Kleine Levin Syndrome Foundation Inc, operating under the name Kleine-Levin Syndrome Foundati, is located in San Jose, CA. The organization was established in 2000. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Kleine-Levin Syndrome Foundati is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Kleine-Levin Syndrome Foundati generated $86.7k in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 4.4% each year. All expenses for the organization totaled $37.8k during the year ending 12/2022. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
RESEARCH EDUCATION AND PATIENT AND FAMILY OUTREACH
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEACH EDUCATION PATIENT AND FAMILY OUTREACH
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Stephen T Maier President | Officer | 10 | $0 |
Richard B Maier Treasurer | Officer | 10 | $0 |
Dani Farber Director | Trustee | 10 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $0 |
Membership dues | $0 |
Fundraising events | $86,698 |
Related organizations | $0 |
Government grants | $0 |
All other contributions, gifts, grants, and similar amounts not included above | $0 |
Noncash contributions included in lines 1a–1f | $0 |
Total Revenue from Contributions, Gifts, Grants & Similar | $86,698 |
Total Program Service Revenue | $0 |
Investment income | $9 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $0 |
Net Income from Fundraising Events | $0 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $86,707 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $4,100 |
Grants and other assistance to domestic individuals. | $0 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation of current officers, directors, key employees. | $0 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $0 |
Pension plan accruals and contributions | $0 |
Other employee benefits | $0 |
Payroll taxes | $0 |
Fees for services: Management | $0 |
Fees for services: Legal | $0 |
Fees for services: Accounting | $0 |
Fees for services: Lobbying | $0 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $0 |
Advertising and promotion | $0 |
Office expenses | $0 |
Information technology | $0 |
Royalties | $0 |
Occupancy | $0 |
Travel | $2,482 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $0 |
Interest | $0 |
Payments to affiliates | $0 |
Depreciation, depletion, and amortization | $0 |
Insurance | $0 |
All other expenses | $0 |
Total functional expenses | $37,767 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $331,238 |
Savings and temporary cash investments | $90,696 |
Pledges and grants receivable | $0 |
Accounts receivable, net | $7,000 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $0 |
Net Land, buildings, and equipment | $0 |
Investments—publicly traded securities | $0 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $0 |
Total assets | $428,934 |
Accounts payable and accrued expenses | $0 |
Grants payable | $0 |
Deferred revenue | $0 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $0 |
Net assets without donor restrictions | $428,934 |
Net assets with donor restrictions | $0 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $428,934 |
Over the last fiscal year, Kleine Levin Syndrome Foundation Inc has awarded $184,101 in support to 2 organizations.
Grant Recipient | Amount |
---|---|
THRIVERX LLC PURPOSE: RESEARCH SUPERCOMPUTER TIME | $100,000 |
STANFORD UNIVERSITY PURPOSE: SLEEP STUDY | $84,101 |
Over the last fiscal year, we have identified 2 grants that Kleine Levin Syndrome Foundation Inc has recieved totaling $1,851.
Awarding Organization | Amount |
---|---|
Lipkin Family Foundation Wayne, NJ PURPOSE: UNRESTRICTED - GENERAL | $1,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $851 |
Organization Name | Assets | Revenue |
---|---|---|
Cystinosis Research Foundation Irvine, CA | $10,168,657 | $3,589,447 |
Covid Alliance Inc San Francisco, CA | $134,513 | $337,344 |
Behavioral Diabetes Institute San Diego, CA | $479,332 | $578,824 |
Foundation For Research In Infectious Diseases Saratoga, CA | $985,148 | $243,190 |
Aoki Diabetes Research Institute Inc Sacramento, CA | $99,764 | $119,583 |
Scharp-Lacy Research Institute Aliso Viejo, CA | $268 | $322,378 |
Mecp2 Duplication Foundation Tucson, AZ | $227,770 | $278,819 |
All Greater Good Foundation Beverly Hills, CA | $570,218 | $173,151 |
Mango Foundation Inc Honokaa, HI | $0 | $14,969 |
American Foundation For Addiction Research Carefree, AZ | $616,541 | $178,502 |
Biological Immunity Research Institute 08-01-00 Scottsdale, AZ | $132,076 | $0 |
International Society For Mannosidosis & Related Disease Inc Saratoga, CA | $89,683 | $25,655 |