Specifically Named Diseases Research organizations account for 295 organizations in the United States. In aggregate, these organizations generate $331m in revenue and employ 625.0 individuals.
295
Active Organizations
$330.6 Million
Annual Revenue
625
Employees in Sector
$615.8 Million
Controlled Assets
Assets: $190m
Revenue: $110m
Employees: 97
MISSION:
THE DEVELOPMENT AND IMPLEMENTATION OF NEW, LOW COST DIAGNOSTICS FOR INFECTIOUS DISEASES FOR USE IN LOW- RESOURCE AREAS.
New York, NY
Assets: $188m
Revenue: $59m
Employees: 54
MISSION:
TO ACCELERATE THE DISCOVERY & DEVELOPMENT OF NEW DRUGS TO FACILITATE THE CONTROL OF TUBERCULOSIS THROUGHOUT THE WORLD AND THE ACCESSIBILITY OF THESE DRUGS TO THE GLOBAL COMMUNITY.
Miami, FL
Assets: $52m
Revenue: $50m
Employees: 171
MISSION:
MAKE LIFE BETTER FOR PEOPLE WITH PARKINSON'S DISEASE BY IMPROVING CARE AND ADVANCING RESEARCH TOWARD A CURE.
New York, NY
Assets: $36m
Revenue: $6m
Employees: 9
MISSION:
THE FOUNDATION IS DEDICATED TO THE EARLY DIAGNOSIS, TREATMENT AND ULTIMATE CURE OF PRIMARY IMMUNODEFICIENCY DISEASES. THE FOUNDATIONS PRIMARY MISSION IS SUPPORTING BASIC AND CLINICAL RESEARCH, PHYSICIAN EDUCATION, PATIENT SUPPORT, PUBLIC AWARENESS, ADVOCACY AND NEWBORN SCREENING. THE FOUNDATION GENERATES SUPPORT THROUGH CONTRIBUTIONS FROM THE GENERAL PUBLIC, INDUSTRY, AND GOVERNMENT AGENCIES. THE FOUNDATION SPONSORS PHYSICIAN SYMPOSIA, CONFERENCES, EDUCATIONAL EVENTS FOR PHYSICIANS AND PATIENTS, AND AWARENESS PROGRAMS TO REACH THE PUBLIC.
Watertown, MA
Assets: $19m
Revenue: $12m
Employees: 48
MISSION:
WE ARE COMMITTED TO CREATING AND LEADING A TRANSPARENT COLLABORATIVE RESEARCH PROCESS THAT INVOLVES ALS PATIENTS TODAY AND HONORS THOSE WHOSE JOURNEY WITH THIS DISEASE HAS ENDED. WE ARE GUIDED BY PASSION, LOVE AND THE SPIRIT OF ENTREPRENEURSHIP UPON WHICH WE WERE FOUNDED.
Silver Spring, MD
Assets: $15m
Revenue: $16m
Employees: 11
MISSION:
The goal of this organization is to conduct research which can be used to improve the prevention, diagnosis and treatment of specifically named diseases and conditions.
Seattle, WA
Assets: $14m
Revenue: $13m
Employees: 65
MISSION:
DEVELOP VACCINES, ADJUVANTS, DIAGNOSTICS & DRUGS TO PREVENT, DETECT & TREAT INFECTIOUS DISEASES OF GLOBAL IMPORTANCE.
Columbia, SC
Assets: $10m
Revenue: $2m
Employees: 4
MISSION:
TO ADVOCATE FOR AND FUND RESEARCH DIRECTED TOWARDS A CURE OR TREATMENT OPTIONS FOR PATIENTS WITH SANFILIPPO SYNDROME
Irvine, CA
Assets: $10m
Revenue: $4m
Employees: 1
MISSION:
CRFS MISSION IS TO SUPPORT BENCH, CLINICAL AND TRANSLATIONAL RESEARCH TO FIND BETTER TREATMENTS AND A CURE FOR CYSTINOSIS. CRF IS DEDICATED TO FUNDING RESEARCH THAT WILL IMPROVE THE QUALITY OF LIFE FOR THOSE WITH CYSTINOSIS AND TO FIND A CURE FOR THIS DEVASTATING DISEASE.
Minneapolis, MN
Assets: $8m
Revenue: $3m
Employees: 15
MISSION:
PROVIDE MEDICAL-GRADE PORCINE ISLETS TO REPLACE THOSE LOST IN TYPE 1 DIABETES.
Lenexa, KS
Assets: $6m
Revenue: $3m
Employees: 3
MISSION:
TO PROVIDE GLOBAL EDUCATIONAL INFORMATION, SERVICES AND SUPPORT TO THOSE AFFECTED BY ESSENTIAL TREMOR, AND TO HEALTH CARE PROVIDERS, WHILE PROMOTING AND FUNDING ET RESEARCH.
Atchison, KS
Assets: $5m
Revenue: $1m
Employees: 11
MISSION:
The goal of this organization is to conduct research which can be used to improve the prevention, diagnosis and treatment of specifically named diseases and conditions.
Newton, MA
Assets: $5m
Revenue: $5m
Employees: 32
MISSION:
ADVANCING SCIENCE ON THE INFLUENCE OF ENVIRONMENTAL CHEMICALS ON WOMEN'S HEALTH, WITH A FOCUS ON BREAST CANCER PREVENTION.
Ames, IA
Assets: $5m
Revenue: $12k
Employees: 1
MISSION:
PROTECT AND ENHANCE THE HEALTH OF THE U.S. SWINE HERD THROUGH COORDINATED GLOBAL RESEARCH MONITORING, TARGETED RESEARCH INVESTMENTS THAT MINIMIZE THE IMPACT OF FUTURE DISEASE THREATS, AND ANALYSIS OF SWINE HEALTH DATA.
Beverly, MA
Assets: $4m
Revenue: $336k
MISSION:
TO BE THE PHILANTHROPIC ARM OF THE SOCIETY FOR SURGERY OF THE ALIMENTARY TRACT.
Irving, NY
Assets: $4m
Revenue: $282k
MISSION:
TO PROVIDE EASIER ACCESS FOR SENECA NATION MEMBERS TO KIDNEY SCREENINGS, DIALYSIS TREATMENT, ADOLESCENT TESTING, THE DEVELOPMENT OF EARLY DETECTION PROCEDURES
Fairfax, VA
Assets: $3m
Revenue: $3m
MISSION:
A GLOBAL NOT-FOR-PROFIT NETWORK OF PATIENT ASSOCIATIONS DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HEREDITARY ANGIOEDEMA (HAE) BY RAISING AWARENESS OF HAE, IMPROVING DIAGNOSIS TIME AND PROVIDING ADVOCACY FOR APPROVAL AND REIMBURSEMENT FOR LIFESAVING THERAPIES FOR IN
Chicago, IL
Assets: $3m
Revenue: $3m
MISSION:
TO FACILITATE RESEARCH FOR AND ACCESS TO INNOVATIVE BIOLOGICAL TREATMENTS FOR VETERANS AND ALL OTHERS WHO HAVE FACED TRAUMATIC EXPERIENCES AND ARE SUFFERING FROM POST-TRAUMATIC STRESS INJURIES.
Frsico, TX
Assets: $3m
Revenue: $984k
MISSION:
SLC6A1 CONNECT IS A PATIENT ADVOCACY GROUP DEDICATED TO IMPROVING THE LIVES OF CHILDREN AND FAMILIES AFFECTED BY THE SLC6A1 MUTATION. OUR FOCUS IS TO RAISE AWARENESS AND FUNDRAISING TO ADVANCE SCIENTIFIC RESEARCH THAT WILL ULTIMATELY RESULT IN A CURE.
Newton, MA
Assets: $2m
Revenue: $2m
Employees: 10
MISSION:
ACCELERATING THE DEVELOPMENT OF ADVANCED DIAGNOSTIC TOOLS AND EFFECTIVE TREATMENTS FOR SYSTEMIC AMYLOIDOSIS THROUGH COLLABORATION AND INNOVATION.