDICAL RESEARCH | $80,400 |
UPLIFTING ATHLETES INC PURPOSE: MEDICAL RESEARCH | $10,000 |