Milas Miracle Foundation Inc
- Assets
- $270.1k
- Revenue
- $0.0
- Investments
- $0.0
- Employees
- 2
- Location
- Boulder, CO
- Founding
- 10/2017
- Data as of
- 12/2023
- EIN
- 81-4713372
Organization Overview
Milas Miracle Foundation Inc is located in Boulder, CO. The organization was established in 2017. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2023, Milas Miracle Foundation Inc employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Milas Miracle Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Milas Miracle Foundation Inc generated $21.5k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (45.7%) each year. All expenses for the organization totaled $392.1k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990EZ
Mission & Program ActivityExcerpts From the 990EZ Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER LIFE-THREATENING NEUROLOGICAL DISORDERS. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER, WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING, WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS, OUR FOUNDATION'S WORK HAS FOCUSED ON FIVE PRIMARY PROGRAM INITIATIVES TO DATE: AN ANTISENSE OLIGONUCLEOTIDE (ASO) CLINICAL TRIAL; A CLN7 GENE THERAPY TRIAL; BASIC SCIENCE RESEARCH FOR BATTEN DISEASE; A BATTEN & NEURODEGENERATIVE DISEASE PROGRAM CLINIC; AND A PEDIATRIC CELL ATLAS OF BATTEN PATHOBIOLOGY AND THERAPEUTIC RESPONSE. ADDITIONALLY, WE ARE FOCUSED ON HELPING TO GROW THE NEW FIELD OF TRULY PERSONAL MEDICINES, WHICH MILA'S STORY HAS OPENED UP. OUR HOPE IS TO GO FROM "MILA TO MIL
Describe the Organization's Program Activity:
Part 3
THROUGH OUR FUNDRAISING, WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS, MMF IS WORKING HARD TO START AND FUND NEW TREATMENTS THAT COULD HELP CHILDREN WITH BATTEN AND OTHER LIFE-THREATENING NEUROLOGICAL DISORDERS. TO DATE, OUR FOUNDATION'S WORK HAS FOCUSED ON FIVE PRIMARY PROGRAM INITIATIVES: AN ANTISENSE OLIGONUCLEOTIDE (ASO) CLINICAL TRIAL & THE EXPANSION OF PERSONAL MEDICINES; A CLN7 GENE THERAPY TRIAL; BASIC SCIENCE RESEARCH FOR BATTEN DISEASE; A BATTEN & NEURODEGENERATIVE DISEASE PROGRAM CLINIC; AND A PEDIATRIC CELL ATLAS OF BATTEN PATHOBIOLOGY AND THERAPEUTIC RESPONSE. ADDITIONALLY, WE ARE FOCUSED ON HELPING TO GROW THE NEW FIELD OF TRULY PERSONAL MEDICINES, WHICH MILA'S STORY HAS OPENED UP. ALONGSIDE MILA'S DOCTOR, DR. TIM YU, AND HIS TEAM AT BOSTON CHILDREN'S HOSPITAL, WE ARE WORKING COLLABORATIVELY WITH LEADERS IN THE FIELD TO RETHINK THE DRUG DEVELOPMENT PROCESS SO WE CAN SAFELY AND RAPIDLY SCALE N- OF-1 TREATMENTS AND ADDRESS THE GLOBAL HEALTH CRISIS OF RARE GENETIC DISEASE. OUR HOPE IS TO GO FROM "MILA TO MILLIONS", MAKING INDIVIDUALIZED MEDICINES ACCESSIBLE TO MANY MORE CHILDREN ACROSS THOUSANDS OF RARE DISEASES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Julia Vitarello President | 40 | $110,000 | |
Julie Mitchell Chair | 1 | $0 | |
Adam Vitarello Vice Chair | 1 | $0 | |
Lori Sames Treasurer | 1 | $0 | |
Katherine Fox Nagel Secretary | 1 | $0 | |
Sarah Cottingham Board Member | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Total Revenue from Contributions, Gifts, Grants & Similar | $21,412 |
| Total Program Service Revenue | $0 |
| Membership dues | $0 |
| Investment income | $75 |
| Gain or Loss | $0 |
| Net Income from Gaming & Fundraising | $0 |
| Other Revenue | $0 |
| Total Revenue | $21,487 |
| Statement of Expenses | |
|---|---|
| Grants and similar amounts paid | $0 |
| Benefits paid to or for members | $0 |
| Salaries, other compensation, and employee benefits | $188,027 |
| Professional fees and other payments to independent contractors | $158,174 |
| Occupancy, rent, utilities, and maintenance | $0 |
| Printing, publications, postage, and shipping | $0 |
| Other expenses | $45,907 |
| Total expenses | $392,108 |
| Balance Sheet | |
|---|---|
| Cash, savings, and investments | $270,092 |
| Other assets | $0 |
| Total assets | $270,092 |
| Total liabilities | $0 |
| Net assets or fund balances | $270,092 |