Coalition For Usher Syndrome Research
- Assets
- $287.0k
- Revenue
- $502.9k
- Investments
- $0.0
- Employees
- 3
- Location
- Westford, MA
- Founding
- 07/2010
- Data as of
- 12/2022
- EIN
- 26-4560897
Organization Overview
Coalition For Usher Syndrome Research is located in Westford, MA. The organization was established in 2010. According to its NTEE Classification (E86) the organization is classified as: Patient & Family Support, under the broad grouping of Health Care and related organizations. As of 12/2022, Coalition For Usher Syndrome Research employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Coalition For Usher Syndrome Research is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Coalition For Usher Syndrome Research generated $502.9k in total revenue. This organization has experienced exceptional growth, as over the past 8 years, it has increased revenue by an average of 14.5% each year . All expenses for the organization totaled $415.8k during the year ending 12/2022. While expenses have increased by 16.0% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO RAISE AWARENESS AND ACCELERATE RESEARCH FOR THE MOST COMMON GENETIC CAUSE OF COMBINED DEAFNESS AND BLINDNESS, WHILE PROVIDING INFORMATION AND SUPPORT TO INDIVIDUALS WITH USHER SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
THE ORGANIZATION RAISES AWARENESS AND ACCELERATES RESEARCH FOR THE MOST COMMON CAUSE OF COMBINED DEAFNESS AND BLINDNES, WHILE PROVIDING INFORMATION AND SUPPORT TO INDIVIDUALS WITH USHER SYNDROME. THIS IS ACCOMPLISHED THROUGH THEIR CONNECTIONS CONFERENCE WHERE ATTENDEES HAVE THE OPPORTUNITY TO LEARN THE LATEST ON DEVELOPING TREATMENTS WHILE CONNECTING WITH OTHER AFFECTED INDIVIDUALS AND FAMILIES. THE ORGANIZATION ALSO CONNECTS OTHERS AFFECTED BY USHER SYNDROME TO HELP PROVIDE A COMMUNITY FORM THEM AND THEIR FAMILIES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Lanya Mckittrick PHD President | OfficerTrustee | 1 | $0 |
David Alexander Director | Trustee | 1 | $0 |
Danay Trest Director | Trustee | 1 | $0 |
Kathy Anamisis Director | Trustee | 1 | $0 |
Kelley Stidd Director | Trustee | 1 | $0 |
Margaret Kenna MD MPH Director | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $393,749 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $393,749 |
| Total Program Service Revenue | $109,132 |
| Investment income | $2 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $502,883 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $404 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $204,532 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $5,554 |
| Payroll taxes | $5,494 |
| Fees for services: Management | $5,770 |
| Fees for services: Legal | $188 |
| Fees for services: Accounting | $2,128 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $400 |
| Advertising and promotion | $1,899 |
| Office expenses | $5,678 |
| Information technology | $944 |
| Royalties | $0 |
| Occupancy | $913 |
| Travel | $4,606 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,502 |
| All other expenses | $0 |
| Total functional expenses | $415,751 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $253,348 |
| Savings and temporary cash investments | $20,803 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $9,850 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $2,984 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $286,985 |
| Accounts payable and accrued expenses | $3,764 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $3,764 |
| Net assets without donor restrictions | $283,221 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $286,985 |