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Specifically Named Diseases Research

Nonprofit OrganizationsSpecifically Named Diseases Research

Specifically Named Diseases Research organizations account for 295 organizations in the United States. In aggregate, these organizations generate $331m in revenue and employ 625.0 individuals.

295

Active Organizations

$330.6 Million

Annual Revenue

625

Employees in Sector

$615.8 Million

Controlled Assets

Explore Nonprofits in the Specifically Named Diseases Research Sector

Foundation For Innovative New Diagnostics Find

Assets: $190m

Revenue: $110m

MISSION:

THE DEVELOPMENT AND IMPLEMENTATION OF NEW, LOW COST DIAGNOSTICS FOR INFECTIOUS DISEASES FOR USE IN LOW- RESOURCE AREAS.

Global Alliance For Tb Drug Development Inc

New York, NY

Assets: $188m

Revenue: $59m

MISSION:

TO ACCELERATE THE DISCOVERY & DEVELOPMENT OF NEW DRUGS TO FACILITATE THE CONTROL OF TUBERCULOSIS THROUGHOUT THE WORLD AND THE ACCESSIBILITY OF THESE DRUGS TO THE GLOBAL COMMUNITY.

Parkinsons Foundation Inc

Miami, FL

Assets: $52m

Revenue: $50m

MISSION:

MAKE LIFE BETTER FOR PEOPLE WITH PARKINSON'S DISEASE BY IMPROVING CARE AND ADVANCING RESEARCH TOWARD A CURE.

Jeffrey Modell Foundation Inc

New York, NY

Assets: $36m

Revenue: $6m

MISSION:

THE FOUNDATION IS DEDICATED TO THE EARLY DIAGNOSIS, TREATMENT AND ULTIMATE CURE OF PRIMARY IMMUNODEFICIENCY DISEASES. THE FOUNDATIONS PRIMARY MISSION IS SUPPORTING BASIC AND CLINICAL RESEARCH, PHYSICIAN EDUCATION, PATIENT SUPPORT, PUBLIC AWARENESS, ADVOCACY AND NEWBORN SCREENING. THE FOUNDATION GENERATES SUPPORT THROUGH CONTRIBUTIONS FROM THE GENERAL PUBLIC, INDUSTRY, AND GOVERNMENT AGENCIES. THE FOUNDATION SPONSORS PHYSICIAN SYMPOSIA, CONFERENCES, EDUCATIONAL EVENTS FOR PHYSICIANS AND PATIENTS, AND AWARENESS PROGRAMS TO REACH THE PUBLIC.

Als Therapy Development Foundation Inc

Watertown, MA

Assets: $19m

Revenue: $12m

MISSION:

WE ARE COMMITTED TO CREATING AND LEADING A TRANSPARENT COLLABORATIVE RESEARCH PROCESS THAT INVOLVES ALS PATIENTS TODAY AND HONORS THOSE WHOSE JOURNEY WITH THIS DISEASE HAS ENDED. WE ARE GUIDED BY PASSION, LOVE AND THE SPIRIT OF ENTREPRENEURSHIP UPON WHICH WE WERE FOUNDED.

Center For Disease Dynamics Economics & Policy Inc

Silver Spring, MD

Assets: $15m

Revenue: $16m

MISSION:

The goal of this organization is to conduct research which can be used to improve the prevention, diagnosis and treatment of specifically named diseases and conditions.

Infectious Disease Research Institute

Seattle, WA

Assets: $14m

Revenue: $13m

MISSION:

DEVELOP VACCINES, ADJUVANTS, DIAGNOSTICS & DRUGS TO PREVENT, DETECT & TREAT INFECTIOUS DISEASES OF GLOBAL IMPORTANCE.

Cure Sanfilippo Foundation

Columbia, SC

Assets: $10m

Revenue: $2m

MISSION:

TO ADVOCATE FOR AND FUND RESEARCH DIRECTED TOWARDS A CURE OR TREATMENT OPTIONS FOR PATIENTS WITH SANFILIPPO SYNDROME

Cystinosis Research Foundation

Irvine, CA

Assets: $10m

Revenue: $4m

MISSION:

CRFS MISSION IS TO SUPPORT BENCH, CLINICAL AND TRANSLATIONAL RESEARCH TO FIND BETTER TREATMENTS AND A CURE FOR CYSTINOSIS. CRF IS DEDICATED TO FUNDING RESEARCH THAT WILL IMPROVE THE QUALITY OF LIFE FOR THOSE WITH CYSTINOSIS AND TO FIND A CURE FOR THIS DEVASTATING DISEASE.

Spring Point Project

Minneapolis, MN

Assets: $8m

Revenue: $3m

MISSION:

PROVIDE MEDICAL-GRADE PORCINE ISLETS TO REPLACE THOSE LOST IN TYPE 1 DIABETES.

International Essential Tremor Foundation

Lenexa, KS

Assets: $6m

Revenue: $3m

MISSION:

TO PROVIDE GLOBAL EDUCATIONAL INFORMATION, SERVICES AND SUPPORT TO THOSE AFFECTED BY ESSENTIAL TREMOR, AND TO HEALTH CARE PROVIDERS, WHILE PROMOTING AND FUNDING ET RESEARCH.

Cray Medical Research Foundation

Atchison, KS

Assets: $5m

Revenue: $1m

MISSION:

The goal of this organization is to conduct research which can be used to improve the prevention, diagnosis and treatment of specifically named diseases and conditions.

Silent Spring Institute Inc

Newton, MA

Assets: $5m

Revenue: $5m

MISSION:

ADVANCING SCIENCE ON THE INFLUENCE OF ENVIRONMENTAL CHEMICALS ON WOMEN'S HEALTH, WITH A FOCUS ON BREAST CANCER PREVENTION.

Swine Health Information Center Inc

Ames, IA

Assets: $5m

Revenue: $12k

MISSION:

PROTECT AND ENHANCE THE HEALTH OF THE U.S. SWINE HERD THROUGH COORDINATED GLOBAL RESEARCH MONITORING, TARGETED RESEARCH INVESTMENTS THAT MINIMIZE THE IMPACT OF FUTURE DISEASE THREATS, AND ANALYSIS OF SWINE HEALTH DATA.

Society Of Surgery Of The Alimentary Tract Foundation

Beverly, MA

Assets: $4m

Revenue: $336k

MISSION:

TO BE THE PHILANTHROPIC ARM OF THE SOCIETY FOR SURGERY OF THE ALIMENTARY TRACT.

Seneca Diabetes Foundation

Irving, NY

Assets: $4m

Revenue: $282k

MISSION:

TO PROVIDE EASIER ACCESS FOR SENECA NATION MEMBERS TO KIDNEY SCREENINGS, DIALYSIS TREATMENT, ADOLESCENT TESTING, THE DEVELOPMENT OF EARLY DETECTION PROCEDURES

Hae International

Fairfax, VA

Assets: $3m

Revenue: $3m

MISSION:

A GLOBAL NOT-FOR-PROFIT NETWORK OF PATIENT ASSOCIATIONS DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HEREDITARY ANGIOEDEMA (HAE) BY RAISING AWARENESS OF HAE, IMPROVING DIAGNOSIS TIME AND PROVIDING ADVOCACY FOR APPROVAL AND REIMBURSEMENT FOR LIFESAVING THERAPIES FOR IN

Erase Ptsd Now

Chicago, IL

Assets: $3m

Revenue: $3m

MISSION:

TO FACILITATE RESEARCH FOR AND ACCESS TO INNOVATIVE BIOLOGICAL TREATMENTS FOR VETERANS AND ALL OTHERS WHO HAVE FACED TRAUMATIC EXPERIENCES AND ARE SUFFERING FROM POST-TRAUMATIC STRESS INJURIES.

Slc6a1 Connect

Frsico, TX

Assets: $3m

Revenue: $984k

MISSION:

SLC6A1 CONNECT IS A PATIENT ADVOCACY GROUP DEDICATED TO IMPROVING THE LIVES OF CHILDREN AND FAMILIES AFFECTED BY THE SLC6A1 MUTATION. OUR FOCUS IS TO RAISE AWARENESS AND FUNDRAISING TO ADVANCE SCIENTIFIC RESEARCH THAT WILL ULTIMATELY RESULT IN A CURE.

Amyloidosis Research Consortium Inc

Newton, MA

Assets: $2m

Revenue: $2m

MISSION:

ACCELERATING THE DEVELOPMENT OF ADVANCED DIAGNOSTIC TOOLS AND EFFECTIVE TREATMENTS FOR SYSTEMIC AMYLOIDOSIS THROUGH COLLABORATION AND INNOVATION.