Amyotrophic Lateral Sclerosis Association is located in New York, NY. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2022, Amyotrophic Lateral Sclerosis Association employed 31 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Amyotrophic Lateral Sclerosis Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 01/2022, Amyotrophic Lateral Sclerosis Association generated $5.8m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (7.8%) each year. All expenses for the organization totaled $4.8m during the year ending 01/2022. As we would expect to see with falling revenues, expenses have declined by (0.7%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
DISCOVER TREATMENTS & A CURE FOR ALS, & SERVE, ADVOCATE FOR, & EMPOWER PEOPLE AFFECTED BY ALS.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CARE SERVICES: THE ALS-GNY PROVIDES A WIDE RANGE OF SERVICES FOR PEOPLE WITH ALS AND THEIR FAMILIES LIVING IN NEW YORK CIY, LONG ISAND, WESTCHESTER, HUDSON VALLEY AND NORTHERN AND CENTRAL NEW JERSEY. THE ALS-GNY SPONSORS TEN MULTIDISCIPLINARY CLINICS IN THE REGION, MAKES LOANS OF MEDICAL EQUIPMENT AND ASSISTIVE COMMUNICATION DEVICES, PROVIDES GRANTS TO PATIENTS TO ALLEVIATE SOME OF THE CONSIDERABLE FINANCIAL BURDEN OF THE DISEASE, HOLDS PATIENT AND CAREGIVER EDUCATIONAL SYMPOSIA AND MONTHLY SUPPORT GROUPS, CONDUCTS HOME VISITS, PROVIDES TRANSPORTATION TO QUARTERLY CLINIC APPOINTMENTS, AND OFFERS SOCIAL WORK AND REFERRAL SERVICES.
RESEARCH: THE ALS-GNY DIRECTS THE MOST COMPREHENSIVE GLOBAL RESEARCH PROGRAM EVER ORGANIZED TO FIND A CURE FOR ALS. SINCE THE CHAPTER'S INCEPTION, WE HAVE FUNDED MORE THAN $15 MILLION IN RESEARCH EFFORTS TO SUPPORT INNOVATIVE AND DIVERSE SCIENTIFIC RESEARCH STUDIES AND CLINICAL TRIALS WORLDWIDE. THE CHAPTER IS PARTICULARLY PROUD TO SUPPORT THE MILTON SAFENOWITZ POST-DOCTORAL FELLOWSHIP PROGRAM, WHICH ENCOURAGES AND FACILITATES PROMISING YOUNG SCIENTISTS TO FOCUS THEIR FUTURE WORK IN THE FIELD OF ALS RESEARCH.
PUBLIC AWARENESS AND EDUCATION: THE ALS-GNY WORKS TO PROMOTE AWARENESS TO AFFECTED FAMILIES TO HELP THEM UNDERSTAND ALL FACETS OF THE COMPLEX AND DEVASTATING DISEASE THAT IS ALS, AS WELL AS THE WORK OF THE ALS ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, AND THE SCIENTIFIC COMMUNITY. THROUGH EXTERNAL RELATIONS, OUR WEBSITE AND SOCIAL MEDIA CHANNELS, THE ALS-GNY CONTINUALLY RAISES AWARENESS ABOUT ALS AND THE SEARCH FOR A CURE. ON AVERAGE, 17,000 VIEWERS VISIT OUR WEBSITE EACH QUARTER TO ACCESS THIS VITAL SOURCE OF INFORMATION FOR THOSE BATTLING THE DISEASE AND LOOKING FOR INFORMATION ABOUT SERVICES AND THE LATEST NEWS ABOUT THE DISEASE. OUR SOCIAL MEDIA PLATFORMS, INCLUDING FACEBOOK, INSTAGRAM, YOUTUBE, TWITTER AND LINKEDIN REACH MORE THAN 13,000 FOLLOWERS.
ADVOCACY: THE ALS-GNY IS THE LARGEST AND MOST INFLUENTIAL NATIONAL ORGANIZATION IN THE U.S. FOCUSED SOLELY ON ALS. OUR GOAL IS TO EDUCATE THE PUBLIC AS WELL AS POLICY MAKERS AT THE FEDERAL AND STATE LEVELS, AND TO DRIVE TOWARD SMART DECISIONS ABOUT ALS RELATED TO RESEARCH, TREATMENT AND ACCESS TO CARE. AT THE FEDERAL LEVEL, THE ALS-GNY HAS BEEN INSTRUMENTAL IN SECURING ANNUAL FUNDING FOR THE DEPARTMENT OF DEFENSE'S ALS RESEARCH PROGRAM, THE NATIONAL ALS REGISTRY AT THE CENTERS FOR DISEASE CONTROL, AND THE NATIONAL INSTITUTES OF HEALTH ALS RESEARCH PROGRAM. AT THE STATE LEVEL, THE ALS-GNY CONTINUES TO BUILD RELATIONSHIPS WITH THE NEW YORK AND NEW JERSEY STATE LEGISLATURES TO SECURE GOVERNMENT FUNDING FOR LOCAL CARE SERVICES THAT DIERECTLY BENEFIT PEOPLE WITH ALS AND THEIR FAMILIES.
Name (title) | Role | Hours | Compensation |
---|---|---|---|
Kristen Cocoman President & CEO | Officer | 40 | $222,291 |
Regina Ackley Vice Pres & Chief Operating Officer | Officer | 40 | $179,656 |
Vivian Banks Director Of Individual And Institutional Giving | 40 | $100,846 | |
Allen J Popowitz ESQ Chairman | OfficerTrustee | 4 | $0 |
Lennard Katz Vice Chairman | OfficerTrustee | 4 | $0 |
W Marc Lane Treasurer | OfficerTrustee | 4 | $0 |
Statement of Revenue | |
---|---|
Federated campaigns | $150 |
Membership dues | $0 |
Fundraising events | $2,241,697 |
Related organizations | $0 |
Government grants | $1,531,418 |
All other contributions, gifts, grants, and similar amounts not included above | $2,245,200 |
Noncash contributions included in lines 1a–1f | $60,065 |
Total Revenue from Contributions, Gifts, Grants & Similar | $6,018,465 |
Total Program Service Revenue | $0 |
Investment income | $171,121 |
Tax Exempt Bond Proceeds | $0 |
Royalties | $0 |
Net Rental Income | $0 |
Net Gain/Loss on Asset Sales | $15,586 |
Net Income from Fundraising Events | -$740,356 |
Net Income from Gaming Activities | $0 |
Net Income from Sales of Inventory | $0 |
Miscellaneous Revenue | $0 |
Total Revenue | $5,803,291 |
Statement of Expenses | |
---|---|
Grants and other assistance to domestic organizations and domestic governments. | $0 |
Grants and other assistance to domestic individuals. | $65,764 |
Grants and other assistance to Foreign Orgs/Individuals | $0 |
Benefits paid to or for members | $0 |
Compensation of current officers, directors, key employees. | $412,105 |
Compensation of current officers, directors, key employees. | $38,833 |
Compensation to disqualified persons | $0 |
Other salaries and wages | $1,341,567 |
Pension plan accruals and contributions | $37,012 |
Other employee benefits | $188,796 |
Payroll taxes | $157,773 |
Fees for services: Management | $0 |
Fees for services: Legal | $49,861 |
Fees for services: Accounting | $33,850 |
Fees for services: Lobbying | $35,393 |
Fees for services: Fundraising | $0 |
Fees for services: Investment Management | $0 |
Fees for services: Other | $0 |
Advertising and promotion | $0 |
Office expenses | $84,036 |
Information technology | $0 |
Royalties | $0 |
Occupancy | $96,160 |
Travel | $175 |
Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
Conferences, conventions, and meetings | $110 |
Interest | $0 |
Payments to affiliates | $253,530 |
Depreciation, depletion, and amortization | $49,392 |
Insurance | $11,830 |
All other expenses | $0 |
Total functional expenses | $4,768,654 |
Balance Sheet | |
---|---|
Cash—non-interest-bearing | $872,815 |
Savings and temporary cash investments | $993,965 |
Pledges and grants receivable | $982,953 |
Accounts receivable, net | $0 |
Loans from Officers, Directors, or Controlling Persons | $0 |
Loans from Disqualified Persons | $0 |
Notes and loans receivable | $0 |
Inventories for sale or use | $0 |
Prepaid expenses and deferred charges | $127,394 |
Net Land, buildings, and equipment | $59,857 |
Investments—publicly traded securities | $4,043,453 |
Investments—other securities | $0 |
Investments—program-related | $0 |
Intangible assets | $0 |
Other assets | $28,458 |
Total assets | $7,108,895 |
Accounts payable and accrued expenses | $135,769 |
Grants payable | $0 |
Deferred revenue | $244,956 |
Tax-exempt bond liabilities | $0 |
Escrow or custodial account liability | $0 |
Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
Secured mortgages and notes payable | $0 |
Unsecured mortgages and notes payable | $0 |
Other liabilities | $0 |
Total liabilities | $380,725 |
Net assets without donor restrictions | $6,255,553 |
Net assets with donor restrictions | $472,617 |
Capital stock or trust principal, or current funds | $0 |
Paid-in or capital surplus, or land, building, or equipment fund | $0 |
Retained earnings, endowment, accumulated income, or other funds | $0 |
Total liabilities and net assets/fund balances | $7,108,895 |
Over the last fiscal year, we have identified 21 grants that Amyotrophic Lateral Sclerosis Association has recieved totaling $207,154.
Awarding Organization | Amount |
---|---|
Edwin J Hoffritz Tr Uw Article Seventh Chicago, IL PURPOSE: GENERAL | $45,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $41,981 |
Jewish Communal Fund New York, NY PURPOSE: GENERAL SUPPORT | $32,073 |
Schwab Charitable Fund San Francisco, CA PURPOSE: HEALTH | $25,993 |
Fjc New York, NY PURPOSE: UNRESTRICTED GENERAL SUPPORT | $16,829 |
Ayco Charitable Foundation Cohoes, NY PURPOSE: MEDICAL / PUBLIC SERVICES | $14,200 |
Beg. Balance | $4,740,658 |
Earnings | $71,743 |
Net Contributions | $1,132,953 |
Other Expense | $1,141,031 |
Ending Balance | $4,804,323 |
Organization Name | Assets | Revenue |
---|---|---|
American Parkinson Disease Assoc Staten Island, NY | $24,594,206 | $19,021,103 |
Multiple Sclerosis Association Of America Inc Cherry Hill, NJ | $7,956,030 | $8,817,551 |
Operating Engineers Joint Sub Fund Of Eastern Pa & Delaware Fort Washington, PA | $22,353,627 | $5,658,208 |
Amyotrophic Lateral Sclerosis Association Ambler, PA | $5,488,148 | $5,518,176 |
Amyotrophic Lateral Sclerosis Association New York, NY | $7,108,895 | $5,803,291 |
Tourette Association Of America Inc Bayside, NY | $11,736,131 | $4,454,020 |
Als Association Western Pennsylvani A Chapter Pittsburgh, PA | $1,863,568 | $2,199,894 |
Dysautonomia Foundation Inc New York, NY | $2,301,553 | $2,387,593 |
Amyotrophic Lateral Sclerosis Association Westborough, MA | $3,303,462 | $2,795,826 |
Mckenzie Institute Inc Syracuse, NY | $2,178,526 | $1,635,507 |
Accelerated Cure Project Inc Waltham, MA | $2,403,217 | $1,739,123 |
Amyotrophic Lateral Sclerosis Association Milford, CT | $2,655,935 | $1,541,822 |