Nonprofit OrganizationsSpecifically Named Diseases Research
Specifically Named Diseases Research organizations account for 317 organizations in the United States. In aggregate, these organizations generate $405m in revenue and employ 715.0 individuals.
317
Active Organizations
$405.5 Million
Annual Revenue
715
Employees in Sector
$637.7 Million
Controlled Assets
Explore Nonprofits in the Specifically Named Diseases Research Sector
The Focus Foundation Inc
Davidsonville, MD
Assets: $292k
Revenue: $703k
Employees: 19
MISSION:
TO HELP CHILDREN WITH APRAXIA, DYSLEXIA AND SEX CHROMOSOME DISORDERS.
Milas Miracle Foundation Inc
Boulder, CO
Assets: $270k
Employees: 2
MISSION:
THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER LIFE-THREATENING NEUROLOGICAL DISORDERS. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER, WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING, WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS, OUR FOUNDATION'S WORK HAS FOCUSED ON FIVE PRIMARY PROGRAM INITIATIVES TO DATE: AN ANTISENSE OLIGONUCLEOTIDE (ASO) CLINICAL TRIAL; A CLN7 GENE THERAPY TRIAL; BASIC SCIENCE RESEARCH FOR BATTEN DISEASE; A BATTEN & NEURODEGENERATIVE DISEASE PROGRAM CLINIC; AND A PEDIATRIC CELL ATLAS OF BATTEN PATHOBIOLOGY AND THERAPEUTIC RESPONSE. ADDITIONALLY, WE ARE FOCUSED ON HELPING TO GROW THE NEW FIELD OF TRULY PERSONAL MEDICINES, WHICH MILA'S STORY HAS OPENED UP. OUR HOPE IS TO GO FROM "MILA TO MIL
Maren Foundation
East Hampton, NY
Assets: $270k
Revenue: $55k
MISSION:
The goal of this organization is to conduct research which can be used to improve the prevention, diagnosis and treatment of specifically named diseases and conditions.
Leo And Anne Albert Institute For Bladder Cancer And Research
Mission Hills, KS
Assets: $268k
Revenue: $308k
MISSION:
MISSION IS TO FOSTER MEDICAL AND SCIENTIC RESEARCH AND EDUCATION IN THE CARE AND TREATMENT OF BLADDER CANCER.
Hawaii Branch Of The International Dyslexia Association
Kaneohe, HI
Assets: $266k
MISSION:
The goal of this organization is to conduct research which can be used to improve the prevention, diagnosis and treatment of specifically named diseases and conditions.
Central New York Lyme And Tick-Borne Disease Alliance Inc
Manlius, NY
Assets: $264k
Revenue: $343k
Employees: 4
MISSION:
THE CENTRAL NEW YORK LYME AND TICK-BORNE DISEASE ALLIANCE IS A COLLABORATIVE OF PROVIDERS, SCIENTISTS AND COMMUNITY MEMBERS WHO SUPPORT RESEARCH, DRIVE EDUCATION AND PROMOTE AWARENESS TO COMBAT TICK-BORNE DISEASES.
Center For New Data
San Francisco, CA
Assets: $250k
Revenue: $117k
Employees: 4
MISSION:
THE CENTER FOR NEW DATA PERFORMS RESEARCH AND DATA ANALYSIS TO ADVANCE INITIATIVES FOR THE PUBLIC BENEFIT.
Defeat Msa Alliance Defeat Multiple System Atrophy Alliance
St Clair Shores, MI
Assets: $250k
Revenue: $202k
MISSION:
DEFEAT MSA ALLIANCE IS AN INCLUSIVE U.S. BASED 501(C)(3) PUBLIC CHARITY THAT ASPIRES TO BALANCE EFFORTS TO SUPPORT PATIENTS, EDUCATE MEDICAL PROFESSIONALS, RAISE PUBLIC AWARENESS, NURTURE PROMISING RESEARCH AND ADVOCATE FOR THE MSA COMMUNITY.
Cured Nfp
Buffalo Grove, IL
Assets: $247k
Revenue: $495k
MISSION:
CURED IS A NOT FOR PROFIT FOUNDATION DEDICATED TO THOSE SUFFERING FROM EOSINOPHILIC ENTEROPATHY. IT IS THE HOPE OF CURED TO RAISE SUBSTANTIAL FUNDING TO AID IN RESEARCH AND PUBLIC AWARENESS FOR THIS COMPLEX DISEASE.
Bruce Edwards Als Research Foundation Inc
Crownsville, MD
Assets: $219k
MISSION:
The goal of this organization is to conduct research which can be used to improve the prevention, diagnosis and treatment of specifically named diseases and conditions.
Type One Area Diabetic Support
Amarillo, TX
Assets: $217k
MISSION:
The goal of this organization is to conduct research which can be used to improve the prevention, diagnosis and treatment of specifically named diseases and conditions.
Orphan Disease Pathway Project
Miami Beach, FL
Assets: $210k
Revenue: $160k
MISSION:
The goal of this organization is to conduct research which can be used to improve the prevention, diagnosis and treatment of specifically named diseases and conditions.
Texas Osteoporosis Foundation
Plano, TX
Assets: $210k
Revenue: $61
MISSION:
TO SPREAD AWARENESS OF OSTEOPOROSIS DISEASE AND PREVENT UNNECESSARY SUFFERING THROUGH WIDESPREAD EDUCATION,RESOURCES AND DIAGNOSIS
American Lyme Disease Foundation Inc
New Haven, CT
Assets: $204k
MISSION:
The goal of this organization is to conduct research which can be used to improve the prevention, diagnosis and treatment of specifically named diseases and conditions.
International Dyslexia Association- Rocky Mountian Branch
Boulder, CO
Assets: $202k
MISSION:
The goal of this organization is to conduct research which can be used to improve the prevention, diagnosis and treatment of specifically named diseases and conditions.
Punch 4 Parkinsons
Walpole, MA
Assets: $198k
Revenue: $829k
MISSION:
CHARITABLE ORGANIZATION DEDICATED TO RESEARCHING DEVELOPING THE BEST TREATMENT AND CARE FOR PARKINSONS PATIENTS THROUGH EXERCISE BOXING
Acne Cure Alliance Inc
Morristown, NJ
Assets: $193k
Revenue: $439k
Employees: 1
MISSION:
FUND PROGRESSIVE ACNE PREVENTION AND TREATMENT INTERVENTIONS AND, ULTIMATELY, A CURE.
Xeroderma Pigmentosum Family Support Group
Elk Grove, CA
Assets: $188k
Revenue: $78k
Employees: 1
MISSION:
The goal of this organization is to conduct research which can be used to improve the prevention, diagnosis and treatment of specifically named diseases and conditions.
International Foxg1 Foundation
Humble, TX
Assets: $186k
MISSION:
The goal of this organization is to conduct research which can be used to improve the prevention, diagnosis and treatment of specifically named diseases and conditions.
National Diabetes & Obesity Research Center At Tradition Ms
Biloxi, MS
Assets: $184k
Revenue: $1m
MISSION:
TO PROVIDE ASSISTANCE WITH DIABETES AND OBESITY EDUCATION, PREVENTION, MANAGEMENT AND RESEARCH.