New Jersey Rett Syndrome Association
- Assets
- $63.4k
- Revenue
- $57.0k
- Investments
- $0.0
- Employees
- 0
- Location
- Freehold, NJ
- Founding
- 12/2008
- Data as of
- 06/2022
- EIN
- 26-1359425
Organization Overview
New Jersey Rett Syndrome Association is located in Freehold, NJ. The organization was established in 2008. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. New Jersey Rett Syndrome Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2022, New Jersey Rett Syndrome Association generated $57.0k in total revenue. This represents a relatively dramatic decline in revenue. Over the past 3 years, the organization has seen revenues fall by an average of (7.4%) each year. All expenses for the organization totaled $62.2k during the year ending 06/2022. As we would expect to see with falling revenues, expenses have declined by (1.8%) per year over the past 3 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO INCREASE PUBLIC UNDERSTANDING OF RETT SYNDROME, ITS NATURE AND TREATMENT; TO RESEARCH RETT SYNDROME AND REDUCE THE STIGMA OF THE SAME BY MEANS OF EDUCATION OF THE COMMUNITY CONCERNING RETT SYNDROME AS A DISEASE AND PUBLIC HEALTH PROBLEM; TO MAINTAIN A RETT SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO INCREASE PUBLIC UNDERSTANDING OF RETT SYNDROME, ITS NATURE AND TREATMENT; TO RESEARCH RETT SYNDROME AND REDUCE THE STIGMA OF THE SAME BY MEANS OF EDUCATION OF THE COMMUNITY CONCERNING RETT SYNDROME AS A DISEASE AND PUBLIC HEALTH PROBLEM; TO MAINTAIN A RETT SYNDROME.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Carla Benetatos Trustee | Trustee | 5 | $0 |
Robin Diamond Treasurer | OfficerTrustee | 20 | $0 |
Leslie Greenfield Exec. Direct | OfficerTrustee | 20 | $0 |
Carl Raso MD Trustee | Trustee | 20 | $0 |
Steve Medlin Trustee | Trustee | 5 | $0 |
Gerard Saydah Trustee | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $45,548 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $45,548 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $11,410 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $56,958 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $56,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $3,909 |
| Information technology | $1,086 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $1,204 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $0 |
| All other expenses | $0 |
| Total functional expenses | $62,199 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $63,418 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $63,418 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $63,418 |
| Total liabilities and net assets/fund balances | $63,418 |
Grants Awarded
Over the last fiscal year, New Jersey Rett Syndrome Association has awarded $56,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
INTERNATIONAL RETT SYNDROME FOUNDAT PURPOSE: TO HELP FUND RESEARC | $28,000 |
RETT SYNDROME RESEARCH TRUST PURPOSE: TO HELP FUND RESEARC | $16,000 |
MONTEFIORE MEDICAL CENTER-RETT CENT PURPOSE: TO HELP FUND RESEARC | $12,000 |