Xeroderma Pigmentosum Family Support Group
- Assets
- $150.9k
- Revenue
- $70.6k
- Investments
- $0.0
- Employees
- 1
- Location
- Elk Grove, CA
- Founding
- 03/2006
- Data as of
- 12/2021
- EIN
- 59-3824809
Organization Overview
Xeroderma Pigmentosum Family Support Group is located in Elk Grove, CA. The organization was established in 2006. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Xeroderma Pigmentosum Family Support Group is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Xeroderma Pigmentosum Family Support Group generated $70.6k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 6.1% each year. All expenses for the organization totaled $50.1k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO IMPROVE THE QUALITY OF LIFE OF THOSE PERSONS WITH XERODERMA PIGMENTOSUM AND OTHER DIAGNOSED ULTRAVIOLET LIGHT SENSITIVE CONDITIONS BY PROVIDING SUPPORT, ULTRAVIOLET PROTECTIVE EQUIPMENT AND OTHER ASSISTANCE.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO IMPROVE THE QUALITY OF LIFE OF THOSE PERSONS WITH XERODERMA PIGMENTOSUM AND OTHER DIAGNOSED ULTRAVIOLET LIGHT SENSITIVE CONDITIONS.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Michele Milota Executive Di | Officer | 30 | $23,500 |
Sarah Madden Treasurer | Trustee | 2 | $0 |
Amanda Davis Trustee | Trustee | 2 | $0 |
Todd Feltner Chair | Trustee | 2 | $0 |
Jennifer Feltner Trustee | Trustee | 2 | $0 |
Alan Jakovac Trustee | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $7,228 |
| All other contributions, gifts, grants, and similar amounts not included above | $28,217 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $35,445 |
| Total Program Service Revenue | $0 |
| Investment income | $39 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $35,072 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $70,556 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $23,500 |
| Compensation of current officers, directors, key employees. | $2,350 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $1,910 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $5,518 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $5,410 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $4,642 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $500 |
| All other expenses | $0 |
| Total functional expenses | $50,127 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $119,385 |
| Savings and temporary cash investments | $31,480 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $150,865 |
| Accounts payable and accrued expenses | $1,733 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $1,733 |
| Net assets without donor restrictions | $136,354 |
| Net assets with donor restrictions | $12,778 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $150,865 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Xeroderma Pigmentosum Family Support Group has recieved totaling $886.
| Awarding Organization | Amount |
|---|---|
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $886 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Cystinosis Research Foundation Irvine, CA | $10,168,657 | $3,589,447 |
Covid Alliance Inc San Francisco, CA | $134,513 | $337,344 |
Behavioral Diabetes Institute San Diego, CA | $479,332 | $578,824 |
Foundation For Research In Infectious Diseases Saratoga, CA | $985,148 | $243,190 |
Aoki Diabetes Research Institute Inc Sacramento, CA | $99,764 | $119,583 |
Scharp-Lacy Research Institute Aliso Viejo, CA | $268 | $322,378 |
Mecp2 Duplication Foundation Tucson, AZ | $227,770 | $278,819 |
All Greater Good Foundation Beverly Hills, CA | $570,218 | $173,151 |
Mango Foundation Inc Honokaa, HI | $0 | $14,969 |
American Foundation For Addiction Research Carefree, AZ | $616,541 | $178,502 |
Biological Immunity Research Institute 08-01-00 Scottsdale, AZ | $132,076 | $0 |
International Society For Mannosidosis & Related Disease Inc Saratoga, CA | $89,683 | $25,655 |