Amyotrophic Lateral Sclerosis Association

Organization Overview

Amyotrophic Lateral Sclerosis Association is located in New York, NY. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2022, Amyotrophic Lateral Sclerosis Association employed 31 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Amyotrophic Lateral Sclerosis Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 01/2022, Amyotrophic Lateral Sclerosis Association generated $5.8m in total revenue. This represents a relatively dramatic decline in revenue. Over the past 7 years, the organization has seen revenues fall by an average of (7.8%) each year. All expenses for the organization totaled $4.8m during the year ending 01/2022. As we would expect to see with falling revenues, expenses have declined by (0.7%) per year over the past 7 years. You can explore the organizations financials more deeply in the financial statements section below.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

DISCOVER TREATMENTS & A CURE FOR ALS, & SERVE, ADVOCATE FOR, & EMPOWER PEOPLE AFFECTED BY ALS.

Describe the Organization's Program Activity:

Part 3 - Line 4a

CARE SERVICES: THE ALS-GNY PROVIDES A WIDE RANGE OF SERVICES FOR PEOPLE WITH ALS AND THEIR FAMILIES LIVING IN NEW YORK CIY, LONG ISAND, WESTCHESTER, HUDSON VALLEY AND NORTHERN AND CENTRAL NEW JERSEY. THE ALS-GNY SPONSORS TEN MULTIDISCIPLINARY CLINICS IN THE REGION, MAKES LOANS OF MEDICAL EQUIPMENT AND ASSISTIVE COMMUNICATION DEVICES, PROVIDES GRANTS TO PATIENTS TO ALLEVIATE SOME OF THE CONSIDERABLE FINANCIAL BURDEN OF THE DISEASE, HOLDS PATIENT AND CAREGIVER EDUCATIONAL SYMPOSIA AND MONTHLY SUPPORT GROUPS, CONDUCTS HOME VISITS, PROVIDES TRANSPORTATION TO QUARTERLY CLINIC APPOINTMENTS, AND OFFERS SOCIAL WORK AND REFERRAL SERVICES.


RESEARCH: THE ALS-GNY DIRECTS THE MOST COMPREHENSIVE GLOBAL RESEARCH PROGRAM EVER ORGANIZED TO FIND A CURE FOR ALS. SINCE THE CHAPTER'S INCEPTION, WE HAVE FUNDED MORE THAN $15 MILLION IN RESEARCH EFFORTS TO SUPPORT INNOVATIVE AND DIVERSE SCIENTIFIC RESEARCH STUDIES AND CLINICAL TRIALS WORLDWIDE. THE CHAPTER IS PARTICULARLY PROUD TO SUPPORT THE MILTON SAFENOWITZ POST-DOCTORAL FELLOWSHIP PROGRAM, WHICH ENCOURAGES AND FACILITATES PROMISING YOUNG SCIENTISTS TO FOCUS THEIR FUTURE WORK IN THE FIELD OF ALS RESEARCH.


PUBLIC AWARENESS AND EDUCATION: THE ALS-GNY WORKS TO PROMOTE AWARENESS TO AFFECTED FAMILIES TO HELP THEM UNDERSTAND ALL FACETS OF THE COMPLEX AND DEVASTATING DISEASE THAT IS ALS, AS WELL AS THE WORK OF THE ALS ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, AND THE SCIENTIFIC COMMUNITY. THROUGH EXTERNAL RELATIONS, OUR WEBSITE AND SOCIAL MEDIA CHANNELS, THE ALS-GNY CONTINUALLY RAISES AWARENESS ABOUT ALS AND THE SEARCH FOR A CURE. ON AVERAGE, 17,000 VIEWERS VISIT OUR WEBSITE EACH QUARTER TO ACCESS THIS VITAL SOURCE OF INFORMATION FOR THOSE BATTLING THE DISEASE AND LOOKING FOR INFORMATION ABOUT SERVICES AND THE LATEST NEWS ABOUT THE DISEASE. OUR SOCIAL MEDIA PLATFORMS, INCLUDING FACEBOOK, INSTAGRAM, YOUTUBE, TWITTER AND LINKEDIN REACH MORE THAN 13,000 FOLLOWERS.


ADVOCACY: THE ALS-GNY IS THE LARGEST AND MOST INFLUENTIAL NATIONAL ORGANIZATION IN THE U.S. FOCUSED SOLELY ON ALS. OUR GOAL IS TO EDUCATE THE PUBLIC AS WELL AS POLICY MAKERS AT THE FEDERAL AND STATE LEVELS, AND TO DRIVE TOWARD SMART DECISIONS ABOUT ALS RELATED TO RESEARCH, TREATMENT AND ACCESS TO CARE. AT THE FEDERAL LEVEL, THE ALS-GNY HAS BEEN INSTRUMENTAL IN SECURING ANNUAL FUNDING FOR THE DEPARTMENT OF DEFENSE'S ALS RESEARCH PROGRAM, THE NATIONAL ALS REGISTRY AT THE CENTERS FOR DISEASE CONTROL, AND THE NATIONAL INSTITUTES OF HEALTH ALS RESEARCH PROGRAM. AT THE STATE LEVEL, THE ALS-GNY CONTINUES TO BUILD RELATIONSHIPS WITH THE NEW YORK AND NEW JERSEY STATE LEGISLATURES TO SECURE GOVERNMENT FUNDING FOR LOCAL CARE SERVICES THAT DIERECTLY BENEFIT PEOPLE WITH ALS AND THEIR FAMILIES.


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Financial Statements

Statement of Revenue
Federated campaigns$150
Membership dues$0
Fundraising events$2,241,697
Related organizations$0
Government grants $1,531,418
All other contributions, gifts, grants, and similar amounts not included above$2,245,200
Noncash contributions included in lines 1a–1f $60,065
Total Revenue from Contributions, Gifts, Grants & Similar$6,018,465
Total Program Service Revenue$0
Investment income $171,121
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $15,586
Net Income from Fundraising Events -$740,356
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $5,803,291

Grants Recieved

Over the last fiscal year, we have identified 21 grants that Amyotrophic Lateral Sclerosis Association has recieved totaling $207,154.

Awarding OrganizationAmount
Edwin J Hoffritz Tr Uw Article Seventh

Chicago, IL

PURPOSE: GENERAL

$45,000
American Online Giving Foundation Inc

Newark, DE

PURPOSE: GENERAL SUPPORT

$41,981
Jewish Communal Fund

New York, NY

PURPOSE: GENERAL SUPPORT

$32,073
Schwab Charitable Fund

San Francisco, CA

PURPOSE: HEALTH

$25,993
Fjc

New York, NY

PURPOSE: UNRESTRICTED GENERAL SUPPORT

$16,829
Ayco Charitable Foundation

Cohoes, NY

PURPOSE: MEDICAL / PUBLIC SERVICES

$14,200
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$4,740,658
Earnings$71,743
Net Contributions$1,132,953
Other Expense$1,141,031
Ending Balance$4,804,323

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