Cdg Care
- Assets
- $522.6k
- Revenue
- $491.8k
- Investments
- $0.0
- Employees
- 0
- Location
- Colorado Springs, CO
- Founding
- 07/2016
- Data as of
- 12/2023
- EIN
- 81-0769799
Organization Overview
Cdg Care is located in Colorado Springs, CO. The organization was established in 2016. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cdg Care is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2023, Cdg Care generated $491.8k in total revenue. This organization has experienced exceptional growth, as over the past 6 years, it has increased revenue by an average of 25.6% each year . All expenses for the organization totaled $525.7k during the year ending 12/2023. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2023
Describe the Organization's Mission:
Part 3 - Line 1
TO PROMOTE GREATER AWARENESS AND UNDERSTANDING OF CDG, TO PROVIDE INFORMATION AND SUPPORT TO FAMILIES AFFECTED BY CDG, AND TO ADVOCATE FOR AND FUND SCIENTIFIC RESEARCH TO ADVANCE TREATMENTS FOR ALL CDGS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH AND DEVELOPMENT - IN 2023, CDG CARE FUNDED 2 RESEARCH GRANTS AND 6 RESEARCH PROJECTS. THE FIRST GRANT WAS PAID TO WASHINGTON UNIVERSITY OF ST. LOUIS. THIS GRANT WAS $50,000 AND SUPPORTED RESEARCH TO INVESTIGATE THE VIABILITY OF TREATMENT OPTIONS IN CDG ZEBRAFISH MODELS. THE SECOND GRANT WAS PAID TO NATIONWIDE CHILDREN'S RESEARCH CENTER. THIS GRANT WAS $105,655 AND SUPPORTED RESEARCH TO DEVELOP IN VITRO MODELLING FOR GENE THERAPY IN GMPPA-CDG ORGANOIDS. IN ADDITION TO THESE ABOVE 2 GRANT AWARDS, CDG CARE CONTINUED AND EXPANDED IT'S 2022 PATIENT-DRIVEN RESEARCH INITIATIVE WHICH INVOLVES CONTRACTING FOR DIRECT RESEARCH OF DRUG REPURPOSING ON SEVERAL CDG TYPES. THESE CONTRACTS WERE MADE WITH THE WASHINGTON UNIVERSITY IN ST. LOUIS TO ADVANCE ALG8-CDG TREATMENT MODALITIES VIA THE RESEARCH MODEL USING ZEBRAFISH IN THE AMONG OF $35,000 AND SUPPORT FOR AN ADDITIONAL 5 RESEARCH PROJECTS WERE CONTRACTED THROUGH PERLARA PBC AND ARE ONGOING TO ADVANCE DRUG REPURPOSING RESEARCH FOR PIGA-CDG, PIGN-CDG, PIGW-CDG, GMPPA-CDG AND PIGS-CDG.
PATIENT/FAMILY TRAVEL & EQUIPMENT GRANT PROGRAM - IN 2023, CDG CARE CONTINUED TO SUPPORT A PROGRAM THAT PROVIDES FINANCIAL SUPPORT TO PATIENTS AND FAMILIES TO OBTAIN MUCH NEEDED THERAPEUTIC/MEDICAL EQUIPMENT AND PROVIDE FUNDING SUPPORT FOR FAMILIES TO TRAVEL TO SPECIALTY MEDICAL CENTERS TO RECEIVE CONSULTATION AND MEDICAL GUIDANCE FROM EXPERTS IN CDG. THROUGH THE THERAPEUTIC/MEDICAL EQUIPMENT GRANT PROGRAM, 14 PATIENTS RECEIVED EQUIPMENT GRANTS COMPRISING OF $28,463. THROUGH THE TRAVEL SUPPORT GRANT PROGRAM, PATIENTS/FAMILIES RECEIVED GRANTS COMPRISING A TOTAL OF $2,708.
CDG BIENNIAL CONFERENCE - IN 2023, CDG CARE BEGAN PREPARATIONS TO HOST THE UPCOMING 5TH BIENNIAL PROFESSIONAL AND EDUCATIONAL CONFERENCE ON CDG TO BE HELD IN MARCH 2024. THROUGH THESE PREPARATIONS, AN EVENT VENUE DEPOSIT WAS PAID OUT IN 2023, AND THE REMAINING CONFERENCE EXPENSES WILL BE PAID OUT AFTER THE EVENT IN MARCH, 2024. THE CONFERENCE PLANNING PREPARED TO HOST 300+ PROFESSIONALS AND FAMILY MEMBERS TO PARTICIPATE IN A 3-DAY EDUCATIONAL CONFERENCE TO ADVANCE CDG EDUCATION, INFORMATION AND OPPORTUNITIES TO DEVELOP TREATMENTS IN THE FUTURE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Andrea Miller President | OfficerTrustee | 15 | $0 |
Christa Thoma Treasurer | OfficerTrustee | 4 | $0 |
Karen Morici Board Member | Trustee | 2 | $0 |
Meral Omurtag Board Member | Trustee | 2 | $0 |
Kara Berasi Board Member | Trustee | 2 | $0 |
Heather Conneran Board Member | Trustee | 1 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $486,633 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $486,633 |
| Total Program Service Revenue | $0 |
| Investment income | $5,197 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $491,830 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $438,617 |
| Grants and other assistance to domestic individuals. | $14,194 |
| Grants and other assistance to Foreign Orgs/Individuals | $19,133 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $6,903 |
| Fees for services: Accounting | $19,800 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $324 |
| Information technology | $4,415 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $146 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,423 |
| All other expenses | $10 |
| Total functional expenses | $525,673 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $25,000 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $497,624 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $522,624 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $201,590 |
| Net assets with donor restrictions | $321,034 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $522,624 |
Grants Awarded
Over the last fiscal year, Cdg Care has awarded $438,617 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
PERLARA PBC PURPOSE: RESEARCH PROJECTS | $244,962 |
WASHINGTON UNIVERSITY OF ST LOUIS PURPOSE: RESEARCH GRANT | $85,000 |
NATIONWIDE CHILDRENS RESEARCH PURPOSE: RESEARCH GRANT | $108,655 |