Jeffrey Modell Foundation Inc

Organization Overview

Jeffrey Modell Foundation Inc is located in New York, NY. The organization was established in 1987. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2022, Jeffrey Modell Foundation Inc employed 10 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Jeffrey Modell Foundation Inc is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 12/2022, Jeffrey Modell Foundation Inc generated $8.8m in total revenue. The organization has seen a slow decline revenue. Over the past 8 years, revenues have fallen by an average of (0.3%) each year. All expenses for the organization totaled $5.9m during the year ending 12/2022. As we would expect to see with falling revenues, expenses have declined by (0.7%) per year over the past 8 years. You can explore the organizations financials more deeply in the financial statements section below.

Since 2014, Jeffrey Modell Foundation Inc has awarded 194 individual grants totaling $10,967,388. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

THE FOUNDATION IS DEDICATED TO THE EARLY DIAGNOSIS, TREATMENT AND ULTIMATE CURE OF PRIMARY IMMUNODEFICIENCY DISEASES. THE FOUNDATIONS PRIMARY MISSION IS SUPPORTING BASIC AND CLINICAL RESEARCH, PHYSICIAN EDUCATION, PATIENT SUPPORT, PUBLIC AWARENESS, ADVOCACY AND NEWBORN SCREENING. THE FOUNDATION GENERATES SUPPORT THROUGH CONTRIBUTIONS FROM THE GENERAL PUBLIC, INDUSTRY, AND GOVERNMENT AGENCIES. THE FOUNDATION SPONSORS PHYSICIAN SYMPOSIA, CONFERENCES, EDUCATIONAL EVENTS FOR PHYSICIANS AND PATIENTS, AND AWARENESS PROGRAMS TO REACH THE PUBLIC.

Describe the Organization's Program Activity:

Part 3 - Line 4a

THE ORGANIZATION CONDUCTED PUBLIC SERVICE ADVERTISING CAMPAIGNS DIRECTED TO THE GENERAL PUBLIC TO CREATE PUBLIC AWARENESS, AS WELL AS TO EDUCATE BOTH TREATING PHYSICIANS AND THE GENERAL PUBLIC ABOUT IMMUNODEFICIENCY DISEASES.


BASIC AND CLINICAL RESEARCH SUPPORT AT NUMEROUS EDUCATIONAL INSTITUTIONS AND HOSPITALS THROUGHOUT THE UNITED STATES AND WORLD-WIDE AS REPORTED IN ACCOMPANYING SCHEDULE F AND SCHEDULE I. IN ADDITION, THE FOUNDATION PROVIDED FUNDING TO REGIONAL AND NATIONAL PATIENT ORGANIZATIONS GLOBALLY.


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Board, Officers & Key Employees

Name (title)Compensation
Frederick Modell
President
$395,000
Vicki Modell
Vice President
$295,000
Vanessa Tenembaum
Executive Director
$239,295
Jessica Quinn
Scientific Director
$156,314
Christopher Sims
Chief Financial Officer
$154,175
Roger Davilla
$134,776

Outside Vendors & Contractors

Vendor Name (Service)Compensation
Cavarocchi Ruscio Dennis Associates Llc
Schedule Attached
$171,000
The Causeway Agency
Schedule Attached
$114,489
Invitae Corporation
Schedule Attached
$366,750
Studio Office Solutions
Schedule Attached
$149,735
Optum
Schedule Attached
$117,000
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$0
Membership dues$0
Fundraising events$0
Related organizations$0
Government grants $2,800,000
All other contributions, gifts, grants, and similar amounts not included above$5,797,865
Noncash contributions included in lines 1a–1f $0
Total Revenue from Contributions, Gifts, Grants & Similar$8,597,865
Total Program Service Revenue$0
Investment income $380,911
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales -$159,567
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $8,819,209

Grants Awarded

Over the last fiscal year, Jeffrey Modell Foundation Inc has awarded $1,075,241 in support to 25 organizations.

Grant RecipientAmount

BOSTON CHILDRENS HOSPITAL

PURPOSE: RESERACH

$63,000

BAYLOR COLLEGE OF MEDICINE

PURPOSE: RESEARCH

$25,000

CHILDRENS NATL MEDICAL CTR

PURPOSE: RESEARCH

$25,000

CHILDRENS HOSP OF CHICAGO

PURPOSE: RESEARCH

$57,402

CHILDRENS HOSP-PHILADELPHIA

PURPOSE: RESEARCH

$100,000

CHILDRENS HOSP OF COLORADO

PURPOSE: RESEARCH

$54,951
View Grant Profile

Peer Organizations

Organization NameAssets
Als Therapy Development Foundation Inc
Watertown, MA
$11,558,482
Jeffrey Modell Foundation Inc
New York, NY
$8,819,209
Rothberg Institute Inc
Guilford, CT
$50,949
Silent Spring Institute Inc
Newton, MA
$5,450,719
Amyloidosis Research Consortium Inc
Newton, MA
$2,260,256
Lupus Clinical Trials Consortium Katherine M Snider President
Garden City, NY
$2,572,342
Punch 4 Parkinsons
Walpole, MA
$829,335
Northeast Als Consortium Inc
Boston, MA
$1,108,820
Oxfendazole Development Group
Blue Bell, PA
$58,517
Mind First Foundation
Waltham, MA
$51,988
Central New York Lyme And Tick-Borne Disease Alliance Inc
Manlius, NY
$343,319
Alcohol Research Documentaion Inc
Piscataway, NJ
$334,740
Aurum Institute Usa
New York, NY
$386,629
Acne Cure Alliance Inc
Morristown, NJ
$438,873
Society Of Surgery Of The Alimentary Tract Foundation
Beverly, MA
$346,655
The Pray Family Foundation
Seekonk, MA
$0
Seneca Diabetes Foundation
Irving, NY
$261,278
Scarring Alopecia Foundation
Kulpsville, PA
$0
Field Center For Childrens Integrated Development Inc
Upper Montclair, NJ
$0
Maren Foundation
East Hampton, NY
$54,536
4 You I Will Fight
Norwood, MA
$0
Ann Steffens Scleroderma Research Foundation Inc
Albany, NY
$42,136
A Dapple A Day Equine Center
Bolton Landing, NY
$0
Angel Fund Inc
Wakefield, MA
$928,586
New Jersey Rett Syndrome Association
Freehold, NJ
$56,958

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