Treatments For Epilepsy And Symptoms Of Slc13a5 Foundation
- Assets
- $459.8k
- Revenue
- $503.6k
- Investments
- $0.0
- Employees
- 3
- Location
- Menlo Park, CA
- Founding
- 04/2015
- Data as of
- 12/2023
- EIN
- 47-3108868
Organization Overview
Treatments For Epilepsy And Symptoms Of Slc13a5 Foundation, operating under the name cont SLC13A5 Foundation, is located in Menlo Park, CA. The organization was established in 2015. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. As of 12/2023, cont SLC13A5 Foundation employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. cont SLC13A5 Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, cont SLC13A5 Foundation generated $503.6k in total revenue. This organization has experienced exceptional growth, as over the past 8 years, it has increased revenue by an average of 11.5% each year . All expenses for the organization totaled $497.7k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, cont SLC13A5 Foundation has awarded 21 individual grants totaling $1,160,303. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TESS RESEARCH FOUNDATIONS GOAL IS TO FIND BETTER TREATMENT OPTIONS FOR SLC13A5 DEFICIENCY, (CONTINUED ON SCH O)
Describe the Organization's Program Activity:
Part 3 - Line 4a
FUNDING SCIENTIFIC RESEARCH - WE CONTINUED OUR IN-PERSON, DIGITAL AND REMOTE NATURAL HISTORY STUDIES FOR SLC13A5 WITH CIITIZEN CORPORATION, BROWN UNIVERSITY, UT SOUTHWESTERN, AND STANFORD UNIVERSITY. THESE STUDIES ARE KEY FOR OUR CLINICAL TRIAL READINESS. WE ALSO FUNDED BASIC AND TRANSLATIONAL RESEARCH.
EDUCATION, FAMILY SUPPORT AND AWARENESS - WE ARE THE ONLY ORGANIZATION DEDICATED TO SUPPORTING FAMILIES WITH SLC13A5 EPILEPSY AND RAISING AWARENESS ABOUT THE DISEASE. OUR ONGOING PROGRAM INCLUDES SHARING UPDATES ABOUT THE LATEST RESEARCH FINDINGS AND CONNECTING AND EMPOWERING FAMILIES SO THEY CAN SHARE THEIR EXPERIENCES AND SUPPORT ONE ANOTHER. WE HAVE AN ANNUAL AWARENESS DAY (MAY 13), HOST MONTHLY VIRTUAL SUPPORT CALLS, MAINTAIN A WEBSITE, AND SEND A MONTHLY ELECTRONIC NEWSLETTER.
CONFERENCE - WE CONTINUE TO CREATE A PATIENT-CENTERED NETWORK OF DOCTORS, RESEARCHERS, CLINICIANS, AND FAMILIES. WE ATTEND NEUROLOGY, EPILEPSY, AND DRUG DEVELOPMENT CONFERENCES AND HOST RESEARCH ROUNDTABLES TO BUILD PARTNERSHIPS AND SHARE CURRENT RESEARCH.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Adam Alberti Director | Trustee | 2 | $0 |
Lee Scheuer Director | Trustee | 3 | $0 |
Robert Wassman Director | Trustee | 3 | $0 |
Courtney Alberti Director | Trustee | 2 | $0 |
Kimberly Nye Chair & Executive Director | OfficerTrustee | 40 | $0 |
Michael Black Vice Chair As Of 51 | OfficerTrustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $102,853 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $330,469 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $433,322 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $68,686 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $503,647 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $152,845 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $253,102 |
| Pension plan accruals and contributions | $4,842 |
| Other employee benefits | $155 |
| Payroll taxes | $19,065 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $4,992 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $12,074 |
| Office expenses | $4,859 |
| Information technology | $9,444 |
| Royalties | $0 |
| Occupancy | $4,312 |
| Travel | $20,212 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $6,715 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $761 |
| All other expenses | $4,309 |
| Total functional expenses | $497,687 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $390,098 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $67,815 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,863 |
| Total assets | $459,776 |
| Accounts payable and accrued expenses | $11,812 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $11,812 |
| Net assets without donor restrictions | $447,964 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $459,776 |
Grants Awarded
Over the last fiscal year, Treatments For Epilepsy And Symptoms Of Slc13a5 Foundation has awarded $152,331 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
STANFORD UNIVERSITY PURPOSE: SLC13A5 Natural History Study | $139,654 |
THE JACKSON LABORATORY PURPOSE: Research | $12,677 |