Coalition For Usher Syndrome Research is located in Westford, MA. The organization was established in 2010. According to its NTEE Classification (E86) the organization is classified as: Patient & Family Support, under the broad grouping of Health Care and related organizations. As of 12/2021, Coalition For Usher Syndrome Research employed 3 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Coalition For Usher Syndrome Research is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Coalition For Usher Syndrome Research generated $189.4k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 1.6% each year. All expenses for the organization totaled $191.9k during the year ending 12/2021. While expenses have increased by 6.1% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2021
Describe the Organization's Program Activity:
Part 3
RAISE AWARENESS AND ACCELERATE RESEARCH FOR THE MOST COMMON CAUSE OF COMBINED DEAFNESS AND BLINDNESS. PROVIDE INFORMATION AND SUPPORT TO INDIVIDUALS AND FAMILIES AFFECTED BY USHER SYNDROME.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Krista Vasi Secretary / Executive Director | 35 | $72,500 | |
David Alexander Director | 2 | $0 | |
Elaine Trest Director | 2 | $0 | |
Kathleen Thompson PHD Director | 2 | $0 | |
Kelley Stidd Director | 2 | $0 | |
Monte Westerfield PHD Director | 2 | $0 |
Statement of Revenue | |
---|---|
Total Revenue from Contributions, Gifts, Grants & Similar | $61,265 |
Total Program Service Revenue | $128,110 |
Membership dues | $0 |
Investment income | $2 |
Gain or Loss | $0 |
Net Income from Gaming & Fundraising | $0 |
Other Revenue | $0 |
Total Revenue | $189,377 |
Statement of Expenses | |
---|---|
Grants and similar amounts paid | $0 |
Benefits paid to or for members | $0 |
Salaries, other compensation, and employee benefits | $92,436 |
Professional fees and other payments to independent contractors | $6,498 |
Occupancy, rent, utilities, and maintenance | $8,535 |
Printing, publications, postage, and shipping | $456 |
Other expenses | $83,973 |
Total expenses | $191,898 |
Balance Sheet | |
---|---|
Cash, savings, and investments | $187,429 |
Other assets | $0 |
Total assets | $197,279 |
Total liabilities | $1,190 |
Net assets or fund balances | $196,089 |
Over the last fiscal year, we have identified 2 grants that Coalition For Usher Syndrome Research has recieved totaling $17,600.
Awarding Organization | Amount |
---|---|
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $17,500 |
The Duke Energy Foundation Charlotte, NC PURPOSE: MATCHING GIFTS | $100 |
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