Amyotrophic Lateral Sclerosis Assn
- Assets
- $98.3m
- Revenue
- $39.8m
- Investments
- $0.0
- Employees
- 151
- Location
- Arlington, VA
- Founding
- 07/1990
- Data as of
- 01/2022
- EIN
- 13-3271855
Organization Overview
Amyotrophic Lateral Sclerosis Assn, operating under the name The Als Association, is located in Arlington, VA. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2022, Als Association employed 151 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes. Als Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 01/2022, Als Association generated $39.8m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 6.5% each year. All expenses for the organization totaled $44.9m during the year ending 01/2022. While expenses have increased by 3.4% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Since 2016, Als Association has awarded 1,244 individual grants totaling $118,109,057. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES.
Describe the Organization's Program Activity:
Part 3 - Line 4a
RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS).
PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION'S NATIONAL CARE SERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OF CHAPTERS, IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES.
PUBLIC AND PROFESSIONAL EDUCATION: THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY, AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31, 2022, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Calaneet Balas President And CEO | Officer | 37.5 | $351,501 |
Greg Mitchell Chief Financial Officer | Officer | 37.5 | $261,808 |
Neil Thakur Chief Mission Officer | Officer | 37.5 | $245,753 |
Tina Zeff Chief Operations Officer | Officer | 37.5 | $242,773 |
Lance Slaughter Svp, Strategic Alliances & Governance | 37.5 | $236,295 | |
Brian Frederick Svp, And Head Of Creative | 37.5 | $226,668 |
Outside Vendors & Contractors
| Vendor Name (Service) | Service Year | Compensation |
|---|---|---|
Mcdermott Will & Emery Attorney | 1/30/22 | $619,553 |
Beyond Definition Communication Consulting | 1/30/22 | $375,461 |
Attain Llc Crm Software Implementation | 1/30/22 | $862,834 |
Salesforce Crm Software Vendor | 1/30/22 | $887,657 |
Turnkey Promotions Marketing Consulting Services | 1/30/22 | $848,590 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $64,816 |
| Membership dues | $0 |
| Fundraising events | $1,470,494 |
| Related organizations | $0 |
| Government grants | $5,684,058 |
| All other contributions, gifts, grants, and similar amounts not included above | $30,338,156 |
| Noncash contributions included in lines 1a–1f | $954,115 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $37,557,524 |
| Total Program Service Revenue | $0 |
| Investment income | $2,158,934 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $54,926 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $39,792,803 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $13,022,773 |
| Grants and other assistance to domestic individuals. | $150,399 |
| Grants and other assistance to Foreign Orgs/Individuals | $2,150,770 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $1,849,349 |
| Compensation of current officers, directors, key employees. | $778,698 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $9,897,540 |
| Pension plan accruals and contributions | $455,465 |
| Other employee benefits | $780,326 |
| Payroll taxes | $895,274 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $745,098 |
| Fees for services: Accounting | $96,574 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $333,300 |
| Fees for services: Investment Management | $224,531 |
| Fees for services: Other | $8,697,134 |
| Advertising and promotion | $237,864 |
| Office expenses | $313,488 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $555,067 |
| Travel | $750,378 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $151,946 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $1,710,428 |
| Insurance | $0 |
| All other expenses | $117,298 |
| Total functional expenses | $44,852,298 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $5,640,945 |
| Savings and temporary cash investments | $924,888 |
| Pledges and grants receivable | $4,188,908 |
| Accounts receivable, net | $2,518,929 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $1,639,445 |
| Net Land, buildings, and equipment | $3,378,855 |
| Investments—publicly traded securities | $78,900,690 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $1,150,423 |
| Total assets | $98,343,083 |
| Accounts payable and accrued expenses | $3,519,829 |
| Grants payable | $1,150,000 |
| Deferred revenue | $0 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $2,583,421 |
| Total liabilities | $7,253,250 |
| Net assets without donor restrictions | $79,396,160 |
| Net assets with donor restrictions | $11,693,673 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $98,343,083 |
Grants Awarded
Over the last fiscal year, Amyotrophic Lateral Sclerosis Assn has awarded $12,307,984 in support to 147 organizations.
| Grant Recipient | Amount |
|---|---|
Shrewsbury, MA PURPOSE: STRATEGTIC INITIATIVE | $1,109,018 |
Somerville, MA PURPOSE: STRATEGTIC INITIATIVE | $1,000,000 |
New York, NY PURPOSE: STRATEGTIC INITIATIVE | $575,000 |
Gainesville, FL PURPOSE: CLINICAL TRIAL AWARD | $500,000 |
RAPA THERAPEUTICS LLC PURPOSE: CLINICAL TRIAL AWARD | $500,000 |
Somerville, MA PURPOSE: STRATEGTIC INITIATIVE | $300,539 |
Grants Recieved
Over the last fiscal year, we have identified 1 grants that Amyotrophic Lateral Sclerosis Assn has recieved totaling $5,500.
| Awarding Organization | Amount |
|---|---|
Mudge Foundation 4942-0 Pittsburgh, PA PURPOSE: GENERAL SUPPORT | $5,500 |
Endowment Analysis
| Beg. Balance | $6,516,315 |
| Earnings | $429,109 |
| Other Expense | $435,694 |
| Ending Balance | $6,509,730 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Amyotrophic Lateral Sclerosis Assn Arlington, VA | $98,343,083 | $39,792,803 |
National Osteoporosis Foundation Arlington, VA | $8,108,231 | $4,451,574 |
Project Als Inc Huntingtown, MD | $1,558,325 | $2,611,375 |
Amyotrophic Lateral Sclerosis Association Rockville, MD | $2,372,268 | $2,861,706 |
Amyotrophic Lateral Sclerosis Association Raleigh, NC | $3,676,425 | $2,631,845 |
American Cleft Palate-Craniofacial Association Chapel Hill, NC | $4,385,249 | $2,071,636 |
Amyotrophic Lateral Sclerosis Association Brentwood, TN | $1,027,246 | $1,172,897 |
M M & P Joint Employment Committee Linthicum Heights, MD | $1,770,508 | $1,369,937 |
National Commission On Orthotic And Prosthetic Education Inc Alexandria, VA | $3,165,139 | $1,303,800 |
Virginia Gentlemens Foundation Inc Virginia Beach, VA | $9,341,896 | $926,664 |
Options Inc Morganton, NC | $578,906 | $634,206 |
Reston Town Center Joint Committee Manassas, VA | $1,676,760 | $735,316 |