American Cleft Palate-Craniofacial Association
- Assets
- $4.4m
- Revenue
- $2.1m
- Investments
- $0.0
- Employees
- 7
- Location
- Chapel Hill, NC
- Founding
- 01/1956
- Data as of
- 12/2022
- EIN
- 43-0793521
Organization Overview
American Cleft Palate-Craniofacial Association is located in Chapel Hill, NC. The organization was established in 1956. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 12/2022, American Cleft Palate-Craniofacial Association employed 7 individuals. This organization is an independent organization and not affiliated with a larger national or regional group of organizations. American Cleft Palate-Craniofacial Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.
For the year ending 12/2022, American Cleft Palate-Craniofacial Association generated $2.1m in total revenue. This represents relatively stable growth, over the past 8 years the organization has increased revenue by an average of 0.9% each year. All expenses for the organization totaled $1.5m during the year ending 12/2022. While expenses have increased by 2.9% per year over the past 8 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.
Form
990T
Mission & Program ActivityExcerpts From the 990T Filing
TAX YEAR
2022
Describe the Organization's Mission:
Part 3 - Line 1
CREATING A WORLD WHERE PEOPLE WITH CLEFT AND CRANIOFACIAL CONDITIONS THRIVE.
Describe the Organization's Program Activity:
PROFESSIONAL EDUCATION RELATED TO CLINICAL CARE AND RESEARCH A) TO EDUCATE CONCERNED PROFESSIONALS ABOUT NEW CLINICAL AND RESEARCH INFORMATION B) TO PROVIDE AN OPPORTUNITY FOR THE INVOLVED PROFESSIONALS TO UPDATE THEIR KNOWLEDGE AND SKILLS OF THEIR OWN AND RELATED DISCIPLINES C) TO CREATE AN ENVIRONMENT THAT ENCOURAGES INTERACTION AMONG MULTIDISCIPLINARY PARTICIPANTS D) TO PUBLISH A JOURNAL TO COMMUNICATE RELEVANT INFORMATION TO PROFESSIONALS.
MEMBERSHIP AND TEAM SERVICES A) TO CREATE AND MAINTAIN A DIVERSE NETWORK OF PROFESSIONALS INVOLVED WITH CLINICAL TEAM CARE AND RESEARCH RELATING TO INDIVIDUALS AFFECTED BY CLEFT LIP, CLEFT PALATE, AND OTHER CRANIOFACIAL ABNORMALITIES B)TO PARTNER WITH FAMILY SERVICES TO IMPROVE THE QUALITY OF TEAM CARE AND ADVOCATE FOR IMPROVED PATIENT CARE.
OUTREACH AND ALLIANCES A) TO EDUCATE THE PUBLIC ABOUT THE IMPORTANCE OF TEAM CARE AS IT RELATES TO INDIVIDUALS AFFECTED BY FACIAL BIRTH DEFECTS B) TO PARTNER WITH ALLIED ORGANIZATIONS TO ENHANCE CAPABILITIES TO ACHIEVE STRATEGIC OBJECTIVES RELATED TO PATIENT CARE.
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Board, Officers & Key Employees
| Name (title) | Role | Hours | Compensation |
|---|---|---|---|
Adam Levy Ex-Officio | Officer | 40 | $169,900 |
Jamie Perry Ex-Officio | Trustee | 1 | $24,000 |
Adriane Bayliss Vice Preside | OfficerTrustee | 1.5 | $0 |
John Caccamese President-El | OfficerTrustee | 2 | $0 |
James Cray Communicatio | OfficerTrustee | 1 | $0 |
Scott Dailey Treasurer | OfficerTrustee | 2.5 | $0 |
Financial Statements
| Statement of Revenue | |
|---|---|
| Federated campaigns | $0 |
| Membership dues | $406,195 |
| Fundraising events | $0 |
| Related organizations | $0 |
| Government grants | $1,748 |
| All other contributions, gifts, grants, and similar amounts not included above | $492,540 |
| Noncash contributions included in lines 1a–1f | $0 |
| Total Revenue from Contributions, Gifts, Grants & Similar | $900,483 |
| Total Program Service Revenue | $693,143 |
| Investment income | $79,307 |
| Tax Exempt Bond Proceeds | $0 |
| Royalties | $0 |
| Net Rental Income | $0 |
| Net Gain/Loss on Asset Sales | $361,446 |
| Net Income from Fundraising Events | $0 |
| Net Income from Gaming Activities | $0 |
| Net Income from Sales of Inventory | $21,900 |
| Miscellaneous Revenue | $0 |
| Total Revenue | $2,071,636 |
| Statement of Expenses | |
|---|---|
| Grants and other assistance to domestic organizations and domestic governments. | $0 |
| Grants and other assistance to domestic individuals. | $25,500 |
| Grants and other assistance to Foreign Orgs/Individuals | $0 |
| Benefits paid to or for members | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation of current officers, directors, key employees. | $0 |
| Compensation to disqualified persons | $0 |
| Other salaries and wages | $534,913 |
| Pension plan accruals and contributions | $0 |
| Other employee benefits | $0 |
| Payroll taxes | $0 |
| Fees for services: Management | $4,800 |
| Fees for services: Legal | $5,837 |
| Fees for services: Accounting | $38,430 |
| Fees for services: Lobbying | $0 |
| Fees for services: Fundraising | $0 |
| Fees for services: Investment Management | $0 |
| Fees for services: Other | $275,820 |
| Advertising and promotion | $5,468 |
| Office expenses | $83,365 |
| Information technology | $0 |
| Royalties | $0 |
| Occupancy | $19,482 |
| Travel | $34,665 |
| Payments of travel or entertainment expenses for any federal, state, or local public officials | $0 |
| Conferences, conventions, and meetings | $323,039 |
| Interest | $0 |
| Payments to affiliates | $0 |
| Depreciation, depletion, and amortization | $19,719 |
| Insurance | $0 |
| All other expenses | $27,346 |
| Total functional expenses | $1,545,142 |
| Balance Sheet | |
|---|---|
| Cash—non-interest-bearing | $525,101 |
| Savings and temporary cash investments | $0 |
| Pledges and grants receivable | $3,000 |
| Accounts receivable, net | $41,510 |
| Loans from Officers, Directors, or Controlling Persons | $0 |
| Loans from Disqualified Persons | $0 |
| Notes and loans receivable | $0 |
| Inventories for sale or use | $3,146 |
| Prepaid expenses and deferred charges | $0 |
| Net Land, buildings, and equipment | $0 |
| Investments—publicly traded securities | $3,765,319 |
| Investments—other securities | $0 |
| Investments—program-related | $0 |
| Intangible assets | $0 |
| Other assets | $47,173 |
| Total assets | $4,385,249 |
| Accounts payable and accrued expenses | $44,487 |
| Grants payable | $0 |
| Deferred revenue | $255,986 |
| Tax-exempt bond liabilities | $0 |
| Escrow or custodial account liability | $0 |
| Loans and other payables to any current Officer, Director, or Controlling Person | $0 |
| Secured mortgages and notes payable | $0 |
| Unsecured mortgages and notes payable | $0 |
| Other liabilities | $0 |
| Total liabilities | $300,473 |
| Net assets without donor restrictions | $3,028,023 |
| Net assets with donor restrictions | $1,056,753 |
| Capital stock or trust principal, or current funds | $0 |
| Paid-in or capital surplus, or land, building, or equipment fund | $0 |
| Retained earnings, endowment, accumulated income, or other funds | $0 |
| Total liabilities and net assets/fund balances | $4,385,249 |
Grants Recieved
Over the last fiscal year, we have identified 6 grants that American Cleft Palate-Craniofacial Association has recieved totaling $110,021.
| Awarding Organization | Amount |
|---|---|
Amparo Foundation Plano, TX PURPOSE: CONTRIBUTION FOR BRANDING AND WEBSITE SUPPORT. | $100,000 |
American Online Giving Foundation Inc Newark, DE PURPOSE: GENERAL SUPPORT | $5,311 |
Amazonsmile Foundation Seattle, WA PURPOSE: GENERAL SUPPORT | $2,010 |
Martin And Anne Saffer Foundation Worcester, MA PURPOSE: TO FUND CONTINUING CHARITABLE PURPOSES | $2,000 |
Bank Of America Charitable Foundation Inc Charlotte, NC PURPOSE: OPERATIONAL SUPPORT | $500 |
Turkanis Family Foundation Wilmington, DE PURPOSE: GENERAL & UNRESTRICTED | $200 |
Endowment Analysis
| Beg. Balance | $804,417 |
| Earnings | -$145,121 |
| Grants | $1,500 |
| Ending Balance | $657,796 |
Peer Organizations
| Organization Name | Assets | Revenue |
|---|---|---|
Multiple Sclerosis Center Of Georgia Inc Atlanta, GA | $14,597,977 | $12,400,152 |
National Osteoporosis Foundation Arlington, VA | $8,108,231 | $4,451,574 |
Amyotrophic Lateral Sclerosis Association Raleigh, NC | $3,676,425 | $2,631,845 |
American Cleft Palate-Craniofacial Association Chapel Hill, NC | $4,385,249 | $2,071,636 |
Amyotrophic Lateral Sclerosis Association Brentwood, TN | $1,027,246 | $1,172,897 |
National Commission On Orthotic And Prosthetic Education Inc Alexandria, VA | $3,165,139 | $1,303,800 |
Virginia Gentlemens Foundation Inc Virginia Beach, VA | $9,341,896 | $926,664 |
Options Inc Morganton, NC | $578,906 | $634,206 |
Next Step Atlanta Inc Alpharetta, GA | $246,220 | $603,149 |
Reston Town Center Joint Committee Manassas, VA | $1,676,760 | $735,316 |
National Caucus & Ctr On Black Aged Housing Serv Of Ms Iv Inc Memphis, TN | $1,942,390 | $371,072 |
Racing For Als Inc Apex, NC | $207,853 | $264,600 |