Milas Miracle Foundation Inc is located in Boulder, CO. The organization was established in 2017. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, Milas Miracle Foundation Inc employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Milas Miracle Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Milas Miracle Foundation Inc generated $263.8k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 5 years, the organization has seen revenues fall by an average of (29.8%) each year. All expenses for the organization totaled $504.5k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER LIFE-THREATENING NEUROLOGICAL DISORDERS. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - OUR FOUNDATION'S WORK HAS FOCUSED ON FOUR PRIMARY PROGRAM INITIATIVES TO DATE: AN ANTISENSE OLIGONUCLEOTIDE (ASO) CLINICAL TRIAL & THE EXPANSION OF PERSONAL MEDICINES (UNDERWAY); A CLN7 GENE THERAPY TRIAL (UNDERWAY); BASIC SCIENCE RESEARCH FOR BATTEN DISEASE (TWO GRANT PROJECTS COMPLETE AND TWO MORE UNDERWAY); AND A BATTEN & NEURODEGENERATIVE DISEASE PROGRAM CLINIC (FIRST CLINIC LAUNCHED & UNDERWAY). ADDITIONALLY, WE ARE FOCUSED ON HELPING TO GROW THE NEW FIELD OF TRULY PERSONAL MEDI
Describe the Organization's Program Activity:
Part 3 - Line 4a
THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - MMF IS WORKING HARD TO START AND FUND NEW TREATMENTS THAT COULD HELP CHILDREN WITH BATTEN AND OTHER LIFE- THREATENING NEUROLOGICAL DISORDERS. TO DATE, OUR FOUNDATION'S WORK HAS FOCUSED ON FOUR PRIMARY PROGRAM INITIATIVES: AN ANTISENSE OLIGONUCLEOTIDE (ASO) CLINICAL TRIAL & THE EXPANSION OF PERSONAL MEDICINES (UNDERWAY); A CLN7 GENE THERAPY TRIAL (UNDERWAY); BASIC SCIENCE RESEARCH FOR BATTEN DISEASE (TWO GRANT PROJECTS COMPLETE AND TWO MORE UNDERWAY); AND A BATTEN & NEURODEGENERATIVE DISEASE PROGRAM CLINIC (FIRST CLINIC LAUNCHED & UNDERWAY).
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Julia Vitarello President | OfficerTrustee | 40 | $104,583 |
Julie Mitchell Secretary | OfficerTrustee | 1 | $0 |
Katherine Fox Nagel Chair | OfficerTrustee | 1 | $0 |
Adam Vitarello Vice Chair | OfficerTrustee | 1 | $0 |
Jeni Vitarello Treasurer | OfficerTrustee | 1 | $0 |
Lori Sames Board Member | Trustee | 1 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $31,668 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $231,449 |
Noncash contributions included in lines 1a–1f | $25,431 |
Total Revenue from Contributions, Gifts, Grants & Similar | $263,117 |
Total Program Service Revenue | $0 |
Investment income | $138 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $579 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $263,834 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $0 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $104,583 |
Compensation of current officers, directors, key employees. | $14,944 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $52,293 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $12,328 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $0 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $322,334 |
Advertising and promotion | $3,043 |
Office expenses | $600 |
Information technology | $0 |
Royalties | $0 |
Occupancy | $0 |
Travel | $242 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $0 |
All other expenses | $0 |
Total functional expenses | $504,545 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $33,835 |
Savings and temporary cash investments | $618,730 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $0 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $652,565 |
Accounts payable and accrued expenses | $0 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $0 |
Net assets without donor restrictions | $652,565 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $652,565 |
Over the last fiscal year, we have identified 3 grants that Milas Miracle Foundation Inc has recieved totaling $22,892.
Awarding Organization | Amount |
---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $12,695 |
Paypal Charitable Giving Fund Washington, DC PURPOSE: General Support | $9,865 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $332 |
Organization Name | Assets | Revenue |
---|---|---|
New Mexico Cancer Care Alliance Albuquerque, NM | $985,027 | $1,476,963 |
Cray Medical Research Foundation Atchison, KS | $5,396,806 | $1,369,555 |
International Essential Tremor Foundation Lenexa, KS | $6,492,585 | $3,394,217 |
Milas Miracle Foundation Inc Boulder, CO | $652,565 | $263,834 |
Mecp2 Duplication Foundation Tucson, AZ | $227,770 | $278,819 |
Cdg Care Colorado Springs, CO | $269,968 | $266,136 |
American Foundation For Addiction Research Carefree, AZ | $616,541 | $178,502 |
International Dyslexia Association- Rocky Mountian Branch Boulder, CO | $204,574 | $0 |
Biological Immunity Research Institute 08-01-00 Scottsdale, AZ | $132,076 | $0 |
Leo And Anne Albert Institute For Bladder Cancer And Research Mission Hills, KS | $178,511 | $101,515 |
Will2walk Foundation Chandler, AZ | $42,084 | $0 |
Drug & Alcohol Training Inc Norman, OK | $124,146 | $0 |