Slc6a1 Connect
- Assets
- $2.8m
- Revenue
- $944.8k
- Investments
- $2.2m
- Employees
- 0
- Location
- Frisco, TX
- Founding
- 10/2018
- Data as of
- 12/2022
- EIN
- 83-1415567
Organization Overview
Slc6a1 Connect is located in Frisco, TX. The organization was established in 2018. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Slc6a1 Connect is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Slc6a1 Connect generated $944.8k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 4 years, the organization has seen revenues fall by an average of (17.9%) each year. All expenses for the organization totaled $957.1k during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
SLC6A1 CONNECT IS A PATIENT ADVOCACY GROUP DEDICATED TO IMPROVING THE LIVES OF CHILDREN AND FAMILIES AFFECTED BY THE SLC6A1 MUTATION. OUR FOCUS IS TO RAISE AWARENESS AND FUNDRAISING TO ADVANCE SCIENTIFIC RESEARCH THAT WILL ULTIMATELY RESULT IN A CURE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
SLC6A1 CONNECT IS A PATIENT ADVOCACY GROUP DEDICATED TO IMPROVING THE LIVES OF CHILDREN AND FAMILIES AFFECTED BY THE RARE NEUROLOGICAL DISEASE, SLC6A1. OUR FOCUS IS TO RAISE AWARENESS AND FUNDRAISING TO ADVANCE SCIENTIFIC RESEARCH THAT WILL ULTIMATELY RESULT IN A CURE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Amber Freed Founder/ceo | OfficerTrustee | 60 | $0 |
Kimberly Fry Vice President | OfficerTrustee | 25 | $0 |
Chantal Pittman Patient Advocate | OfficerTrustee | 1 | $0 |
Kelsey Piro Secretary/treasurer | OfficerTrustee | 5 | $0 |
Dan House Director Of Engagement | Trustee | 0 | $0 |
Dr Angela Mazur Advisor | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $917,577 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $917,577 |
| Total Program Service Revenue | $0 |
| Investment income | $27,196 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $944,773 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $957,076 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $568,919 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $2,233,645 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $2,802,564 |
| Accounts payable and accrued expenses | $90,000 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $30,000 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $120,000 |
| Net assets without donor restrictions | $2,682,564 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $2,802,564 |
Grants Awarded
Over the last fiscal year, Slc6a1 Connect has awarded $818,223 in support to 6 organizations.
| Grant Recipient | Amount |
|---|---|
NATIONWIDE CHILDREN'S HOSPITAL PURPOSE: THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $639,381 |
WEILL CORNELL MEDICAL CENTER PURPOSE: THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $70,000 |
CHILDREN'S HOSPITAL OF COLORADO PURPOSE: THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $30,000 |
UNIVERSITY OF TEXAS SOUTHWESTERN PURPOSE: THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $27,318 |
UNIVERSITY OF MONTANA PURPOSE: THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $26,524 |
GLADSTONE INSTITUTES PURPOSE: THE PURPOSE OF THE GRANTS ARE TO ADVANCE SCIENTIFIC AND CLINICAL EFFORTS TO ADVANCE THE CURE OF SLC6A1. | $25,000 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
New Mexico Cancer Care Alliance Albuquerque, NM | $1,178,582 | $1,431,885 |
Slc6a1 Connect Frisco, TX | $2,802,564 | $944,773 |
Monoamine Oxidase Deficiency Foundation Galveston, TX | $22,175 | $414,965 |
Epidemiologic Solutions Corporation Westlake, LA | $997,115 | $940,634 |
Texas Osteoporosis Foundation Plano, TX | $210,411 | $61 |
Rampy Ms Research Foundation Bentonville, AR | $99,034 | $154,261 |
Type One Area Diabetic Support Amarillo, TX | $217,295 | $0 |
Drug & Alcohol Training Inc Norman, OK | $124,137 | $0 |
Cure Crv Research Bentonville, AR | $32,562 | $0 |
Louisiana Lupus Foundation Inc Baker, LA | $44,805 | $0 |
Care Collaborative Action For Sarscov2eradication Inc Sugar Land, TX | $22,337 | $0 |
Frontotemporal Diesease Assoc San Antonio, TX | $3,962 | $0 |
International Foxg1 Foundation Humble, TX | $186,201 | $0 |
Lift Against Leukemia Cabot, AR | $1,535 | $0 |
Jack S Thousand Days Foundation Inc Van Alstyne, TX | $0 | $0 |
Gene Reed Ms Foundation Allen, TX | $0 | $0 |