New Jersey Rett Syndrome Association
- Assets
- $68.7k
- Revenue
- $55.5k
- Investments
- $0.0
- Employees
- 0
- Location
- Freehold, NJ
- Founding
- 12/2008
- Data as of
- 06/2021
- EIN
- 26-1359425
Organization Overview
New Jersey Rett Syndrome Association is located in Freehold, NJ. The organization was established in 2008. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. New Jersey Rett Syndrome Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 06/2021, New Jersey Rett Syndrome Association generated $55.5k in total revenue. The organization has seen a slow decline revenue. Over the past 6 years, revenues have fallen by an average of (2.6%) each year. All expenses for the organization totaled $74.9k during the year ending 06/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
TO INCREASE PUBLIC UNDERSTANDING OF RETT SYNDROME, ITS NATURE AND TREATMENT; TO RESEARCH RETT SYNDROME AND REDUCE THE STIGMA OF THE SAME BY MEANS OF EDUCATION OF THE COMMUNITY CONCERNING RETT SYNDROME AS A DISEASE AND PUBLIC HEALTH PROBLEM;TO MAINTAIN A RETT SYNDROME.
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO INCREASE PUBLIC UNDERSTANDING OF RETT SYNDROME, ITS NATURE AND TREATMENT; TO RESEARCH RETT SYNDROME AND REDUCE THE STIGMA OF THE SAME BY MEANS OF EDUCATION OF THE COMMUNITY CONCERNING RETT SYNDROME AS A DISEASE AND PUBLIC HEALTH PROBLEM;TO MAINTAIN A RETT SYNDROME.
Get More from Intellispect for FreeCreate a free account to get more data, nonprofit salaries, advanced search and more.
Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Leslie Greenfield Exec. Direct | OfficerTrustee | 20 | $0 |
Robin Diamond Treasurer | Officer | 20 | $0 |
James E Wark MD Vice Pres | Officer | 20 | $0 |
Kapila Seshadri MD President | Officer | 20 | $0 |
Steve Medlin Trustee | Trustee | 5 | $0 |
Sharon Lutz Hornaday Mswlswcps Trustee | Trustee | 5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $23,174 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $23,174 |
| Total Program Service Revenue | $0 |
| Investment income | $63 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $32,233 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $55,470 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $70,000 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $0 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $0 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $2,722 |
| Information technology | $817 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $1,334 |
| All other expenses | $0 |
| Total functional expenses | $74,873 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $68,659 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $68,659 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $68,659 |
| Total liabilities and net assets/fund balances | $68,659 |
Grants Awarded
Over the last fiscal year, New Jersey Rett Syndrome Association has awarded $70,000 in support to 3 organizations.
| Grant Recipient | Amount |
|---|---|
Cincinnati, OH PURPOSE: TO HELP FUND RESEARC | $35,000 |
Trumbull, CT PURPOSE: TO HELP FUND RESEARC | $20,000 |
Bronx, NY PURPOSE: TO HELP FUND RESEARC | $15,000 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that New Jersey Rett Syndrome Association has recieved totaling $50.
| Awarding Organization | Amount |
|---|---|
Chubb Charitable Foundation Philadelphia, PA PURPOSE: MATCHING GIFTS | $50 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Jeffrey Modell Foundation Inc New York, NY | $36,072,018 | $6,146,213 |
Lupus Clinical Trials Consortium Katherine M Snider President Garden City, NY | $502,663 | $1,883,684 |
Aurum Institute Usa New York, NY | $145,199 | $368,316 |
Alcohol Research Documentaion Inc Piscataway, NJ | $984,278 | $375,335 |
Acne Cure Alliance Inc Morristown, NJ | $193,415 | $438,873 |
Central New York Lyme And Tick-Borne Disease Alliance Inc Manlius, NY | $284,340 | $280,190 |
Seneca Diabetes Foundation Irving, NY | $3,568,053 | $281,594 |
Scarring Alopecia Foundation Kulpsville, PA | $51,876 | $0 |
Maren Foundation East Hampton, NY | $324,729 | $39,379 |
Field Center For Childrens Integrated Development Inc Upper Montclair, NJ | $160,546 | $0 |
New Jersey Rett Syndrome Association Freehold, NJ | $68,659 | $55,470 |
Selective Mutism Research Institute Flourtown, PA | $56,844 | $121,071 |