Cure Sanfilippo Foundation
- Assets
- $9.6m
- Revenue
- $2.7m
- Investments
- $0.0
- Employees
- 4
- Location
- Columbia, SC
- Founding
- 03/2014
- Data as of
- 12/2022
- EIN
- 46-4322131
Organization Overview
Cure Sanfilippo Foundation is located in Columbia, SC. The organization was established in 2014. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2022, Cure Sanfilippo Foundation employed 4 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Cure Sanfilippo Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, Cure Sanfilippo Foundation generated $2.7m in total revenue. This organization has experienced exceptional growth, as over the past 7 years, it has increased revenue by an average of 29.7% each year . All expenses for the organization totaled $2.3m during the year ending 12/2022. While expenses have increased by 31.3% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, Cure Sanfilippo Foundation has awarded 51 individual grants totaling $9,289,168. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO ADVOCATE FOR AND FUND RESEARCH DIRECTED TOWARDS A CURE OR TREATMENT OPTIONS FOR PATIENTS WITH SANFILIPPO SYNDROME
Describe the Organization's Program Activity:
Part 3 - Line 4a
TO ADVOCATE FOR AND FUND RESEARCH DIRECTED TOWARDS A CURE OR TREATMENT OPTIONS FOR PATIENTS WITH SANFILIPPO SYNDROME
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Glenn O'neill Exe Dir/pres | Officer | 50 | $135,200 |
Katie Walton Vice President | Officer | 40 | $108,150 |
Cara O'neill Chief Science | Officer | 40 | $87,500 |
Ben Von Wong Director | Trustee | 2 | $7,500 |
Daniel Fraley Board Chair | OfficerTrustee | 2 | $0 |
Faith Mcangus Director | Trustee | 2 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $246,024 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $1,992,589 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,238,613 |
| Total Program Service Revenue | $0 |
| Investment income | $118,758 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $364,841 |
| Net Income from Fundraising Events | -$16,548 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,707,445 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $1,243,718 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $390,281 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $330,850 |
| Compensation of current officers, directors, key employees. | $49,628 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $52,101 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $49,141 |
| Payroll taxes | $28,649 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $18,048 |
| Fees for services: Accounting | $17,680 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $42,276 |
| Office expenses | $10,237 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $9,822 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $9,976 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,172 |
| All other expenses | $18,270 |
| Total functional expenses | $2,287,097 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $1,127,606 |
| Savings and temporary cash investments | $790,274 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $25,453 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $3,871 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $7,678,566 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $9,625,770 |
| Accounts payable and accrued expenses | $21,192 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $21,192 |
| Net assets without donor restrictions | $9,604,578 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $9,625,770 |
Grants Awarded
Over the last fiscal year, Cure Sanfilippo Foundation has awarded $1,239,902 in support to 7 organizations.
| Grant Recipient | Amount |
|---|---|
ALBERT EINSTEIN COLLEGE OF ME PURPOSE: Screen plus newborn screening | $50,000 |
LUNDQUIST INSTITUTE PURPOSE: Open-label pilot study | $71,059 |
CLEMSON UNIVERSITY PURPOSE: Identifying Disease Modifiers in Dr | $85,000 |
PHOENIX NEST PURPOSE: Gene Therapy JLK-247 for regulatory | $51,750 |
REGENTS OF UC - SAN DIEGO PURPOSE: Novel Immune Deficient MPSIIIA | $128,958 |
REMOTOR THERAPEUTICS PURPOSE: Transplant MPSIII human neural syst | $466,500 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Cure Sanfilippo Foundation Columbia, SC | $9,625,770 | $2,707,445 |
Spirovation Inc Chapel Hill, NC | $13,873 | $836,558 |
Apfed Atlanta, GA | $841,530 | $776,844 |
North Carolina Foundation For Alcohol And Drug Studies Inc Greenville, NC | $550,092 | $152,642 |
Back To Healing Inc Snellville, GA | $9,327 | $0 |
Zeenat Qureshi Stroke Institute Johns Creek, GA | $157,571 | $0 |
Teamcbc Inc Fayetteville, NC | $2,323 | $0 |
Emily Brown Kocis Celebration Of Life Group Greer, SC | $6,063 | $0 |
Plasminogen Deficiency Foundation Durham, NC | $84,403 | $0 |
Glanzmanns Research Foundation Inc Augusta, GA | $397 | $0 |