Amyotrophic Lateral Sclerosis Association
- Assets
- $3.7m
- Revenue
- $2.6m
- Investments
- $0.0
- Employees
- 17
- Location
- Raleigh, NC
- Founding
- 07/1990
- Data as of
- 01/2022
- EIN
- 56-1609591
Organization Overview
Amyotrophic Lateral Sclerosis Association, operating under the name The Als Association North Carolina, is located in Raleigh, NC. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2022, Als Association North Carolina employed 17 individuals. This organization is a subordinate organization within an affiliated group for tax-exemption purposes. Als Association North Carolina is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 01/2022, Als Association North Carolina generated $2.6m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 4.5% each year. All expenses for the organization totaled $2.1m during the year ending 01/2022. While expenses have increased by 0.4% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990
Mission & Program ActivityExcerpts From the 990 Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
Describe the Organization's Program Activity:
Part 3 - Line 4a
CARE SERVICES IS A PROGRAM THAT SERVES FAMILIES LIVING WITH ALS IN ALL 100 COUNTIES IN NORTH CAROLINA. DESPITE THE DISRUPTION CAUSED BY THE ONGOING COVID-19 PANDEMIC, NO CUTS WERE MADE TO ANY CRUCIAL PROGRAMS OR SERVICES. THE ALS ASSOCIATION NORTH CAROLINA CHAPTER CONTINUES TO SUPPORT ALL ALS CLINICS IN NORTH CAROLINA, MAINTAIN A MEDICAL EQUIPMENT LOAN PROGRAM, HOST MONTHLY SUPPORT GROUPS, AND PROVIDE FINANCIAL SUPPORT TO FAMILIES TO HELP ALLEVIATE STRESS RELATED TO THE COST OF MEDICAL TREATMENTS AND SERVICES FOR ALS AS IDENTIFIED IN THE FOCUS SURVEY "UNDERSTANDING INSURANCE NEEDS AND FINANCIAL BURDENS." IN THE 2022 FISCAL YEAR ALSNC HELD 82 SUPPORT GROUP MEETINGS (MOVED TO ONLINE OR TELEPHONE GROUPS), LOANED 480 PIECES OF DURABLE MEDICAL EQUIPMENT, PAID FOR MORE THAN 4,500 HOURS OF IN-HOME CARE, AND SUPPORTED OUR MULTIDISCIPLINARY CLINICS THAT SERVED 898 PATIENTS.
THE GLOBAL RESEARCH PROGRAM PROVIDES FUNDING TO THE ALS ASSOCIATION NATIONAL OFFICE TO SUPPORT INTERNATIONAL MEDICAL RESEARCH TO DISCOVER EFFECTIVE TREATMENTS AND A CURE FOR ALS.
THE PUBLIC EDUCATION AND AWARENESS PROGRAM IS DESIGNED TO INCREASE UNDERSTANDING, EDUCATION, AND AWARENESS OF THE IMPACT OF ALS AND THE ROLE THAT THE ASSOCIATION PLAYS IN PROVIDING CARE SERVICES, ADVANCING GLOBAL ALS RESEARCH, AND ADVANCING IMPORTANT PUBLIC POLICY INITIATIVES.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Jerry Dawson President An | Officer | 44 | $168,000 |
David Shore Chief Operat | Officer | 44 | $107,923 |
Christy Hall Secretary | OfficerTrustee | 3 | $0 |
Denise Kirkland Chair | OfficerTrustee | 15 | $0 |
Douglas Noreen Vice Chair | OfficerTrustee | 6 | $0 |
Robert Whited Treasurer | OfficerTrustee | 3 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $0 |
| Fundraising events | $1,122,344 |
| Related organizations | $0 |
| Government grants | $577,916 |
| All other contributions, gifts, grants, and similar amounts not included above | $900,080 |
| Noncash contributions included in lines 1a–1f | $102,400 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $2,600,340 |
| Total Program Service Revenue | $0 |
| Investment income | $179,500 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | -$27,183 |
| Net Income from Fundraising Events | -$120,812 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $0 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,631,845 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $0 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $278,390 |
| Compensation of current officers, directors, key employees. | $21,980 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $360,585 |
| Pension plan accruals and contributions | $35,325 |
| Other employee benefits | $116,421 |
| Payroll taxes | $72,076 |
| Fees for services: Management | $0 |
| Fees for services: Legal | $0 |
| Fees for services: Accounting | $19,410 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $22,351 |
| Fees for services: Other | $133,389 |
| Advertising and promotion | $1,432 |
| Office expenses | $21,125 |
| Information technology | $52,514 |
| Royalties | $0 |
| Occupancy | $88,720 |
| Travel | $0 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $5,546 |
| Interest | $2,427 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $26,023 |
| Insurance | $7,049 |
| All other expenses | $8,292 |
| Total functional expenses | $2,091,197 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $269,447 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $236,753 |
| Accounts receivable, net | $254,487 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $0 |
| Prepaid expenses and deferred charges | $14,894 |
| Net Land, buildings, and equipment | $148,557 |
| Investments—publicly traded securities | $2,737,944 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $14,343 |
| Total assets | $3,676,425 |
| Accounts payable and accrued expenses | $293,556 |
| Grants payable | $10,000 |
| Deferred revenue | $45,440 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $348,996 |
| Net assets without donor restrictions | $3,327,429 |
| Net assets with donor restrictions | $0 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $3,676,425 |
Grants Recieved
Over the last fiscal year, we have identified 9 grants that Amyotrophic Lateral Sclerosis Association has recieved totaling $32,254.
| Awarding Organization | Amount |
|---|---|
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $23,068 |
Chc Creating Healthier Communities Alexandria, VA PURPOSE: RESEARCH/PUBLICEDUCATION | $7,086 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $1,000 |
Reynolds American Foundation Winston Salem, NC PURPOSE: CHARITABLE ACTIVITIES | $550 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $175 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $150 |
Endowment Analysis
| Beg. Balance | $2,909,687 |
| Earnings | $36,776 |
| Admin Expense | $22,351 |
| Net Contributions | $597,725 |
| Other Expense | $783,893 |
| Ending Balance | $2,737,977 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Multiple Sclerosis Center Of Georgia Inc Atlanta, GA | $14,597,977 | $12,400,152 |
National Osteoporosis Foundation Arlington, VA | $8,108,231 | $4,451,574 |
Amyotrophic Lateral Sclerosis Association Raleigh, NC | $3,676,425 | $2,631,845 |
American Cleft Palate-Craniofacial Association Chapel Hill, NC | $4,385,249 | $2,071,636 |
Amyotrophic Lateral Sclerosis Association Brentwood, TN | $1,027,246 | $1,172,897 |
National Commission On Orthotic And Prosthetic Education Inc Alexandria, VA | $3,165,139 | $1,303,800 |
Virginia Gentlemens Foundation Inc Virginia Beach, VA | $9,341,896 | $926,664 |
Options Inc Morganton, NC | $578,906 | $634,206 |
Next Step Atlanta Inc Alpharetta, GA | $246,220 | $603,149 |
Reston Town Center Joint Committee Manassas, VA | $1,676,760 | $735,316 |
National Caucus & Ctr On Black Aged Housing Serv Of Ms Iv Inc Memphis, TN | $1,942,390 | $371,072 |
Racing For Als Inc Apex, NC | $207,853 | $264,600 |