Als Worldwide
- Assets
- $46.8k
- Revenue
- $118.4k
- Investments
- $0.0
- Employees
- 0
- Location
- Milwaukee, WI
- Founding
- 05/2009
- Data as of
- 12/2021
- EIN
- 26-3632267
Organization Overview
Als Worldwide is located in Milwaukee, WI. The organization was established in 2009. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Als Worldwide is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Als Worldwide generated $118.4k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (27.4%) each year. All expenses for the organization totaled $83.0k during the year ending 12/2021. As we would expect to see with falling revenues, expenses have declined by (30.9%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO PROVIDE DIRECT & INDIRECT FINANCIAL & SERVICE ASSISTANCE TO OR FOR THE BENEFIT OF ALS PATIENTS & THEIR FAMILIES IN THREE MAJOR AREAS: SCIENTIFIC RESEARCH INTERPRETATION, INDIVIDUAL PATIENT ADVOCACY, & COMMUNITY AWARENESS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
ALS WORLDWIDE, INC. ADVANCES THE MOST PROMISING RESEARCH AND BRINGS GUIDANCE, COMPASSION AND HOPE TO THOUSANDS OF ALS/MND PATIENTS AND THEIR LOVED ONES IN MORE THAN 150 COUNTRIES. ALS WORLDWIDE FILLS A UNIQUE NICHE FOR THOUSANDS OF DESPERATE PEOPLE WHO HAVE BEEN TOLD NOTHING CAN BE DONE TO HELP THEM. ALS WORLDWIDE PROVIDES FREE PERSONALIZED SUPPORT TO PEOPLE LIVING WITH ALS/MND VIA VIDEOCONFERENCE, EMAIL, PHONE, IN-PERSON VISITS AND ONLINE RESOURCES, INCLUDING PODCAST, VIDEOS, AND THE ALS WORLDWIDE PROTOCOL. ALS WORLDWIDE HELPS PEOPLE UNDERSTAND AND COPE WITH AN ALS/MND DIAGNOSIS, EXPLAIN TREATMENT OPTIONS TO BETTER MANAGE SYMPTOMS, AND PROVIDE EMOTIONAL SUPPORT AND GUIDANCE ON A WIDE VARIETY OF TOPICS TO IMPROVE QUALITY OF LIFE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Barbara L Byer Co-Executive Director/secr | OfficerTrustee | 40 | $0 |
Stephen B Byer Co-Executive Director/trea | OfficerTrustee | 40 | $0 |
Thomas J Basting Sr Board Member | Trustee | 0.5 | $0 |
Matthew Byer Board Member | Trustee | 0.5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $59,333 |
| All other contributions, gifts, grants, and similar amounts not included above | $59,041 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $118,374 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $118,374 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $13,726 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $500 |
| Advertising and promotion | $199 |
| Office expenses | $6,163 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $48,000 |
| Travel | $10,060 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $366 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $3,037 |
| Insurance | $0 |
| All other expenses | $169 |
| Total functional expenses | $82,988 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $36,978 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $3,739 |
| Net Land, buildings, and equipment | $6,081 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $46,798 |
| Accounts payable and accrued expenses | $538 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $457 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $995 |
| Net assets without donor restrictions | $45,803 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $46,798 |
Grants Awarded
Over the last fiscal year, Als Worldwide has awarded $225,013 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Charlottesville, VA PURPOSE: Microneurotrophin Research | $144,318 |
Richmond, VA PURPOSE: Microneurotrophin Research | $44,027 |
Somerville, MA PURPOSE: Microneurotrophin Research | $36,668 |
Grants Recieved
Over the last fiscal year, we have identified 3 grants that Als Worldwide has recieved totaling $2,718.
| Awarding Organization | Amount |
|---|---|
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $1,693 |
A C Israel Foundation Inc New York, NY PURPOSE: GENERAL SUPPORT | $1,000 |
Celanese Foundation Irving, TX PURPOSE: CHARITABLE CONTRIBUTION | $25 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Amyotrophic Lateral Sclerosis Association St Paul, MN | $6,104,152 | $4,572,143 |
Broadscope Disability Services Inc Greenfield, WI | $1,648,437 | $3,909,521 |
Les Turner Amyotrophic Lateral Sclerosis Foundation Skokie, IL | $3,335,798 | $3,120,220 |
Amyotrophic Lateral Sclerosis Association Chicago, IL | $1,432,497 | $1,950,829 |
Michigan Osteopathic Association Okemos, MI | $3,997,317 | $2,072,035 |
Never Surrender Inc Hermantown, MN | $900,085 | $1,724,534 |
United Council For Neurologic Subspecialties Minneapolis, MN | $2,634,255 | $1,432,142 |
Arthroscopy Association Of North America Education Foundation Rosemont, IL | $16,543,377 | $879,762 |
American Academy For Cerebral Palsy And Development Medicine Milwaukee, WI | $3,159,683 | $1,129,067 |
Als Of Michigan Inc Southfield, MI | $1,104,417 | $794,628 |
American Society Of Neuroimaging Inc Roseville, MN | $217,349 | $577,510 |
Peripheral Nerve Society Roseville, MN | $6,858,410 | $1,135,903 |