Xeroderma Pigmentosum Family Support Group

Organization Overview

Xeroderma Pigmentosum Family Support Group is located in Elk Grove, CA. The organization was established in 2006. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Xeroderma Pigmentosum Family Support Group is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2021, Xeroderma Pigmentosum Family Support Group generated $70.6k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 6.1% each year. All expenses for the organization totaled $50.1k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2021

Describe the Organization's Mission:

Part 3 - Line 1

TO IMPROVE THE QUALITY OF LIFE OF THOSE PERSONS WITH XERODERMA PIGMENTOSUM AND OTHER DIAGNOSED ULTRAVIOLET LIGHT SENSITIVE CONDITIONS BY PROVIDING SUPPORT, ULTRAVIOLET PROTECTIVE EQUIPMENT AND OTHER ASSISTANCE.

Describe the Organization's Program Activity:

Part 3 - Line 4a

TO IMPROVE THE QUALITY OF LIFE OF THOSE PERSONS WITH XERODERMA PIGMENTOSUM AND OTHER DIAGNOSED ULTRAVIOLET LIGHT SENSITIVE CONDITIONS.


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Board, Officers & Key Employees

Name (title)Compensation
Michele Milota
Executive Di
$23,500
Todd Feltner
Chair
$0
Sarah Madden
Treasurer
$0
Jennifer Feltner
Trustee
$0
Alan Jakovac
Trustee
$0
Amanda Davis
Trustee
$0

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $7,228
All other contributions, gifts, grants, and similar amounts not included above$28,217
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$35,445
Total Program Service Revenue$0
Investment income $39
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $0
Net Income from Fundraising Events $35,072
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $70,556

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Xeroderma Pigmentosum Family Support Group has recieved totaling $886.

Awarding OrganizationAmount
Amazonsmile Foundation

Seattle, WA

PURPOSE: GENERAL SUPPORT

$886
View Grant Recipient Profile

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