Treatments For Epilepsy And Symptoms Of Slc13a5 Foundation
- Assets
- $717.9k
- Revenue
- $381.3k
- Investments
- $0.0
- Employees
- 3
- Location
- Menlo Park, CA
- Founding
- 04/2015
- Data as of
- 12/2021
- EIN
- 47-3108868
Organization Overview
Treatments For Epilepsy And Symptoms Of Slc13a5 Foundation, operating under the name cont SLC13A5 Foundation, is located in Menlo Park, CA. The organization was established in 2015. According to its NTEE Classification (H12) the organization is classified as: Fund Raising & Fund Distribution, under the broad grouping of Medical Research and related organizations. As of 12/2021, cont SLC13A5 Foundation employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. cont SLC13A5 Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, cont SLC13A5 Foundation generated $381.3k in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 37.2% each year . All expenses for the organization totaled $466.8k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, cont SLC13A5 Foundation has awarded 13 individual grants totaling $671,948. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TESS RESEARCH FOUNDATIONS GOAL IS TO FIND BETTER TREATMENT OPTIONS FOR SLC13A5 DEFICIENCY, (CONTINUED ON SCH O)
Describe the Organization's Program Activity:
Part 3 - Line 4a
FUNDING SCIENTIFIC RESEARCH - WE CONTINUED A DIGITAL AND REMOTE NATURAL HISTORY STUDY FOR SLC13A5 WITH CITIZEN CORPORATION AND STANFORD UNIVERSITY. THIS STUDY IS KEY FOR OUR CLINICAL TRIAL READINESS. WE ALSO FUNDED BASIC AND TRANSLATIONAL RESEARCH IN THE US AND EUROPE.
EDUCATION, FAMILY SUPPORT AND AWARENESS - WE HELPED MORE FAMILIES FIND AN EARLY AND ACCURATE DIAGNOSIS. WE PUBLISHED BEST BETS FOR SEIZURE TREATMENTS, FUNDED KEY RESEARCH TO BETTER UNDERSTAND THE DISEASE, AND WE HAVE OUR FIRST GENE THERAPY DRUG IN DEVELOPMENT.
CONFERENCE - WE CONTINUE TO CREATE A PATIENT-CENTERED NETWORK OF DOCTORS, RESEARCHERS, CLINICIANS AND FAMILIES. WE HOSTED AN INTERNATIONAL RESEARCH ROUNDTABLE AND ATTENDED PROFESSIONAL CONFERENCES IN THE EPILEPSY A ND RARE DISEASE SPACE. WE REMAIN THE ONLY ORGANIZATION IN THE WORLD SOLELY DEDICATED TO THIS DISORDER.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Kimberly Nye President | OfficerTrustee | 40 | $0 |
Paula Gani Secretary | OfficerTrustee | 5 | $0 |
Kevin Mcdonnell Treasurer | OfficerTrustee | 3 | $0 |
Lee Scheuer Director | Trustee | 3 | $0 |
Robert Wassman Director | Trustee | 3 | $0 |
Dennis Mcdonnell Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $15,000 |
| All other contributions, gifts, grants, and similar amounts not included above | $366,268 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $381,268 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $381,268 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $133,006 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $112,032 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $100,994 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $8,423 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $8,250 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $41,707 |
| Advertising and promotion | $2,322 |
| Office expenses | $13,569 |
| Information technology | $18,021 |
| Royalties | $0 |
| Occupancy | $10,072 |
| Travel | $840 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $14,672 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,029 |
| All other expenses | $1,885 |
| Total functional expenses | $466,822 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $691,851 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $24,180 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,863 |
| Total assets | $717,894 |
| Accounts payable and accrued expenses | $18,273 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $18,273 |
| Net assets without donor restrictions | $699,621 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $717,894 |
Grants Awarded
Over the last fiscal year, Treatments For Epilepsy And Symptoms Of Slc13a5 Foundation has awarded $133,006 in support to 2 organizations.
| Grant Recipient | Amount |
|---|---|
NEW YORK UNIVERSITY SCHOOL OF MEDIC PURPOSE: Research | $118,975 |
Redwood City, CA PURPOSE: Research | $14,031 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Treatments For Epilepsy And Symptoms Of Slc13a5 Foundation has recieved totaling $72,642.
| Awarding Organization | Amount |
|---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $56,000 |
William & Flora Hewlett Foundation Menlo Park, CA PURPOSE: MATCHING GIFT OF STAFF AND BOARD MEMBERS | $16,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $642 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Wellcome Leap Inc Culver City, CA | $553,318,259 | $346,259,833 |
Wings For Life Usa - Spinal Cord Research Foundation Inc Santa Monica, CA | $6,609,538 | $4,978,629 |
Foundation For Research Carson City, NV | $164,068,419 | $4,402,154 |
Runx1 Foundation Santa Barbara, CA | $3,085,064 | $5,336,089 |
Psfc Santa Cruz, CA | $8,888,871 | $6,472,995 |
Kure It Inc Irvine, CA | $825,809 | $1,330,675 |
Harold Pump Foundation Sherman Oaks, CA | $580,879 | $1,396,694 |
The Weil Foundation Tucson, AZ | $2,417,436 | $1,895,509 |
Cancer Awareness Through Research And Education Association Carefree, AZ | $148,453 | $969,135 |
Shoot For A Cure North Hollywood, CA | $399,457 | $878,758 |
Arrowhead Regional Medical Center Foundation Colton, CA | $2,669,831 | $937,166 |
Castleman Disease Collaborative Network Paso Robles, CA | $2,064,859 | $788,631 |