Amyotrophic Lateral Sclerosis Assn

Organization Overview

Amyotrophic Lateral Sclerosis Assn, operating under the name The Als Association, is located in Arlington, VA. The organization was established in 1990. According to its NTEE Classification (G50) the organization is classified as: Nerve, Muscle & Bone Diseases, under the broad grouping of Voluntary Health Associations & Medical Disciplines and related organizations. As of 01/2022, Als Association employed 151 individuals. This organization is a parent organization of an affiliated group for tax-exemption purposes. Als Association is a 501(c)(3) and as such, is described as a "Charitable or Religous organization or a private foundation" by the IRS.

For the year ending 01/2022, Als Association generated $39.8m in total revenue. This represents relatively stable growth, over the past 7 years the organization has increased revenue by an average of 6.5% each year. All expenses for the organization totaled $44.9m during the year ending 01/2022. While expenses have increased by 3.4% per year over the past 7 years. They've been increasing with an increasing level of total revenue. You can explore the organizations financials more deeply in the financial statements section below.

Since 2016, Als Association has awarded 1,244 individual grants totaling $118,109,057. If you would like to learn more about the grant giving history of this organization, scroll down to the grant profile section of this page.

Mission & Program ActivityExcerpts From the 990 Filing

TAX YEAR

2022

Describe the Organization's Mission:

Part 3 - Line 1

LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES.

Describe the Organization's Program Activity:

Part 3 - Line 4a

RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS).


PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION'S NATIONAL CARE SERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OF CHAPTERS, IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES.


PUBLIC AND PROFESSIONAL EDUCATION: THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY, AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31, 2022, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH.


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Outside Vendors & Contractors

Vendor Name (Service)Compensation
Salesforce
Crm Software Vendor
$887,657
Attain Llc
Crm Software Implementation
$862,834
Turnkey Promotions
Marketing Consulting Services
$848,590
Mcdermott Will & Emery
Attorney
$619,553
Beyond Definition
Communication Consulting
$375,461
View All Vendors

Financial Statements

Statement of Revenue
Federated campaigns$64,816
Membership dues$0
Fundraising events$1,470,494
Related organizations$0
Government grants $5,684,058
All other contributions, gifts, grants, and similar amounts not included above$30,338,156
Noncash contributions included in lines 1a–1f $954,115
Total Revenue from Contributions, Gifts, Grants & Similar$37,557,524
Total Program Service Revenue$0
Investment income $2,158,934
Tax Exempt Bond Proceeds $0
Royalties $0
Net Rental Income $0
Net Gain/Loss on Asset Sales $54,926
Net Income from Fundraising Events $0
Net Income from Gaming Activities $0
Net Income from Sales of Inventory $0
Miscellaneous Revenue$0
Total Revenue $39,792,803

Grants Awarded

Over the last fiscal year, Amyotrophic Lateral Sclerosis Assn has awarded $12,307,984 in support to 147 organizations.

Grant RecipientAmount

UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL

Org PageRecipient Profile

Shrewsbury, MA

PURPOSE: STRATEGTIC INITIATIVE

$1,109,018

MASSACHUSETTS GENERAL HOSPITAL

Org PageRecipient Profile

Somerville, MA

PURPOSE: STRATEGTIC INITIATIVE

$1,000,000

NEW YORK GENOME CENTER

Org PageRecipient Profile

New York, NY

PURPOSE: STRATEGTIC INITIATIVE

$575,000

RAPA THERAPEUTICS LLC

PURPOSE: CLINICAL TRIAL AWARD

$500,000

UNIVERSITY OF FLORIDA BOARD OF TRUSTEES

Org PageRecipient Profile

Gainesville, FL

PURPOSE: CLINICAL TRIAL AWARD

$500,000

MASSACHUSETTS GENERAL HOSPITAL

Org PageRecipient Profile

Somerville, MA

PURPOSE: STRATEGTIC INITIATIVE

$300,539
View Grant Profile

Grants Recieved

Over the last fiscal year, we have identified 1 grants that Amyotrophic Lateral Sclerosis Assn has recieved totaling $5,500.

Awarding OrganizationAmount
Mudge Foundation 4942-0

Pittsburgh, PA

PURPOSE: GENERAL SUPPORT

$5,500
View Grant Recipient Profile

Endowment Analysis

Beg. Balance$6,516,315
Earnings$429,109
Other Expense$435,694
Ending Balance$6,509,730

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