National Multiple Sclerosis Society
- Assets
- $201.5m
- Revenue
- $146.4m
- Investments
- $54.8k
- Employees
- 1,001
- Location
- New York, NY
- Founding
- 10/1947
- Data as of
- 09/2021
- EIN
- 13-5661935
Organization Overview
National Multiple Sclerosis Society is located in New York, NY. The organization was established in 1947. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 09/2021, National Multiple Sclerosis Society employed 1,001 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. National Multiple Sclerosis Society is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 09/2021, National Multiple Sclerosis Society generated $146.4m in total revenue. This represents relatively stable growth, over the past 6 years the organization has increased revenue by an average of 5.1% each year. All expenses for the organization totaled $138.4m during the year ending 09/2021. While expenses have increased by 2.8% per year over the past 6 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2015, National Multiple Sclerosis Society has awarded 707 individual grants totaling $214,144,249. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990T
Mission & Program ActivityExcerpts From the 990T Filing
TAX YEAR
2021
Describe the Organization's Mission:
Part 3 - Line 1
WE WILL CURE MS WHILE EMPOWERING PEOPLE AFFECTED BY MS TO LIVE THEIR BEST LIVES.
Describe the Organization's Program Activity:
SEE SCHEDULE OCLIENT AND COMMUNITY SERVICES - THE SOCIETY PROVIDES INFORMATION, RESOURCES, AND SUPPORT THAT SEEKS TO MEET THE NEEDS OF PEOPLE AFFECTED BY MS AS A WHOLE AND INDIVIDUALLY. THE SOCIETY IS COMMITTED TO OFFERING PROGRAMS FOR ALL PEOPLE REGARDLESS OF WHERE THEY LIVE OR WHERE THEY ARE IN THEIR MS JOURNEY. PROGRAMS, SERVICES AND RESOURCES FOR PEOPLE AFFECTED BY MS FACILITATE EDUCATION, RECREATION, PHYSICAL AND EMOTIONAL WELLNESS, PROVIDE FINANCIAL RESOURCES AND A CONNECTION FOR PEOPLE AFFECTED BY MS.MS NAVIGATORS PARTNER WITH INDIVIDUALS TO NAVIGATE THE CHALLENGES OF MS UNIQUE TO EACH SITUATION. THEY PROVIDE: INFORMATION AND EDUCATION; EMOTIONAL SUPPORT RESOURCES; ASSIST WITH THE COMPLEXITIES OF FINDING A HEALTHCARE PROVIDER, BENEFITS, INSURANCE AND ACCESS TO COVERAGE, AND EMPLOYMENT; RESOURCES TO FACE FINANCIAL CHALLENGES AND PLAN FOR THE FUTURE; WELLNESS STRATEGIES THAT CAN MAKE AN IMPACT ON QUALITY OF LIFE WITH MS; ASSESSMENT OF PERSONALIZED CASE MANAGEMENT; AND CRISIS INTERVENTION IN TIMES OF NEED. IN 2021, MS NAVIGATORS PROVIDED SUPPORT TO 34,376 PEOPLE. OUR SELF SERVICE APPLICATIONS ASSISTED AN ADDITIONAL 114,000 PEOPLE IN FINDING DOCTORS AND OTHER RESOURCES DIRECTLY.IN ADDITION, MORE THAN 20,000 PEOPLE PARTICIPATED IN 113 SOCIETY PROGRAMS (IN PERSON, PHONE BASED, AND ONLINE) ON TOPICS SUCH AS: COVID & MS, MS EDUCATION; HEALTH AND WELLNESS; FAMILY AND RELATIONSHIPS; FINANCIAL RESOURCES; MOBILITY AND ACCESSIBILITY; SOCIAL AND EMOTIONAL SUPPORT; AND RESEARCH AND CLINICAL TRIAL UPDATES.COMMUNITY PROGRAMS INCLUDE COLLABORATING WITH OTHER COMMUNITY ORGANIZATIONS, FOCUSING ON ACCESS TO HEALTHCARE, REHABILITATION, TREATMENTS AND THERAPIES; LONG-TERM CARE; DISABILITY RIGHTS ISSUES; VOCATIONAL TRAINING AND REHABILITATION, WELLNESS AND FITNESS; AND, OUTREACH AND EDUCATION TO RURAL AND UNDERSERVED POPULATIONS.
SEE SCHEDULE ORESEARCH AND SCIENTIFIC STUDIES - IN FISCAL 2021, THE SOCIETY INVESTED $28.8 MILLION TO SUPPORT 355 NEW AND ONGOING RESEARCH PROJECTS AROUND THE WORLD AIMED AT STOPPING MS IN ITS TRACKS, RESTORING FUNCTION, AND ENDING THE DISEASE FOREVER. THE SOCIETY ALSO PROVIDED RESCUE FUNDING TO QUALIFYING GRANTEES TO ENABLE WORK THAT HAD BEEN DISRUPTED BY COVID-19 TO CONTINUE WITH ADDITIONAL TIME AND FUNDING. THE SOCIETY ENGAGED 80 EXPERT PEER REVIEWERS TO EVALUATE 218 RESEARCH GRANTS, FELLOWSHIPS, AND TARGETED RESEARCH GRANT PROPOSALS, AND ENGAGED 10 LAY COMMUNITY REVIEWERS, TO HELP THE SOCIETY IDENTIFY THE MOST PROMISING AND APPROPRIATE RESEARCH INVESTMENTS.RESEARCH PRIORITY AREAS TO DRIVE BREAKTHROUGHS TO A CURE INCLUDE: ACCELERATING PROMISING RESEARCH TO EMPOWER PEOPLE AFFECTED BY MS TO LIVE THEIR BEST LIVES AND ADVANCE THE PATHWAYS TO MS CURES ROADMAP, INCLUDING: STOPPING DISEASE ACTIVITY AND PROGRESSION THROUGH PRECISION MEDICINE AND EARLY DETECTION; RESTORING WHAT'S BEEN LOST BY REVERSING SYMPTOMS AND DISABILITY THROUGH REGENERATION AND FUNCTIONAL RECOVERY ENHANCED BY REHABILITATION AND WELLNESS; AND ENDING THE DISEASE THROUGH PREVENTION BY LIMITING EXPOSURE TO RISK FACTORS ACROSS THE POPULATION AND FOR THOSE MOST AT-RISK.
SEE SCHEDULE OPUBLIC EDUCATION - THE SOCIETY SEEKS TO EXPAND AND DEEPEN THE INDIVIDUAL AND COLLECTIVE EXPERIENCES OF THE MS MOVEMENT. THIS INCLUDES EDUCATING THE PUBLIC ABOUT MULTIPLE SCLEROSIS INCLUDING THE SOCIETY'S AWARENESS CAMPAIGNS, PUBLIC SERVICE ANNOUNCEMENTS, MOMENTUM, WHICH IS THE SOCIETY'S FLAGSHIP MAGAZINE DISTRIBUTED QUARTERLY TO 556,000 PEOPLE LIVING WITH MULTIPLE SCLEROSIS, HEALTHCARE PROVIDERS, AND SUPPORTERS OF THE SOCIETY. THE COMMUNICATIONS PLAN INCLUDES OUTREACH ACROSS ONLINE AND OFFLINE CHANNELS AND BIWEEKLY EMAILS FROM THE CHIEF EXECUTIVE OFFICER WHICH REACH NEARLY 700,000 RECIPIENTS.IN ADDITION, MANY PEOPLE GET ENGAGED IN CONVERSATIONS VIA THE SOCIETY'S SOCIAL MEDIA, WITH MORE THAN 1 MILLION FOLLOWERS. 6.5 MILLION PEOPLE VISIT THE SOCIETY'S WEBSITE EACH YEAR TO ACCESS INFORMATION AND SUPPORT.
PROFESSIONAL EDUCATION AND TRAINING - THE SOCIETY WANTS SCIENTISTS AND HEALTHCARE PROFESSIONALS TO BE AWARE OF AND TRAINED IN MS SO THAT THE VERY BEST EXPERTISE WORLDWIDE IS ENGAGED IN FINDING TREATMENTS AND SOLUTIONS FOR EVERYONE WITH MS. THIS INCLUDES ACTIVITIES AND PROGRAMS DESIGNED TO IMPROVE THE KNOWLEDGE, SKILLS, AND CRITICAL JUDGEMENT OF SCIENTISTS, PHYSICIANS AND OTHER HEALTHCARE PROFESSIONALS ENGAGED (DIRECTLY OR INDIRECTLY) IN PROVIDING SERVICES TO PEOPLE LIVING WITH MS BY KEEPING THEM ABREAST OF NEW DIAGNOSTIC TECHNIQUES AND THERAPIES - 7,772 HEALTHCARE PROVIDERS PARTICIPATED IN THESE PROGRAMS DURING 2021. OF THOSE WHO ATTENDED, 94% REPORTED INCREASED KNOWLEDGE ABOUT MS CARE. IN 2021, HEALTHCARE PROVIDERS MADE 8,259 REFERRALS TO THE SOCIETY.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Cynthia Zagieboylo President & CEO | OfficerTrustee | 40 | $478,104 |
Maureen Reeder Former Evp, Lead & Org | 0 | $369,476 | |
John Scott Chief Mkt & Development Officer | Officer | 40 | $317,903 |
Tim Coetzee Chief Advoc, Svc & Science Officer | Officer | 40 | $304,314 |
Lisa Goldfarb Chief Ppl, Vol & Comm Eng Officer | Officer | 40 | $300,242 |
Paul Weiss Thru 11220 Chief Crm, Mkt & Tech Officer | Officer | 40 | $293,001 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Merkle Inc Direct Marketing | 9/29/21 | $7,624,477 |
Blackbaud Fundraising Software | 9/29/21 | $1,496,006 |
Accenture Llp Consulting | 9/29/21 | $939,511 |
Global Cloud Ltd Fundraising Software | 9/29/21 | $762,813 |
Event 360 Inc Event Production | 9/29/21 | $758,177 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $73,540,290 |
| Related organizations | $0 |
| Government grants | $368,594 |
| All other contributions, gifts, grants, and similar amounts not included above | $65,378,073 |
| Noncash contributions included in lines 1a–1f | $1,665,354 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $139,286,957 |
| Total Program Service Revenue | $0 |
| Investment income | $2,045,427 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $862,109 |
| Net Gain/Loss on Asset Sales | $2,836,896 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $146,424,652 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $24,337,763 |
| Grants and other assistance to domestic individuals. | $3,798,518 |
| Grants and other assistance to Foreign Orgs/Individuals | $2,457,456 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $3,321,305 |
| Compensation of current officers, directors, key employees. | $399,136 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $50,882,621 |
| Pension plan accruals and contributions | $1,702,718 |
| Other employee benefits | $9,904,499 |
| Payroll taxes | $4,013,397 |
| Fees for services: Management | $26,705 |
| Fees for services: Legal | $257,507 |
| Fees for services: Accounting | $142,980 |
| Fees for services: Lobbying | $66,658 |
| Fees for services: Fundraising | $2,900,044 |
| Fees for services: Investment Management | $295,710 |
| Fees for services: Other | $6,864,207 |
| Advertising and promotion | $2,326,516 |
| Office expenses | $2,790,984 |
| Information technology | $6,013,544 |
| Royalties | $0 |
| Occupancy | $8,636,875 |
| Travel | $106,386 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $55,581 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $1,200,254 |
| Insurance | $997,428 |
| All other expenses | $434,907 |
| Total functional expenses | $138,426,378 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $0 |
| Savings and temporary cash investments | $69,719,306 |
| Pledges and grants receivable | $12,985,774 |
| Accounts receivable, net | $564,364 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $4,947,845 |
| Net Land, buildings, and equipment | $1,185,527 |
| Investments—publicly traded securities | $107,677,857 |
| Investments—other securities | $54,759 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $4,347,917 |
| Total assets | $201,483,349 |
| Accounts payable and accrued expenses | $12,851,339 |
| Grants payable | $25,753,043 |
| Deferred revenue | $5,792,357 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $7,301,323 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $15,561,652 |
| Total liabilities | $67,259,714 |
| Net assets without donor restrictions | $74,684,207 |
| Net assets with donor restrictions | $59,539,428 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $201,483,349 |
Grants Awarded
Over the last fiscal year, National Multiple Sclerosis Society has awarded $25,699,897 in support to 100 organizations.
| Grant Recipient | Amount |
|---|---|
Somerville, MA PURPOSE: RESEARCH | $2,341,538 |
San Francisco, CA PURPOSE: RESEARCH | $1,868,713 |
Baltimore, MD PURPOSE: RESEARCH | $1,707,513 |
Saint Louis, MO PURPOSE: RESEARCH | $1,364,542 |
Salt Lake City, UT PURPOSE: RESEARCH | $1,053,219 |
OREGON HEALTH & SCIENCE UNIVERSITY PURPOSE: RESEARCH | $829,612 |
Grants Recieved
Over the last fiscal year, we have identified 27 grants that National Multiple Sclerosis Society has recieved totaling $31,847.
| Awarding Organization | Amount |
|---|---|
Burton Family Foundation Birmingham, AL PURPOSE: FIND THE CURE FOR MS WHILE EMPOWERING PEOPLE AFFECTED BY MS TO LIVE THEIR BEST LIVES. | $15,000 |
Shamrock Foods Foundation Phoenix, AZ PURPOSE: PROGRAM SUPPORT | $3,425 |
The@deborah And Ronald Eisenberg Family Foundation Inc Springfield, NJ PURPOSE: GENERAL | $2,500 |
Hannah & Frank Grossman Charitable Tr Frankfort, IL PURPOSE: PROGRAM SUPPORT | $2,500 |
Shelly And Neil Mitchell Family Foundation Springfield, NJ PURPOSE: GENERAL | $2,500 |
Our Purpose Foundation Mclean, VA PURPOSE: GRANT MAKING | $2,000 |
Endowment Analysis
| Beg. Balance | $20,280,605 |
| Earnings | $5,090,737 |
| Admin Expense | $44,755 |
| Net Contributions | $211,969 |
| Other Expense | $2,182,798 |
| Ending Balance | $23,355,758 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
National Multiple Sclerosis Society New York, NY | $201,483,349 | $146,424,652 |
The Multiple Myeloma Research Foundation Inc Norwalk, CT | $85,401,847 | $42,311,196 |
American Parkinson Disease Assoc Staten Island, NY | $24,594,206 | $19,021,103 |
Multiple Sclerosis Association Of America Inc Cherry Hill, NJ | $7,956,030 | $8,817,551 |
Operating Engineers Joint Sub Fund Of Eastern Pa & Delaware Fort Washington, PA | $22,353,627 | $5,658,208 |
Amyotrophic Lateral Sclerosis Association Ambler, PA | $5,488,148 | $5,518,176 |
Amyotrophic Lateral Sclerosis Association New York, NY | $7,108,895 | $5,803,291 |
Tourette Association Of America Inc Bayside, NY | $11,736,131 | $4,454,020 |
Als Association Western Pennsylvani A Chapter Pittsburgh, PA | $1,863,568 | $2,199,894 |
Dysautonomia Foundation Inc New York, NY | $2,301,553 | $2,387,593 |
Amyotrophic Lateral Sclerosis Association Westborough, MA | $3,303,462 | $2,795,826 |
Mckenzie Institute Inc Syracuse, NY | $2,178,526 | $1,635,507 |