Mary M Gooley Hemophilia Center Inc
- Assets
- $28.7m
- Revenue
- $25.4m
- Investments
- $0.0
- Employees
- 11
- Location
- Rochester, NY
- Founding
- 05/1983
- Data as of
- 12/2023
- EIN
- 16-0836536
Organization Overview
Mary M Gooley Hemophilia Center Inc is located in Rochester, NY. The organization was established in 1983. According to its NTEE Classification (E30) the organization is classified as: Ambulatory & Primary Health Care, under the broad grouping of Health Care and related organizations. As of 12/2023, Mary M Gooley Hemophilia Center Inc employed 11 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Mary M Gooley Hemophilia Center Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Mary M Gooley Hemophilia Center Inc generated $25.4m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 11.0% each year . All expenses for the organization totaled $19.9m during the year ending 12/2023. While expenses have increased by 7.8% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE TREATMENT AND CURE OF HEMOPHILIA AND OTHER RELATED BLOOD DISORDERS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
HOME INFUSION PROGRAM AND HEMOPHILIA COMPREHENSIVE CARE: THE CENTER HAS APPROXIMATELY 399 BLEEDING DISORDER PATIENTS ON ITS ACTIVE CASELOAD. IN 2023, 231 UNIQUE PATIENTS WITH HEMOPHILIA, VON WILLEBRAND DISEASE AND OTHER RARE CLOTTING DEFICIENCIES WERE EVALUATED AND TREATED. 60 PATIENTS WITH MODERATE AND SEVERE HEMOPHILIA ATTEND SPECIALIZED COMPREHENSIVE CARE CLINICS AT LEAST ONCE EACH YEAR, RECEIVING CONSULTATION FROM AN ONSITE HEMATOLOGIST, NURSE COORDINATOR, SOCIAL WORKER, PHYSICAL THERAPIST, ORTHOPEDIC SURGEON AND DENTIST. THE CENTER HAS AN ON-SITE SPECIALTY PHARMACY THAT PROVIDES CLOTTING FACTOR TO 53 HEMOPHILIA PATIENTS VIA OUR HOME INFUSION PROGRAM.
REVENUES AND EXPENSES FOR NATIONAL HEMOPHILIA FOUNDATION CHAPTER ACTIVITIES.
HEMOCHROMATOSIS AND IRON OVERLOAD DISORDER ACTIVITIES: THE CENTER PROVIDES SPECIALIZED EVALUATION AND CARE FOR PATIENTS WITH HEREDITARY HEMOCHROMATOSIS AND IRON OVERLOAD. TYPICALLY, PATIENTS WITH THESE CONDITIONS RECEIVE REGULAR THERAPEUTIC PHLEBOTOMIES TO DIMINISH EXCESS IRON STORED IN THEIR BODIES, DIMINISHING RISK OF PERMANENT ORGAN DAMAGE. THE CENTER SERVES APPROXIMATELY 230 HEMOCHROMATOSIS/IOD PATIENTS.
BLEEDING DISORDER AND HEMOCHROMATOSIS RESEARCH: THE CENTER HAS BEEN ACTIVELY INVOLVED IN RESEARCH AND CLINICAL TRIALS IN AN EFFORT TO CULTIVATE ADVANCES IN HEMOPHILIA, VON WILLEBRAND DISEASE AND HEMOCHROMATOSIS. IN 2023, THE CENTER PARTICIPATED IN 4 OPEN RESEARCH STUDIES ADDRESSING A WIDE RANGE OF CLINICAL AREAS AND OUTCOMES. IN ADDITION, THE CENTER WORKS CLOSELY WITH THE CENTER FOR DISEASE CONTROL (CDC) AND THE AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK (ATHN) REGISTRIES, COLLECTING DATA AS PART OF A NATIONAL EFFORT TO BETTER UNDERSTAND AND CARE FOR RARE BLEEDING DISORDERS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Akua Asante MD Board Member | Trustee | 1 | $0 |
Khari Sabb Board Member | Trustee | 1 | $0 |
Ronald Sham MD Board Member | Trustee | 1 | $0 |
Samantha Vitagliano DMD Chairperson | OfficerTrustee | 1 | $1,000 |
Dan Gurell Treasurer | OfficerTrustee | 1 | $0 |
Christine Hay MD Board Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $6,328 |
| Membership dues | $0 |
| Fundraising events | $17,241 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $70,250 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $93,819 |
| Total Program Service Revenue | $24,630,913 |
| Investment income | $465,900 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $168,474 |
| Net Income from Fundraising Events | $2,993 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $25,362,099 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $562,470 |
| Compensation of current officers, directors, key employees. | $280,562 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $423,680 |
| Pension plan accruals and contributions | $41,974 |
| Other employee benefits | $39,113 |
| Payroll taxes | $65,822 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $7,190 |
| Fees for services: Accounting | $21,500 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $356,617 |
| Advertising and promotion | $0 |
| Office expenses | $41,704 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $143,252 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $62,708 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $58,756 |
| Insurance | $44,005 |
| All other expenses | $0 |
| Total functional expenses | $19,865,599 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $45,000 |
| Savings and temporary cash investments | $2,089,913 |
| Pledges and grants receivable | $7,223 |
| Accounts receivable, net | $2,050,201 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $859,552 |
| Prepaid expenses and deferred charges | $262,780 |
| Net Land, buildings, and equipment | $288,951 |
| Investments—publicly traded securities | $21,586,096 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,515,572 |
| Total assets | $28,705,288 |
| Accounts payable and accrued expenses | $1,125,926 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $2,221,829 |
| Total liabilities | $3,347,755 |
| Net assets without donor restrictions | $25,255,705 |
| Net assets with donor restrictions | $101,828 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $28,705,288 |