National Association For Pseudoxanthoma Elasticum Inc
- Assets
- $413.5k
- Revenue
- $580.0
- Investments
- $0.0
- Employees
- 0
- Location
- Hawley, PA
- Founding
- 04/1994
- Data as of
- 06/2022
- EIN
- 14-1704224
Organization Overview
National Association For Pseudoxanthoma Elasticum Inc is located in Hawley, PA. The organization was established in 1994. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Association For Pseudoxanthoma Elasticum Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, National Association For Pseudoxanthoma Elasticum Inc generated $580.0 in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (17.1%) each year. All expenses for the organization totaled $23.7k during the year ending 06/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990PF
Mission & Program ActivityExcerpts From the 990PF Filing
TAX YEAR
2022
Describe the Organization's Program Activity:
Part 3 - Line 4a
PARTICIPATION IN CLASS ACTION LAWSUIT AGAINST AMERICAN MEDICAL ASSOCIATION, OTHER MEDICAL GROUPS, AND PATIENT ADVOCACY GROUPS IN OPPOSITION TO FEDERAL GOVERNMENT PATENTS ON HUMAN GENES RESULTING IN PROHIBITION OF PATENTING "NATURALLY OCCURRING HUMAN GENES". PARTICIPATED IN 'RARE DISEASE CONFERENCE', FUNDRAISING FOR VISION RESEARCH. OFFERS COUNSELING OF PATIENTS WITH THE DISEASE VIA TELEPHONE, MAIL, AND EMAIL. THE GROUP OPERATES A WEBSITE THAT OFFERS THE GENERAL PUBLIC INFORMATION ON THE DISEASE AND RESOURCES FOR THOSE AFFLICTED AS WELL AS A MEDICAL ADVISORY BOARD OF DOCTORS SO PATIENTS CAN BE REFERRED TO LOCAL DOCTORS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Lenore Seeuwen President | 0 | $0 | |
Blaine Mccallister VP & CFO | 0 | $0 | |
Linda Zeug Secretary | 0 | $0 | |
Carol Daugherty Director | 0 | $0 | |
Grant Zeug Director | 0 | $0 | |
Kelly Jackson Director | 0 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Contributions, Gifts, Grants & Similar | $0 |
| Interest on Savings | $276 |
| Dividends & Interest | $304 |
| Net Rental Income | $0 |
| Net Gain on Sale of Assets | $0 |
| Capital Gain Net Income | $0 |
| Net ST Capital Gain | $0 |
| Income Modifications | $0 |
| Profit on Inventory Sales | $0 |
| Other Income | $0 |
| Total Revenue | $580 |
| Statement of Expenses | |
|---|---|
| Compensation of officers, directors, trustees, etc | $0 |
| Other employee salaries and wages | $0 |
| Pension plans, employee benefits | $0 |
| Interest | $0 |
| Taxes | $51 |
| Depreciation | $0 |
| Occupancy | $0 |
| Travel, conferences, and meetings | $0 |
| Printing and publications | $0 |
| Other expenses | $100 |
| Total operating and administrative expenses | $651 |
| Contributions, gifts, grants paid | $23,000 |
| Total expenses and disbursements | $23,651 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $407,429 |
| Net Accounts receivable | $0 |
| Net Pledges Receivable | $0 |
| Grants receivable | $0 |
| Receivables from Officers, Directors, or Controlling Persons | $0 |
| Net other notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Investments - land, buildings, equipment | $0 |
| Investments—mortgage loans | $0 |
| Investments—other | $0 |
| Net Land, buildings, and equipment | $0 |
| Other assets | $6,108 |
| Total assets | $413,537 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Mortgages and other notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
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