Ehlers-Danlos Research Foundation
- Assets
- $320.8k
- Revenue
- $301.7k
- Investments
- $0.0
- Employees
- 2
- Location
- Pikesville, MD
- Founding
- Data as of
- 12/2021
- EIN
- 84-4482546
Organization Overview
Ehlers-Danlos Research Foundation is located in Pikesville, MD. According to its NTEE Classification (H80) the organization is classified as: Specifically Named Diseases Research, under the broad grouping of Medical Research and related organizations. As of 12/2021, Ehlers-Danlos Research Foundation employed 2 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. Ehlers-Danlos Research Foundation is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2021, Ehlers-Danlos Research Foundation generated $301.7k in total revenue. This organization has experienced exceptional growth, as over the past 2 years, it has increased revenue by an average of 66.0% each year . All expenses for the organization totaled $77.6k during the year ending 12/2021. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
PROMOTE AND INCREASE RESEARCH OF THE EHLERS-DANLOS SYNDROMES
Describe the Organization's Program Activity:
Part 3 - Line 4a
PROMOTE AND INCREASE RESEARCH OF THE EHLERS-DANLOS SYNDROMES
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jayne Gavrity Treasurer | Trustee | 3 | $0 |
Jennifer Spiegel Berman President | Trustee | 3 | $0 |
Dr Alissa Zingman Medical Director | Trustee | 6 | $0 |
Jessika Auerbach Fundraising Director | Trustee | 3 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $0 |
| All other contributions, gifts, grants, and similar amounts not included above | $301,721 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $301,721 |
| Total Program Service Revenue | $0 |
| Investment income | $0 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $0 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $301,721 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $63,477 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $5,206 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $1,650 |
| Fees for services: Accounting | $1,650 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $0 |
| Advertising and promotion | $0 |
| Office expenses | $0 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $0 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $0 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $0 |
| Insurance | $2,175 |
| All other expenses | $0 |
| Total functional expenses | $77,590 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $320,805 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $0 |
| Accounts receivable, net | $0 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $0 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $0 |
| Total assets | $320,805 |
| Accounts payable and accrued expenses | $0 |
| Grants payable | $0 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $0 |
| Net assets without donor restrictions | $0 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $320,805 |
| Total liabilities and net assets/fund balances | $320,805 |
Grants Recieved
Over the last fiscal year, we have identified 6 grants that Ehlers-Danlos Research Foundation has recieved totaling $131,357.
| Awarding Organization | Amount |
|---|---|
Ayco Charitable Foundation Cohoes, NY PURPOSE: MEDICAL / PUBLIC SERVICES | $100,000 |
Network For Good Inc Washington, DC PURPOSE: UNRESTRICTED | $10,719 |
American Endowment Foundation Hudson, OH PURPOSE: DISEASE/DISORDER | $10,000 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $5,250 |
Js Turner Family Foundation Minnetonka, MN PURPOSE: RESEARCH | $5,000 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $388 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Diabetes Research And Wellness Foundation Inc Washington, DC | $1,212,981 | $4,864,791 |
Center For Disease Dynamics Economics & Policy Inc Silver Spring, MD | $14,711,427 | $16,249,766 |
Hae International Fairfax, VA | $3,180,966 | $2,676,110 |
Foundation To Eradicate Duchenne Inc Alexandria, VA | $773,260 | $921,694 |
The Focus Foundation Inc Davidsonville, MD | $629,788 | $285,564 |
Bruce Edwards Als Research Foundation Inc Crownsville, MD | $227,432 | $0 |
Vascular Specialist Education Foundation Inc Virginia Beach, VA | $0 | $0 |
Scarring Alopecia Foundation Kulpsville, PA | $51,876 | $0 |
Virginia Diabetes Council Chesterfield, VA | $64,309 | $192,071 |
Ehlers-Danlos Research Foundation Pikesville, MD | $320,805 | $301,721 |
Selective Mutism Research Institute Flourtown, PA | $56,844 | $121,071 |
Diabetes National Institute Inc Chevy Chase, MD | $213,979 | $22,237 |